RE: Incontinence?

[Guest guest]

Geraldine,

Your son is the youngest one I've heard of to have this problem. This also

happened to Kenny, who is 11. I posted about it a while back, and got many

responses from parents whose kids are going through the exact same thing and

were approximately the same age as he is. I was beginning to think it had

something to do with early onset of puberty.

We've all taken data until we are blue in the face, and we've all concluded

it's not behavioral.

I've taken Kenny to the urologist (who says he's outputting 8 times more

urine than he should be) the nephrologist (who found high PTH levels

indicating possible hyperparathyroidism) and the endocrinologist (which was

a waste of time -- the doctor had quite an attitude.)

I can tell you that most of the standard tests came back normal. No

diabetes, or diabetes insipidus, no infections etc.

It's MUCH worse the more sugar he gets though. I have reduced the amount of

lemonade he gets and am giving him water now, and it does seem somewhat

better. (Perhaps because he doesn't drink as much water as lemonade.)

s (Cary, NC)

persistentC@...

President and Executive Director

The Mariposa School for Children with Autism

203 Gregson Drive

Cary, NC 27511

919-461-0600

<http://www.mariposaschool.org/> www.MariposaSchool.org

_____

From: Geraldine Bliss [mailto:bbliss1@...]

Sent: Thursday, September 16, 2004 6:09 PM

autism-awareness-action ;

Autism Treatment ; VerbalBehavior ;

Subject: [ ] Incontinence?

Hi - I wonder if any of you have had experience with this. My six year old

son has been toilet trained since he was 3 years old and night-time trained

since he was 4.5 years old. This summer he had a couple of toileting

accidents, but I wasn't concerned because they seemed to be isolated events.

Soon after school started in mid-August, he began having 1 or 2 accidents

each day at school. It was not happening at home and it was not happening

on weekends. I assumed this was a problem related to task avoidance or

maybe attention seeking.

Last week he had 7 accidents one day at school and had a few more that

evening. It got better over the weekend, but this week at school, it has

gotten worse. He had 8 accidents at school yesterday and a several more in

the evening. Today he again had 8 accidents, and during a 15 minute period

he urinated in the toilet 11 times, and has had two more accidents this

afternoon. His teacher has been keeping data on this, and there does not

seem to be a consistent antecedent, and I would agree with that.

I took a urine sample to the pediatrician this morning to rule out sugar in

his urine or a urinary tract infection, and the tests came back clean. I am

going to take him to the pediatrician tomorrow morning...but, any ideas???

THanks,

Geraldine