Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 http://www.danda.org.uk/ DANDA – the Developmental Adult Neuro-Diversity Association has been set up for people with Dyspraxia, Asperger's Syndrome, ADHD and other related conditions such as dyslexia and dyscalculia. It is run by adults with one or more of these conditions, thus following the Madrid declaration of 2002, which stated that organisations should be run by its users. DANDA is a national registered charity with its administrative and fund-raising centre in London. Founded in 2003, it is financed mainly by membership subscriptions and private donations. DANDA has grown out of the Dyspraxia Foundation Adult Support Group as it became clear that most people that joined did not have dyspraxia condition alone but had other linked Neuro-Diverse conditions. Most in fact had ADHD, Asperger's Syndrome or dyslexia as well. It seemed this was the norm rather than the exception. Dyspraxia will remain one of the main priorities as we are the only group catering for the needs of all adults with this condition. However, more and more people wanted to know more about the other conditions they had, especially those with Asperger's and ADHD. Many dyspraxics in fact joined groups for adults with Asperger's Syndrome but none are run by Asperger's adults themselves and there are no ADHD groups for adults here, just for children. We have groups for people with the conditions and we will give contacts for DANDA in your area when you become a member. We have a newsletter, which will come out at least twice a year, and we intend to produce leaflets on Neuro-diversity, as well as a book on the subject on the same lines as Living with Dyspraxia. A website will also be set up. Our first conference is planned for next May for those with the conditions. We hope also to run conferences for medical professionals soon in conjunction with the Dyscovery Centre. We will encourage research and also increase awareness of these conditions in the workplace and amongst advocacy agencies and those dealing with the Disabled The Objectives of DANDA are as follows: 1) To help adults with Developmental dyspraxia, ADHD, Asperger's Syndrome and related conditions reach their full potential by providing and improving emotional and practical support, particularly for those conditions for which there has been less provision – such as dyspraxia 2) To raise awareness and understanding of these conditions in adulthood, particularly their assessment, their effects, their treatment and the inter-relationship between the different conditions 3) To establish networks of groups to help adults with these conditions get involved in activities for interaction, mutual support, and education, provided that the activities shall be charitable. DANDA has been set up to address the problems with Dyspraxia and related Neuro-Diverse conditions such as Attention Deficit Hyperactivity Disorder (ADHD), Asperger's Syndrome, Tourette's Syndrome, Dyslexia and Dyspraxia. Some of the activities of DANDA are: Raising awareness of Dyspraxia and related conditions amongst the general public and other organisations that are active in similar fields, including health and educational professionals. Forming and servicing self-help groups throughout the UK. Simplifying and increasing diagnosis, particularly in the NHS. Offering support, advice and counselling to adults with Neuro-Diverse conditions, particularly in education and employment. Acting as a resource and information centre for health and education professionals and adults generally. Producing a newsletter " DANDA network " twice a year, and information leaflets. Organising conferences and talks about Dyspraxia and related conditions for adults, carers and professionals. Ensuring we are represented in the wider disability movement. Please join us in our work. For details of how to become a member Click Here http://www.danda.org.uk/ Quote Link to comment Share on other sites More sharing options...
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