Our kids talking about autism

[Guest guest]

Let me share with you something from my son. He was just 13 when he wrote

this. also has severe language issues - this was part of a radio

interview that was done - it was done with the aid of his computer and

talking software so the " conversation " was not a spoken one, it was a

written one with written questions and written answers (though the

interviewer was here in our house with him giving him the written questions

and recording his answers).

Autism the boy is Bain.

Autism is happy and sad.

I like Autism.

Autism makes me different from my friends.

That's OK.

to hear the full interview, go to http://pei.cbc.ca/GreatKids/alexbain.htm

For background on the contest, the reason the interview was done -

http://www.isn.net/~jypsy/greatkids.htm

-jypsy

> Hello list members!

> Next week is National Autism Awareness Week.Today I had a very

> limited but beautiful conversation with my 10 year old son about

> autism! Roni has got severe communication and language

> difficulties,his spontaneous repertoire is limited and he finds hard

> to express himself.Anyway, my small table is always full of books on

> autism and this week I received some publications from NAS.Just my

> curiosity, asked Roni about autism.

> This is the conversation that I have had;

> Q:Roni, do you know what autism means( books, posters,brochures are

> on the table)

> Roni:Yes

> Q:What does it mean ?

> Roni: " Me " ( I heard the same statement a few months before when I was

> reading books on autism, I had asked the same question.The

> interesting thing is he repeated himself again )

> Q:Can you tell me ..knowing that you have autism, how do you feel

> about it?

> Roni:Sad

> Q:Why?

> Roni: He stuttered a bit, because .......then he said " angry "

> Q:Why?

> Roni:because........Unfortunately he couldn't give me the answer.This

> conversation didn't happen easily,my perseverance attitude has got

> the result.I realise that he is growing!

> Last 6 months I work with him time to time emotions from Simon Baron

> Cohen's Mind -Read book.Since then he is expressing how does he feel

> better but he can not reason it.I don't want to give him ready prompt

> answers to choose, I want to hear his spontaneous response.How can I

> improve his reasoning?

> I wonder if anyone on the list have got similar conversation with

> their child, I am sure high functioning kids may express much easily

> how they feel knowing that they have autism.

> All the best

> Nevin

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