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+Re: $7 billion reserve

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Many of us have family members with other diagnoses.

I can't imagine someone sending nasty emails over your post. How sad that

they can't take an open discussion, or don't have anything better to do!

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Sofia

Sent: Wednesday, April 16, 2008 11:47 AM

To: Texas-Autism-Advocacy

Subject: +Re: $7 billion reserve

Just to set the record straight and to stop the nasty emails coming to

my personal email, I have another family member afflicted with another

disability.

Sofia

>

> So special ed only consists of kids with autism? Only considering

kids with

> autism is very short-sighted.

> Sofia

>

> Re: $7 billion reserve

> Posted by: " mom2boysplano " emilyrhill@... mom2boysplano

> Tue Apr 15, 2008 10:34 pm (PDT) What if we run those number based on

> students with autism? Wasn't it

> something like 17,000 estimated for fiscal impact of SB 1000?

>

> I'm getting $41,177 per student. Sounds like a lot to me.

>

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Thanks Mark for posting this, briefly read some of it but will

continue to do some more reading on what you posted.

Just yesterday I had a conversation with an ex-California certified

home health attendant and the things she had shared how I wish Texas

followed some of the nursing services instead of spending too much

funds on other personnels who are not qualified.

Instead of attendants, nurses are hired here.

Do not get me wrong, some of the attendants are great whom I have met

but when they come they are not qualified and of course receive low pay.

Oh, we do get nursing services but it is only for them to come and do

the assessments annually only.

When I had mentioned about my son's health issues and how I had to

quit work twice and boy did I love my jobs but of course my priority

lead me where needed with my family and of course sacrifice lots.

To know that the CA school district's in LA, would actually follow the

care plan of the individual with unique and challenging needs as it

revolved around anyone with all disabilities.

She told me that if I had the nursing services for my son, instead of

me having to leave work the nurse would of stepped in and been with

him at the school or whatever needed.

If the child needed some type of intervention, the nurse would have to

attend to get educated and all of this was done at the school.

Respite hours were once again a nurse would assist here at home and if

mom wanted to work or go to school, the nursing care was there to

assist and heaven forbid with example if a child experiences even

ongoing seizures at school or at home, once again it is having a nurse

and what worked out here when needed the nurse would have that nurse &

doctor communication.

Medicaid services here definitely also needs a major overhaul, just

like Special Education.

It is sad that our kids will not have that opportunity to mentioned

something like because of so and so school or so so teacher was my

inspiration due to the fact of school districts rather battle with the

parents and fail the students, not realizing that the attorneys are

using their " weasel words " to get rich while the good therapist,

para-professionals and educators do not end up with a raise.

Parents who seek avenues to fork out so much money to hire an outside

attorney and the parents are not forewarn that only 1/5 to 20% will

win the case.

It is having to deal with the Special Education mafia when attorneys

are the only ones getting rich, like about & $10,000 tax-payers money

instead of spending like example a $500.laptop to accommodate around

the student's educational rights.

Yep, around $ 90 million a year which school district nationwide spend .

When it comes down to the Medicaid/Medicaid Waiver services, it is

cutting out the middle man especially when the funds are being cut.

Expenses towards those that sit behind the desk & get paid to be told

" will get right back " and are sometimes clueless should you even ask

them something and once again " will get right back " and so many months

passes and our child is still waiting on whatever services then told

that funds have been cut, such a headache.

Can you tell, definitely will read what you had to share, thanks.

Time for some changes indeed.

Y'all keep all the information coming and hopefully we could get

things shaking here in Texas.

Irma

>

> Tonya,

>

> I am sure you agree we are here to advocate for Autism.

> Look again at what the California Legislative put together for

> Autism families.

>

> http://senweb03.senate.ca.gov/autism/autismlegislation.html

>

> http://www.sacbee.com/111/story/832784.html

>

> " The next step in this cause and in this movement is making sure that

> autism and autism spectrum disorder are a top-tier public health

> priority, " said Steinberg, who sponsored the initiative and chaired

> the autism commission. " California Senator Darrell Steinberg

>

> It is " top-tier " .... maybe the Texas " general education " citizens

> will agree with what is being legislated for in California. I think

> they would and will :>) I thinking spending more than 7.5K for

> Texas Autism students would be wonderful.

>

> Mark

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