Guest guest Posted July 12, 1999 Report Share Posted July 12, 1999 from Dale, Mom to Katy, CVID, age 15 We've battled this CVID stuff for 4 years now -- Katy's never had a life-threatening crisis. I just want to balance the field for all of you who are out there and may be thinking that emergency disasters is the only form of CVID. At times Katy cries because she's covered with itchy rashes and headaches and miserable all over, yet, there's no real cause for alarm. It's just a virus. Sometimes we just wish it would get better or worse -- just quit this constant, chronic yuck! It's the little inisignificant stuff that gets to us because it is soooooooooooo constant! Right now she's had a migrane all day, got a strange rash on her torso, her fingers have strange bumps all over them, and the feels like she's been hit by a freight train -- but we went shopping for costume stuff this afternoon -- cause there's no guarantee that tomorrow will be better. Good night to all. Wishing you a happy week! and I are going to try to get together tomorrow night for dinner ! I'm so excited to get to meet someone from the group. I feel like family has arrived! In His service, Dale Quote Link to comment Share on other sites More sharing options...
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