Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 Hi ! Geoff here. You wrote: > Here's one of the problems, I didn't tell him I had started > the program with Dr. Sentef again, though he was aware of > it the first time. (snip) I'm sitting around thinking I should > be keeping these guys on the same page Haven't read anything from you in some time, nice to see your notes again but sorry you're having troubles. Keeping your cooperating doctors on the same page is quite important, you can't count on them to remember your individual situation -- you have to bring it to their attention. > Secondly Dr. E asked me if we had ever done prednisone You might want to try the herbal compound Rheumax instead (www.healingyou.org.) Geoff soli Deo gloria www.HealingYou.org - Your nonprofit source for remedies and aids in fighting these diseases, information on weaning from drugs, and nutritional kits for repairing adrenal damage; 100% volunteer staffed. (Courtesy of Captain Cook's www.800-800-cruise.com) " He deprives of intelligence the chiefs of the earth's people... " " ...loosen the bonds of wickedness, undo the bands of the yoke, let the oppressed go free, satisfy the desire of the afflicted, and your light will rise in darkness and satisfy your desire in scorched places, and you will be called the restorer of the streets in which to dwell. " J1224 I58612 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 Hi , I know its hard but do email DR S about the Ivs and ask if its ok. I think I would be down right furious with that doc. I know I would not chance the reaction again but thats me. Why not call him up and tell him you were really surprised he did not listen to you and presribed the medication anyway. Tell him you are too uncomfortable with this.He is the only act in town? Hang in there and feel free to email me. Dr S is a blesing. He really understands. Don't be keeping this all to yourself, share it with him and get his opinion as well! I know I do that! Love Marge > Hi Everyone, > I'm . I hardly ever post, try to input occassionally but mostly listen and absorb the wisdom here. I have RA and have been on the protocol for 4 years now, and taking clindy iv's about every 12 weeks. (5days900mg (DOT) ) I went back to Dr. Sentef a few months ago and started back on flagyl and diflucan in addition to the mino and clindy stuff. > I have been going thru my " normal " cycle of getting down just brfore I need the iv's and unfortunately had to postpone them for 2 weeks, so when I started them this week I was in pretty rough shape. I've had a lot of pain, little sleep and saw my iv Dr. so we could consult about my pain medicine. He switched me from hydrocodone and ultram to pentazocine and told me I could double up on it til I got better, presumably next week or so. > Here's one of the problems, I didn't tell him I had started the program with Dr. Sentef again, though he was aware of it the first time. When I saw Dr. Sentef last year the first time I told him about doing the clindy iv's with Dr. E and he said if they helped me he didn't have a problem with that, but I didn't remind him about it when I restarted the program 2 months ago. I'm sitting around thinking I should be keeping these guys on the same page and wondering if I'm endangering myself by not having done so already. > Secondly Dr. E asked me if we had ever done prednisone and I said no, that was one of the drugs I was trying to avoid if possible. He slaps his head and says thats crazy, we could probably reduce your pain and therefore your meds if you did this. Then I remembered that last summer I had taken part of a round of a steroid, (couldn't remember the name naturally) and had an allergic reaction-terrible red rash, burned like fire- and told him so. He said he would be surprised if it was prednisone, that usually didn't cause a rash and told me he wanted me to try this and get some relief. I called the pharmacy when I got home and they looked it up for me and said it was a steroid in the same family and might cause the same reaction. I had asked him couldn't I just tough it out with the pain meds and he said no he wanted me to try it, he really thought I would be suprised how much it helped and that the side effects for a short dose were really almost nothing. > I'm sorry this is so long, I just re-read it and feel kinda stupid. My judgement seems have totally left me. I hardly ever get down but at the moment I'm tired of being sick and my brain feels like a mud puddle. If anyone can make sense of this I would appreciate some input. Love you all- and thanks in advance for even reading all this- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2003 Report Share Posted November 6, 2003 As a parent and researcher and a former pateint of Dr G. My opionion is that if you aren't getting the results you expect under Dr G you should consult Dr Mcandless and get her book. She is well respected and as qualified, passionate etc. Dr G. Isnt the only game in town, can be too restrictive and when these immune modulators come into existance, Dr G will not be the only one that has them (Dr G has been saying that these are just arounf the corner for over 5 years. This could take another 5 years). Dont let his Zealotness stop you from exploring other option from equally qualified physicians. Not to say you shouldn't be carefull as there are lot of mis-informed physicians, but Dr M comes highly recommended. Read her book. Again Dr G isnt God here. ( I personally got tired of paying phone consultation time just to listen to him primarily rave against most every thing and everyone out there). Don't feel guilty about exploring other options or other physicans who, through your deligent research, you feel can help. You dont need permission. you asked for my 2cents, hope this helps. R need advise i am the parent of a 5 year old . we have used dr g for 1.5 years and have seen some improvement. we have run the gamut of medications and now are on zoloft,famvir, kutapressin, gamma globulin,probiotics. I am well aware of dr g s stringent oppostion to mercury detox and virtualy any other supplament , even including omega 3. Recently we have been doing significant research and have looked into a highly respected consulting physician, dr mcandless. she is a dan doctor who i know dr g is into total disagreement with. however she does look at the immune system and will also look at many other areas that dr g doesnt ddem relevant. i am questioning how we can wait years until dr g comes up with his immune modulators. as a parent am i being fair to my child to not consider other things that may help, even though dr g disagrees? _________________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2003 Report Share Posted November 6, 2003 <<<Recently we have been doing significant research and have looked into a highly respected consulting physician, dr mcandless. she is a dan doctor who i know dr g is into total disagreement with. however she does look at the immune system and will also look at many other areas that dr g doesnt ddem relevant.<<< What does she look at that Dr. G doesn't think is relevant? I heard Dr. McCandless speak last year, and she did discuss chelation at length, and she talked about immune issues, but I don't recall her saying anything else that Dr. G would disagree with. Dr. Goldberg does support chelation IF the testing is done by a Children's Hospital and only if their tests indicate that treatment is necessary. Incidently, Dr. McCandless has recently revised her opinion (somewhat) about chelation. I found the following post from the list in my archives. It helps me sort things out when I start asking myself the same questions you are asking right now. The " chelation queen " referred to near the end of the text is actually Dr. McCandless: Studies have been posted here regarding how an activated immune system can disable some of the metabolic enzymes. The key to improving your child's levels (aside from a Children's eval of poisoning) is to get his immune system cooled down and not constantly overactive (diet, allergy reduction, treating illnesses aggressively), and as that happens his body's ability to cleanse itself will improve. He said once that starts happening, the body will cleanse itself far more efficiently than anything else you could do. So to treat high levels of toxins, you get the body healthy and avoid allergy triggers and food sensitivities. Antivirals and antifungals are helpful too, but even without them your child should be able to clean out. There may be more info in the files. I've seen Dr G discuss this at length when he was at chat every week, and he is adamant that chelation is absolutely misguided, very unnecessary except in valid extreme cases as determined by mainstream hospitals, and very harmful. Even 'the chelation queen' that put out the book widely discussing it has been quoted as deciding to chelate less often due to the numerous complications that arise - maybe someone else can repost that. Best, Donna From: Ray Palmer <palmerr@...> Date: Thu Nov 6, 2003 10:05am Subject: RE: need advise As a parent and researcher and a former pateint of Dr G. My opionion is that if you aren't getting the results you expect under Dr G you should consult Dr Mcandless and get her book. She is well respected and as qualified, passionate etc. Dr G. Isnt the only game in town, can be too restrictive and when these immune modulators come into existance, Dr G will not be the only one that has them (Dr G has been saying that these are just arounf the corner for over 5 years. This could take another 5 years). Dont let his Zealotness stop you from exploring other option from equally qualified physicians. Not to say you shouldn't be carefull as there are lot of mis-informed physicians, but Dr M comes highly recommended. Read her book. Again Dr G isnt God here. ( I personally got tired of paying phone consultation time just to listen to him primarily rave against most every thing and everyone out there). Don't feel guilty about exploring other options or other physicans who, through your deligent research, you feel can help. You dont need permission. you asked for my 2cents, hope this helps. R need advise i am the parent of a 5 year old . we have used dr g for 1.5 years and have seen some improvement. we have run the gamut of medications and now are on zoloft,famvir, kutapressin, gamma globulin,probiotics. I am well aware of dr g s stringent oppostion to mercury detox and virtualy any other supplament , even including omega 3. Recently we have been doing significant research and have looked into a highly respected consulting physician, dr mcandless. she is a dan doctor who i know dr g is into total disagreement with. however she does look at the immune system and will also look at many other areas that dr g doesnt ddem relevant. i am questioning how we can wait years until dr g comes up with his immune modulators. as a parent am i being fair to my child to not consider other things that may help, even though dr g disagrees? _________________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2003 Report Share Posted November 6, 2003 I think both protocols have value. I Have my son with a dan doctor and he is doing wonderfully. I cannot imagine where we would be now without dan doctor. Dr. Mcandless is highly respected and her book The Starving Brain is a great resource. Good luck whatever you decide. need advise i am the parent of a 5 year old . we have used dr g for 1.5 years and have seen some improvement. we have run the gamut of medications and now are on zoloft,famvir, kutapressin, gamma globulin,probiotics. I am well aware of dr g s stringent oppostion to mercury detox and virtualy any other supplament , even including omega 3. Recently we have been doing significant research and have looked into a highly respected consulting physician, dr mcandless. she is a dan doctor who i know dr g is into total disagreement with. however she does look at the immune system and will also look at many other areas that dr g doesnt ddem relevant. i am questioning how we can wait years until dr g comes up with his immune modulators. as a parent am i being fair to my child to not consider other things that may help, even though dr g disagrees? _________________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2003 Report Share Posted November 7, 2003 Only you can know what is best for your child and it sounds like you are thoroughly investigating all possibilities so you can make a wise decision as to the next step to take. I do have a great deal of respect for Dr. McCandless -- she is one of the rare doctors who is truly in it to help the children, tirelessly searches for answers and gives freely. She is actually one of the reasons we sought out Dr. G's help with viral issues after she patiently offered her ideas to me via e-mail about some rashes my son was having and some of his other symptoms. In answer to what she explores/addresses that Dr. G does not, in addition to toxic metals and chemicals load as previously mentioned, is bacterial overgrowth, overall digestive function, nutritional status, non-RX immune modulators, gluten-free diet and seems to have put more of her viral emphasis on the measles virus, though I think she does still address herpes and other viral loads. She also focuses very heavily on supplements with some RX meds and can tend to go very heavy very quickly on supplements, which may not be so good with kids with lots of allergies or highly reactive systems. Interestingly, she recently had a neurospect done on her grandchild (who is autistic) through Dr. Amen and is exploring the use of neurospects now in her treatment. She could look at other issues that may be making Dr. G's protocol less effective for your child but she does also have the tendency to jump into many different things and recommend a huge amount of supplements that could possibly overwhelm some kids' systems so if you do chose her route, I'd suggest going very very slowly with it. You might also want to read up on these other things and try to talk to Dr. G about them as a possibility for your child. He may bristle at many of them but if you can get him to clearly explain his thoughts, it may help you make your decision. Gaylen _________________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2003 Report Share Posted November 7, 2003 Ray~~ I'm interested in your opinions and how your child is doing sans Dr. G. Please e me privately. Rose RE: need advise Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2003 Report Share Posted November 7, 2003 > Only you can know what is best for your child and it sounds like you are > thoroughly investigating all possibilities so you can make a wise decision as to > the next step to take. > > I do have a great deal of respect for Dr. McCandless -- she is one of the > rare doctors who is truly in it to help the children, tirelessly searches for > answers and gives freely. She is actually one of the reasons we sought out Dr. > G's help with viral issues after she patiently offered her ideas to me via > e-mail about some rashes my son was having and some of his other symptoms. > > In answer to what she explores/addresses that Dr. G does not, in addition to > toxic metals and chemicals load as previously mentioned, is bacterial > overgrowth, overall digestive function, nutritional status, non-RX immune modulators, > gluten-free diet and seems to have put more of her viral emphasis on the > measles virus, though I think she does still address herpes and other viral loads. > She also focuses very heavily on supplements with some RX meds and can tend > to go very heavy very quickly on supplements, which may not be so good with > kids with lots of allergies or highly reactive systems. Interestingly, she > recently had a neurospect done on her grandchild (who is autistic) through Dr. Amen > and is exploring the use of neurospects now in her treatment. > > She could look at other issues that may be making Dr. G's protocol less > effective for your child but she does also have the tendency to jump into many > different things and recommend a huge amount of supplements that could possibly > overwhelm some kids' systems so if you do chose her route, I'd suggest going > very very slowly with it. You might also want to read up on these other things > and try to talk to Dr. G about them as a possibility for your child. He may > bristle at many of them but if you can get him to clearly explain his thoughts, > it may help you make your decision. > Gaylen > have you used dr mcandless? what makes you say that she pushes the supplaments too fast? > > _________________________________________________ > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2003 Report Share Posted November 7, 2003 In a message dated 11/7/03 3:23:01 PM Central Standard Time, jeffb@... writes: > > have you used dr mcandless? what makes you say that she pushes the > supplaments too fast? > I have not worked with her directly. I know of several people who are seeing a doctor who is being trained by and getting input from Dr. McCandless. Watching their protocols and after hearing her speak at a recent medical conference, quick influx of multiple supplements seemed to be a big part of her treatments. I was surprised by the number of supplements she generically recommended that parents in the group immediately get their kids on. From the limited interactions I've had with her though, I'd think she'd be willing to work with the parents on doing it slowly and selectively rather than insisting that the children immediately be put on all the supplements. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 Ray, I am also interested in speaking with you if you find the time, offlist. Thanks, Becky RE: need advise > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 Hi Ray, Count me in too--I'm interested in some of the points you've made. Please contact me off-list whenever you get the chance. Heidi RE: need advise > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 I have a 8 year old son who is non verbal with autism we have had some behavioral issues with him his dr recommended a complete behavioral evaluation done at Kennedy Krieger or somewhere like that we live in Gaithersburg land I was hoping to find somewhere closer & to get opinions from others who have dealt with Kennedy Krieger lately. about 3 years ago we lived in baltimore & attempted to get help from them & had a bad experience thanks Valarie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Without a full evaluation, it is hard to tell whether a child is behind or not. I just had an evaluation by early intervention for my ten month old because of his gross motor skills, and they said he's already behind on communication. I didn't pick it up, even though I have another child with speech issues. Call your region's Early Intervention progam and request a full evaluation. in NJ > > my cousin who is going to be 2 years old has not spoken yet should i > be concerned > > he only babbles like baby talk do you think i should be concerned > since his sister is four and talks and she started talking at 2-3 > years old and did not stop talking and he seemed kinda spacee out and > does not pay no attention to anyone but mom but when she leaves a > room he starts crying like a an infant > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 That sounds like my daughter at that age (she is just over 3 years old now). I'll tell you what I was told by a speech therapist then " Don't worry but don't wait " . Find out if you have an early intervention program in your state. In Michigan it is called Early On. This is covered by the school districts as it falls under part C of IDEA and they will do a free evaluation, if he qualifies then he can get some free therapy, although what we were offered wasn't much it was definitely a door to other services and we had a good idea of where she was developmentally from the evaluation that they did. Now she is three and still learning to talk. She has some words that she can say spontaneously and she is repeating more. Most of the time she relies on a picture book (like PECS) to communicate. She is diagnosed with Apraxia and professionals are questioning Autism, but she does not have that diagnosis. Hope this helps. Pam > > my cousin who is going to be 2 years old has not spoken yet should i > be concerned > > he only babbles like baby talk do you think i should be concerned > since his sister is four and talks and she started talking at 2-3 > years old and did not stop talking and he seemed kinda spacee out and > does not pay no attention to anyone but mom but when she leaves a > room he starts crying like a an infant > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.