Guest guest Posted February 2, 2003 Report Share Posted February 2, 2003 Welcome to the list! First, if you haven't already, please go to www.nids.net, or www.neuroimmunedr.com to familiarize yourself with the protocol. My son will be 5 at the end of this month and we've had amazing results since beginning the protocol about 7 months ago. He was making relatively good progress with speech, OT, behavior intervention, etc., before beginning the protocol, but it was far slower. The changes in my son have been noticed by all of his teachers and therapists, most of whom don't know what we've been doing. The protocol involves diet changes to increase proteins and eliminate allergens, and the use of FDA-approved medications that are meant to treat underlying medical conditions that are causing the autistic symptoms: candida overgrowth, elevated viral titers, low ferritin levels, impaired blood flow to temporal lobes of the brain, etc.. The meds are given slowly, one at a time, to determine whether or not they are doing what they are intended to do, and there is no megadosing of suppliments, and no chelation.The only negatives I can comment on from my own experience is that there are sometimes regressions that can be distressing - mostly when the child is ill, or when starting or changing to a new medication. Especially once you've begun to see your bright, alert child emerging, as if from a deep sleep or a dense fog, a regression can really send you reeling. Some parents on this list have commented on the difficulty of giving a drug called kutapressin, which is injected (we have not gone down that road yet, but I am prepared to if it becomes necessary). To the best of my knowledge, Dr. Goldberg no longer travels to see patients. There are quite a few families who travel to see him for an initial visit and then follow-up appointments are done over the phone, with the child's local pediatrician coordinating the lab work. (We live in Dr. Goldberg's area, so that has not been an issue for us.) Personally, I can't recommend the protocol enough and wish more of my friends with children on the spectrum would consider it. I know there will be more information and opinions from other parents on this list, but I hope this will be a helpful start. Donna New to list Hi I am new to this list. We have a 8 year old son who is autistic we have been doing ABA for almost 4 years now. I recently heard about the nids protocol, I was wondering if Dr. Goldberg travels to see kids and also how has the nids protocol worked for those who tried it .please let me know both good and bad, Thanks and any help is greatly appreciated.Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi I am from Arizona, a very dry state in more ways than one. I have a 6 year old boy with autism. I have the one behavior analyst in the state leading his team thank goodness. But having qualified/adequately trained therapists is a real challenge. It is a state very stuck in old ways and slow to change. Over that the thing I feel even more deeply about is that I have a child who wants to learn at light speed and there is no support for that. I look forward to associating with like minded parents who have discovered real ABA/AVB and the power it has to change lives. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 > new to list > > >Thanks for approving my membership. I live & work in Georgia (yoga >instructor & professor). I have been a vegetarian for 32 years. > >... Valarie Have you been consuming any dairy or eggs? Or have you been a strict vegan? Do you have any health issues? There are many former vegetarians and vegans on this board who've improved or cleared up their health issues by following Weston Price/traditional nutrition dietary principles. Suze Fisher Lapdog Design, Inc. Web Design & Development http://members.bellatlantic.net/~vze3shjg Weston A. Price Foundation Chapter Leader, Mid Coast Maine http://www.westonaprice.org ---------------------------- “The diet-heart idea (the idea that saturated fats and cholesterol cause heart disease) is the greatest scientific deception of our times.” -- Mann, MD, former Professor of Medicine and Biochemistry at Vanderbilt University, Tennessee; heart disease researcher. The International Network of Cholesterol Skeptics <http://www.thincs.org> ---------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 Suze asked [[Have you been consuming any dairy or eggs?]] ** In my 30+ years, I have run the gamut of veggie-types. Currently, I follow an Ayurvedic approach: organic dairy. (I detest eggs.) [[Or have you been a strict vegan?]] ** For seven years during my 30s. I have been seriously re-looking into lifestyle. [[Do you have any health issues?]] ** No. I teach & practice Yoga 20 hours a week. On the weekends I hike & bike. [[.. Weston Price/traditional nutrition dietary principles.]] ** Ive never heard of this before, which is one of the reasons for joining. At this phase in my life, I am re-looking at going raw. Om Peace!.. Valarie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 > Re: new to list > > >Suze asked [[Have you been consuming any dairy or eggs?]] >** In my 30+ years, I have run the gamut of veggie-types. >Currently, I follow an Ayurvedic approach: organic dairy. (I detest >eggs.) Ah good - you are getting some animal fat, protein and b-12 then. > >[[Or have you been a strict vegan?]] >** For seven years during my 30s. I have been seriously re-looking >into lifestyle. Good, because that's a deficient diet. >[[.. Weston Price/traditional nutrition dietary principles.]] >** Ive never heard of this before, which is one of the reasons for >joining. At this phase in my life, I am re-looking at going raw. There's a wealth of information on this subject here: http://www.westonaprice.org Suze Fisher Lapdog Design, Inc. Web Design & Development http://members.bellatlantic.net/~vze3shjg Weston A. Price Foundation Chapter Leader, Mid Coast Maine http://www.westonaprice.org ---------------------------- “The diet-heart idea (the idea that saturated fats and cholesterol cause heart disease) is the greatest scientific deception of our times.” -- Mann, MD, former Professor of Medicine and Biochemistry at Vanderbilt University, Tennessee; heart disease researcher. The International Network of Cholesterol Skeptics <http://www.thincs.org> ---------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Hello Valarie, It's great that you're looking into making some changes to your diet. You came to the right place. :-) I have a friend who was vegan for 6 years. He's a triathlete, so he's very fit, but he noticed that over the last couple of years, his energy level gradually declined. So, he supplemented his diet with more B-12 (he was already getting some in a multi-vitamin), and that helped a lot, but it still wasn't enough. He also added freshly ground organic flax seeds, but that wasn't enough, either. After much consideration (and my encouragment), he decided to add organic, free- range eggs to his diet. The difference it made in his recovery from a hard workout was incredible. So incredible that he almost didn't believe it. But he's a scientific type, and isn't prone to the placebo effect, so he knew it was the eggs. However, he didn't think that he was unhealthy until he experienced the difference a few small changes made. Perhaps you'll experience a similar thing with whatever you decide to add. :-) My friend will never eat meat or fish (he chose to be vegan for ethical reasons) but he's comfortable with the eggs and he might add raw dairy in the future. An excellent website for you to visit is www.beyondveg.org The articles on beyondveg.org are written by vegetarians and ex- vegetarians. The pros and cons of raw diets and 'paleolithic' diets are discussed in a clear, science-based way. Very informative. I visit it regularly. Peace and natural health to you :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 >My friend will never eat meat or fish (he >chose to be vegan for ethical reasons) but he's comfortable with the >eggs and he might add raw dairy in the future. If you are a vegetarian for ethical reasons, I highly recommend having some chickens (or getting your eggs from someone who has them). I don't feel at ALL unethical eating my chicken's eggs ... they live a good life, I feed them well, and they lay eggs. Ditto with milk animals .... my neighbor got a goat, and it's a nice animal with, again, a good life. Kind of a pain to milk it twice a day (for the human) but it gives lots of " free " protein in exchange for eating, basically, weeds. Meat is a more complicated issue, but we've gotten into knowing the source, and that makes a lot of difference. But milk and eggs are easy ... and most humans do fine if they get milk or eggs and vegies/fruit. -- Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 blueberry wrote [[it's great that you're looking into making some changes to your diet. .. I have a friend who was vegan for 6 years.]] ** I havent been a vegan in over 10 years. Personally, what I always come back to is the Ayurvedic approach (body type). I am very watchful of what I eat .. knowing full well it is not just my body in question, but my mind & spirit as well. [[An excellent website for you to visit is www.beyondveg.org]] ** Ah .. Ive been here. Thanks for the link though. It is a good site. Om Peace!.. Valarie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 > Personally, what I > always come back to is the Ayurvedic approach (body type). Hi Valarie and welcome; any good Ayurvedic links? Lynn S. ------ Lynn Siprelle * web developer, writer, mama, fiber junky http://www.siprelle.com/ http://www.thenewhomemaker.com/ http://www.democracyfororegon.com/ Quote Link to comment Share on other sites More sharing options...
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