Re: Need help ....Im about to loose my mind

[Guest guest]

, I don't have any help to offer, I don't even live in Texas, but I will

be praying for you and your son. I can only imagine how hard it must be for

you. How old is your son? Did the behavior start before or after the

medication changes? Can the doctor give you something to even sedate him for a

little while so that you can get some sleep and some peace? Do you have family

members that can either take him or his sisters for a while to help? I will be

praying and I hope you find some help.

Willoughby wrote:

My son has been through 3 medication changes in the past week and a

half with nothing helping. He has been screaming his head off, attacking his

sisters, hitting himself, the wall, biting etc. Wed he screamed nearly non stop

for 9 hours.

This has happened before. I take him to the er they say we cant find anything

wrong with him have a nice day.

Sooo.... Does anyone have any info on how I might get and where I might find

respite care? Without a year + waiting list?

I called a couple of hospitals greenville wouldnt take him neither would

timberlawn. Timberlawn says they arent equipped and greenville says they cant

take him because he is non verbal. They tell me denton state school but I really

dont want to relinquish my parental rights without exhausting all other

possibilities . however if I dont find some kind of help soon *I*am gonna need

help.

Thanks,

nicole ----north of dallas near OK border

---------------------------------

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[Guest guest]

I am sooo sorry to hear this, ! I hurt for you and will be lifting

you and your family up in prayer.

The screaming, hitting, and biting automatically lead me to think that your

son is in some serious pain. Does he have a history of GI pain? Have you

pursued any biomed treatment?

I hope there are others on this site who can help you and your family find

some solutions to ease your suffering.

Thinking of you!

On Fri, Mar 21, 2008 at 6:44 PM, Willoughby <

cncnawilloughby@...> wrote:

> My son has been through 3 medication changes in the past week and a half

> with nothing helping. He has been screaming his head off, attacking his

> sisters, hitting himself, the wall, biting etc. Wed he screamed nearly non

> stop for 9 hours.

> This has happened before. I take him to the er they say we cant find

> anything wrong with him have a nice day.

>

> Sooo.... Does anyone have any info on how I might get and where I might

> find respite care? Without a year + waiting list?

>

> I called a couple of hospitals greenville wouldnt take him neither would

> timberlawn. Timberlawn says they arent equipped and greenville says they

> cant take him because he is non verbal. They tell me denton state school but

> I really dont want to relinquish my parental rights without exhausting all

> other possibilities . however if I dont find some kind of help soon *I*am

> gonna need help.

>

> Thanks,

> nicole ----north of dallas near OK border

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo! Search.

>

>

[Guest guest]

,

I will most certainly keep you in my prayers. Have you tried Cook Children's

in downtown Fort Worth? My daughter had a nervous breakdown about 4 years ago

and nearly choked her then 3 year old brother. She isn't autistic but she is

ADHD. I took her straight to the ER and she was admitted to the psych ward for 6

days. While she was there, there were several children on the spectrum. There

was a child that was non verbal too. You might want to try there. I don't blame

you for not wanting to take your child to the Denton State School. I have heard

some horrible stories about that place.

---------------------------------

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[Guest guest]

We are in Rockwall...we will be home Sunday. Don't give up. I am a Special Ed

Teacher for Royse City.

Need help ....Im about to loose my mind

My son has been through 3 medication changes in the past week and a half with

nothing helping. He has been screaming his head off, attacking his sisters,

hitting himself, the wall, biting etc. Wed he screamed nearly non stop for 9

hours.

This has happened before. I take him to the er they say we cant find anything

wrong with him have a nice day.

Sooo.... Does anyone have any info on how I might get and where I might find

respite care? Without a year + waiting list?

I called a couple of hospitals greenville wouldnt take him neither would

timberlawn. Timberlawn says they arent equipped and greenville says they cant

take him because he is non verbal. They tell me denton state school but I really

dont want to relinquish my parental rights without exhausting all other

possibilities . however if I dont find some kind of help soon *I*am gonna need

help.

Thanks,

nicole ----north of dallas near OK border

---------------------------------

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[Guest guest]

,

He is asleep on clonidine...hopefully the night . No family in the area . I am

about to send my oldest to LA for a few days to get her a break and hopefully

the youngest to houston .

The fits and screaming come in waves . This time it started right after he was

put on tenex ...which was supposed to help with teh hitting and agression and

made it 10x worse .

Then Imipramine ( Tofranil ) which did nothing. and changes in his risperadol.

---------------------------------

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[Guest guest]

Well, I'm glad he's sleeping and your able to relax a bit yourself. I know how

it is to not have family in the area. I'm in PA and my family is in Arkansas.

My hubby has his parents near by but they aren't really able to handle young

kids anymore and they certainly wouldn't be up for a situation like what you

describe.

I found a website for the ARC of Dallas, maybe you could contact them and they

might be able to steer you somewhere for help. Here it is:

http://www.arcdallas.org/

There are good people in this group and I'm sure someone will come through

with some ideas for you. Get some sleep.

God Bless,

Willoughby wrote:

,

He is asleep on clonidine...hopefully the night . No family in the area . I am

about to send my oldest to LA for a few days to get her a break and hopefully

the youngest to houston .

The fits and screaming come in waves . This time it started right after he was

put on tenex ...which was supposed to help with teh hitting and agression and

made it 10x worse .

Then Imipramine ( Tofranil ) which did nothing. and changes in his risperadol.

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

I am sorry this is happening. You might want to find a good

neurologist, maybe come to Dallas and talk about all the medications,

how to wean him off some. They might be making him feel strange and

he can't tell anyone.

Another idea is to contact your MHMR center and speak with a

supervisor/director. Tell them you need immediate emergency help.

Sometimes they have funds available for emergencies they might be

able to get you respite. See if they have an In-home Family support

grant to help with respite.

I hope you find some good resources for help soon.

Nagla

>

> ,

>

> He is asleep on clonidine...hopefully the night . No family in

the area . I am about to send my oldest to LA for a few days to get

her a break and hopefully the youngest to houston .

>

> The fits and screaming come in waves . This time it started right

after he was put on tenex ...which was supposed to help with teh

hitting and agression and made it 10x worse .

> Then Imipramine ( Tofranil ) which did nothing. and changes in

his risperadol.

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo!

Search.

>

>

[Guest guest]

Hi ,

I am so sorry for what you are going through and for your son. My

daughter use to be agressive and we finally figured out that it was

gut pain. She is non-verbal. We started treating her through the

Homeopathy Center of Houston and our homeopath figured it out. They

are addressing her gut as well as her entire timeline and as she has

improved the agression is now minimal we see very little and it is

now related to her getting mad about something and it is nowhere near

the intensity that it was when she was in pain.

http://www.homeopathyhouston.com/homeopathy_testimonials/homeopathy_te

stimonials.html

You may want to call All Church Home for Children in Fort Worth (817

335 4041). They do not offer in house respite care for children with

autism but they may be able to have someone come to your home to help

with your son. If they are unable to help you may want to call MHMR

and see if they know of any services to help right now.

>

> My son has been through 3 medication changes in the past week and a

half with nothing helping. He has been screaming his head off,

attacking his sisters, hitting himself, the wall, biting etc. Wed he

screamed nearly non stop for 9 hours.

> This has happened before. I take him to the er they say we cant

find anything wrong with him have a nice day.

>

> Sooo.... Does anyone have any info on how I might get and where I

might find respite care? Without a year + waiting list?

>

> I called a couple of hospitals greenville wouldnt take him

neither would timberlawn. Timberlawn says they arent equipped and

greenville says they cant take him because he is non verbal. They

tell me denton state school but I really dont want to relinquish my

parental rights without exhausting all other possibilities . however

if I dont find some kind of help soon *I*am gonna need help.

>

> Thanks,

> nicole ----north of dallas near OK border

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo!

Search.

>

>

[Guest guest]

,

I'm near the OK border, too. What city/county are you in? I can help

with direct numbers/contact names to the MHMR in Grayson Cty. Call me

and I will help in any way that I can.

Elsie

>

> My son has been through 3 medication changes in the past week and a

half with nothing helping. He has been screaming his head off,

attacking his sisters, hitting himself, the wall, biting etc. Wed he

screamed nearly non stop for 9 hours.

> This has happened before. I take him to the er they say we cant

find anything wrong with him have a nice day.

>

> Sooo.... Does anyone have any info on how I might get and where I

might find respite care? Without a year + waiting list?

>

> I called a couple of hospitals greenville wouldnt take him neither

would timberlawn. Timberlawn says they arent equipped and greenville

says they cant take him because he is non verbal. They tell me denton

state school but I really dont want to relinquish my parental rights

without exhausting all other possibilities . however if I dont find

some kind of help soon *I*am gonna need help.

>

> Thanks,

> nicole ----north of dallas near OK border

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo!

Search.

>

>

[Guest guest]

Hi

What is the prescribing doctors position or suggestion.

This is terrible. No parent or child should have to go through this.

> ,

>

> I'm near the OK border, too. What city/county are you in? I can help

> with direct numbers/contact names to the MHMR in Grayson Cty. Call me

> and I will help in any way that I can.

>

>

> Elsie

>

>

> >

> > My son has been through 3 medication changes in the past week and a

> half with nothing helping. He has been screaming his head off,

> attacking his sisters, hitting himself, the wall, biting etc. Wed he

> screamed nearly non stop for 9 hours.

> > This has happened before. I take him to the er they say we cant

> find anything wrong with him have a nice day.

> >

> > Sooo.... Does anyone have any info on how I might get and where I

> might find respite care? Without a year + waiting list?

> >

> > I called a couple of hospitals greenville wouldnt take him neither

> would timberlawn. Timberlawn says they arent equipped and greenville

> says they cant take him because he is non verbal. They tell me denton

> state school but I really dont want to relinquish my parental rights

> without exhausting all other possibilities . however if I dont find

> some kind of help soon *I*am gonna need help.

> >

> > Thanks,

> > nicole ----north of dallas near OK border

> >

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them fast with Yahoo!

> Search.

> >

> >

[Guest guest]

Claudette Fette at Denton County Federation of Families might have some

ideas for you. You can reach her at

http://www.dentoncountyfederation.org

Denton County Federation of Families

Phone: :: Fax Number:

2519 Scripture :: PO Box 2346 Denton :: Texas :: 76202

Also, I'd be concerned about so many medication changes in such a short

time. A lot of the psychological medications don't work immediately; many

take weeks to take full effect.

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of

Willoughby

Sent: Friday, March 21, 2008 8:44 PM

To: Texas-Autism-Advocacy

Subject: Need help ....Im about to loose my mind

My son has been through 3 medication changes in the past week and a half

with nothing helping. He has been screaming his head off, attacking his

sisters, hitting himself, the wall, biting etc. Wed he screamed nearly non

stop for 9 hours.

This has happened before. I take him to the er they say we cant find

anything wrong with him have a nice day.

Sooo.... Does anyone have any info on how I might get and where I might find

respite care? Without a year + waiting list?

I called a couple of hospitals greenville wouldnt take him neither would

timberlawn. Timberlawn says they arent equipped and greenville says they

cant take him because he is non verbal. They tell me denton state school but

I really dont want to relinquish my parental rights without exhausting all

other possibilities . however if I dont find some kind of help soon *I*am

gonna need help.

Thanks,

nicole ----north of dallas near OK border

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Dear

My heart goes out to you. I am so sorry that you are going through this. I do

not live in your area, but I do have a couple of suggestions that you might want

to try if you haven't already.

Google the following

(1)Children's Assessment Center

(2)Contact Texas Childrens Hospital (Houston) and talk to someone on the

Autism Center. A possible contact would be Dr. Sherrie Sellers. They may have

a contact in your city.

(3) I am not sure if you are receiving medicaid or not but they should be able

to direct you to a child psychologist.

(4) Is there and ARC in your area?

(5) Contact Advocay Inc to see if they have referrals.

(6) Houston as a center called IntraCare on Fannin that you may want to

contact. In some cases children stay there until they are able to determine the

proper medication and the current situation is under control

Respite

Your school district or local ARC should be able to give you some respite

providers that can give you and the rest of the family a break.

In the meantime, I hear of think of anything else I will email you.

Marhoefer wrote:

Hi

What is the prescribing doctors position or suggestion.

This is terrible. No parent or child should have to go through this.

> ,

>

> I'm near the OK border, too. What city/county are you in? I can help

> with direct numbers/contact names to the MHMR in Grayson Cty. Call me

> and I will help in any way that I can.

>

>

> Elsie

>

>

> >

> > My son has been through 3 medication changes in the past week and a

> half with nothing helping. He has been screaming his head off,

> attacking his sisters, hitting himself, the wall, biting etc. Wed he

> screamed nearly non stop for 9 hours.

> > This has happened before. I take him to the er they say we cant

> find anything wrong with him have a nice day.

> >

> > Sooo.... Does anyone have any info on how I might get and where I

> might find respite care? Without a year + waiting list?

> >

> > I called a couple of hospitals greenville wouldnt take him neither

> would timberlawn. Timberlawn says they arent equipped and greenville

> says they cant take him because he is non verbal. They tell me denton

> state school but I really dont want to relinquish my parental rights

> without exhausting all other possibilities . however if I dont find

> some kind of help soon *I*am gonna need help.

> >

> > Thanks,

> > nicole ----north of dallas near OK border

> >

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them fast with Yahoo!

> Search.

> >

> >

[Guest guest]

Hi ,

Tonya is correct about Claudette Fette, she was so instrumental in helping me

with my . She is a neat lady. I am curious what type of doctor is

changing your son's meds? We for awhile allowed regular MD's to prescribe

AManda's meds. But when she went off the deep end about 6-8 months ago, and we

took her to Cook's Children Hospital and spent a week on the psyc. floor. We

started usin a phsycaritst to handle her meds. and no one else. We use a DR.

Creason in Denton. I really like him. I stay in communication with him and he

is open to some of my suggestions. Please feel free to contact me and I will

share any numbers and names I have. .

My heart goes out to you!!!!!!! It is hard to find respite and then to find

people who can handle our children. We tried MHMR's respite, they kept

long enough for us to make it home and call because they first saw she was on

Valtrex and assume she had a contagious disease, and because of her spitting

they thought they would get it.....what ever it is! There is a place in

Houston called the " Texanna Center " or the BTTC. I was told it is for

autistic, M.R. children with behavior problems. I have also been told it is

very ABA oriented. I am considering it for this summer. You can google

the name and read what it says. This is stepping out further to say, I

understand the frustration. We as parents get tired, and as we get tired we

forget the correct ways to handle our special angels. So as they react we

counter react and life seems to spiral out of control. It has for us several

times lately. PLease feel free to call, and vent.

God knows your heart and He will give you strength to make it through this. I

know because God has delivered us many times through times that seemed so dark

and endless.

God Bless

..... amom2amanda

Tonya Hettler wrote:

Claudette Fette at Denton County Federation of Families might have

some

ideas for you. You can reach her at

http://www.dentoncountyfederation.org

Denton County Federation of Families

Phone: :: Fax Number:

2519 Scripture :: PO Box 2346 Denton :: Texas :: 76202

Also, I'd be concerned about so many medication changes in such a short

time. A lot of the psychological medications don't work immediately; many

take weeks to take full effect.

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of

Willoughby

Sent: Friday, March 21, 2008 8:44 PM

To: Texas-Autism-Advocacy

Subject: Need help ....Im about to loose my mind

My son has been through 3 medication changes in the past week and a half

with nothing helping. He has been screaming his head off, attacking his

sisters, hitting himself, the wall, biting etc. Wed he screamed nearly non

stop for 9 hours.

This has happened before. I take him to the er they say we cant find

anything wrong with him have a nice day.

Sooo.... Does anyone have any info on how I might get and where I might find

respite care? Without a year + waiting list?

I called a couple of hospitals greenville wouldnt take him neither would

timberlawn. Timberlawn says they arent equipped and greenville says they

cant take him because he is non verbal. They tell me denton state school but

I really dont want to relinquish my parental rights without exhausting all

other possibilities . however if I dont find some kind of help soon *I*am

gonna need help.

Thanks,

nicole ----north of dallas near OK border

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Has he had extensive testing done to check for possible physical/medical

problems ie. ulcers or other stomach issues/ headaches, etc? a

Re: Need help ....Im about to loose my mind

,

He is asleep on clonidine...hopefully the night . No family in the area . I am

about to send my oldest to LA for a few days to get her a break and hopefully

the youngest to houston .

The fits and screaming come in waves . This time it started right after he was

put on tenex ...which was supposed to help with teh hitting and agression and

made it 10x worse .

Then Imipramine ( Tofranil ) which did nothing. and changes in his risperadol.

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

I agree with a that you need to rule out other problems if

feasible.

However, I'm not surprised to see a negative reaction from any med

that targets catecholamines. It's a minefield, and I'm speaking from

experience.

I found this:

Pediatric Use

Safety and effectiveness in pediatric patients under 12 years of age

have not been demonstrated. Therefore, the use of guanfacine in this

age group is not recommended. There have been spontaneous

postmarketing reports of mania and aggressive behavioral changes in

pediatric patients with attention-deficit hyperactivity disorder

(ADHD) receiving guanfacine. The reported cases were from a single

center. All patients had medical or family risk factors for bipolar

disorder. All patients recovered upon discontinuation of guanfacine

HCl.

Hopefully, it will resolve quickly. I assume you've stopped the

tenex. Clonidine is pretty similar.

At our house for calming we use naturals such as GABA, Magnesium, 5

htp or L-theanine (I'm not a doc so please take it for what it's

worth). Like rx meds, though, every child is unique. Good luck.

Regards,

Regards,

>

> Has he had extensive testing done to check for possible

physical/medical problems ie. ulcers or other stomach issues/

headaches, etc? a

> Re: Need help ....Im about to

loose my mind

>

>

> ,

>

> He is asleep on clonidine...hopefully the night . No family in

the area . I am about to send my oldest to LA for a few days to get

her a break and hopefully the youngest to houston .

>

> The fits and screaming come in waves . This time it started right

after he was put on tenex ...which was supposed to help with teh

hitting and agression and made it 10x worse .

> Then Imipramine ( Tofranil ) which did nothing. and changes in

his risperadol.

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Yahoo! Search.

>

>

[Guest guest]

I want to thank everyone who has replied on list and off . He was admitted to

cook childrens yesterday night. Ill get back to you guys but Im sure you can

understand Im very busy at the moment.

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

- We are all glad that you are able to get some help. We are all

thinking of you and wishing your family the best. Mara

Re: Re: Need help ....Im about to loose my mind

I want to thank everyone who has replied on list and off . He was admitted to

cook childrens yesterday night. Ill get back to you guys but Im sure you can

understand Im very busy at the moment.

------------ --------- --------- ---

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Actually, MHMR is best for emergency treatment. If a doctor sees the

child, in this fit, the doctor can then make emergency orders for the

child so that he does not hurt himself or anyone else. Sounds like he

is struggling really bad with all the medicines. Has an Autism

psychiatrist seen the child?

> >

> > ,

> >

> > He is asleep on clonidine...hopefully the night . No family in

> the area . I am about to send my oldest to LA for a few days to get

> her a break and hopefully the youngest to houston .

> >

> > The fits and screaming come in waves . This time it started right

> after he was put on tenex ...which was supposed to help with teh

> hitting and agression and made it 10x worse .

> > Then Imipramine ( Tofranil ) which did nothing. and changes in

> his risperadol.

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them fast with Yahoo!

> Search.

> >

> >

[Guest guest]

Sorry, I just got to your second post that your child is in Cook. I'm

so glad for you and your child. No child wants to be stuck in that

situation. I'm glad for him too.

> > >

> > > ,

> > >

> > > He is asleep on clonidine...hopefully the night . No family in

> > the area . I am about to send my oldest to LA for a few days to get

> > her a break and hopefully the youngest to houston .

> > >

> > > The fits and screaming come in waves . This time it started right

> > after he was put on tenex ...which was supposed to help with teh

> > hitting and agression and made it 10x worse .

> > > Then Imipramine ( Tofranil ) which did nothing. and changes in

> > his risperadol.

> > >

> > >

> > > ---------------------------------

> > > Looking for last minute shopping deals? Find them fast with Yahoo!

> > Search.

> > >

> > >

[Guest guest]

I am sorry that your son is so ill. It seems to me that he might be on too

much medication. I know that every child is different but my son is almost 14

and was diagnosed with Autism and Cerebral Palsy at age 3 and I have never given

him any medicine, except for Children's tylenol when he has the cold and

sometimes cough medicine. I too have no family around, and I know how hard

this can be. Please, if you can try getting someone to come in and help you a

few times a week, while you're taking care of your son. Have you tried reading

to him, playing a video game with him, playing music, singing to him, changing

his diet, giving him a nice long bubble bath, etc? MHMRA provides Respite Care

and will give you a list of respite care providers. Please do not try and do it

all on your own. You must make some time for yourself! May God continue to

bless you and your family.

To: Texas-Autism-Advocacy@...: mmmckinn@...: Mon, 24

Mar 2008 21:44:24 +0000Subject: Re: Need help ....Im

about to loose my mind

Actually, MHMR is best for emergency treatment. If a doctor sees thechild, in

this fit, the doctor can then make emergency orders for thechild so that he does

not hurt himself or anyone else. Sounds like heis struggling really bad with all

the medicines. Has an Autismpsychiatrist seen the child? > >> > ,> > > > He is asleep on clonidine...hopefully the night . No

family in > the area . I am about to send my oldest to LA for a few days to get

> her a break and hopefully the youngest to houston . > > > > The fits and

screaming come in waves . This time it started right > after he was put on tenex

....which was supposed to help with teh > hitting and agression and made it 10x

worse .> > Then Imipramine ( Tofranil ) which did nothing. and changes in > his

risperadol. > > > > > > ---------------------------------> > Looking for last

minute shopping deals? Find them fast with Yahoo! > Search.> > > > [Non-text

portions of this message have been removed]> >>

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