Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 I decided to wait to see the gastroenterologist until after my enterolab results came back for gluten intolerance. I had the blood test panel done which was negative. The results came back from enterolab last week. I have an intolerance for gluten and also dairy. So I’ll be doing a gluten free/dairy free/soy free diet. Hopefully the GERD will clear up. Kim in North Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi Kim, Good luck with the diet/lifestyle change. It's so hard to change or cut things out of your diet. I am hoping that the change will improve your GERD. Were you one of the ones that had a hiatal hernia? I can't remember. I am waiting until tax return time to order the Enterolab tests for me and DH. - To: Texas_Thyroid_Groups From: CAdata4u@...Date: Mon, 1 Dec 2008 11:40:05 -0600Subject: Update on GERD I decided to wait to see the gastroenterologist until after my enterolab results came back for gluten intolerance. I had the blood test panel done which was negative. The results came back from enterolab last week. I have an intolerance for gluten and also dairy. So I’ll be doing a gluten free/dairy free/soy free diet. Hopefully the GERD will clear up. Kim in North Texas Proud to be a PC? Show the world. Download the “I’m a PC” Messenger themepack now. Download now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 I don’t think I have a hiatal hernia just really bad GERD. I’m less than thrilled about the news. I’m trying to focus on the positive aspects but talk about a double whammie with BOTH gluten and dairy. I almost think having the surgery would have been easier but of course if celiac is really my problem it would have only been treating a symptom. Just like taking all the prilosec. I just hope I notice a big difference in how I feel so it keeps me motivated to stay on it, although permanent damage to my health SHOULD be motivation enough. I had a terrible time staying on the anti-Candida diet for more then a few months. I’m also happy that we probably found out why my daughter has so many tummy problems. Her lab kit is on the way. So at least I’ll have a partner in the diet. My husband is allergic to dairy too (not just lactose intolerant) so he can partially relate. Thanks for the encouragement. Kim From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Caldwell Sent: Monday, December 01, 2008 1:11 PM To: Texas Thyroid Yahoo Group Subject: RE: Update on GERD Hi Kim, Good luck with the diet/lifestyle change. It's so hard to change or cut things out of your diet. I am hoping that the change will improve your GERD. Were you one of the ones that had a hiatal hernia? I can't remember. I am waiting until tax return time to order the Enterolab tests for me and DH. - ,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 Does this mean that you have Celiac's? Yvette > > I decided to wait to see the gastroenterologist until after my enterolab > results came back for gluten intolerance. I had the blood test panel done > which was negative. The results came back from enterolab last week. I have > an intolerance for gluten and also dairy. So I'll be doing a gluten > free/dairy free/soy free diet. Hopefully the GERD will clear up. > > > > Kim in North Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 Good Luck! Yvette > > Good question. I've googled it and am still confused myself. Here is an > answer from: > http://surefoodsliving.com/2007/05/26/ask-the-doc-difference- between-celiac- > disease-gluten-intolerance/ > > > > Q. What is the difference between celiac disease and gluten intolerance? Is > one more serious than the other? > > A. The strict definition of celiac disease - positive antibodies to gliadin, > intestinal endomysium, and tissue transglutaminase, together with the > presence of HLA-DQ2 or HLA-DQ8 genes and an intestinal biopsy that shows at > least 20-25 CD3 cells per 100 epithelial cells - will account for about > 75-80% of all those sensitive to gluten. It must be noted, however, that > there are injurious grain proteins that cause damage and produce symptoms by > mechanisms that are as yet obscure. As well, many other gene markers for > grain-mediated injury have been described, thus placing many into the > category of gluten intolerant, but not truly having celiac disease. We do > know the consequences of untreated celiac disease - an increased risk for > lymphomas and other solid tumors, along with a host of associated > auto-immune, neurological and endocrine diseases. It is unclear whether > other people who are not celiacs but clearly cannot tolerate gluten are at > risk for any other associated diseases. If you test negative for the strict > criteria for celiac disease, but still cannot tolerate gluten, there is no > harm in keeping to a gluten-free diet. > Health and happiness, > Dr. Aron <http://www.surefoodsliving.com/ask-the-doc/> > > > All I know is that the test results state that I must permanently give up > gluten. My blood tests were negative. I do have a blistery rash on my right > foot which has been present for 3-4 months and eczema on my shins that has > been present for about 5 years. I don't know whether this is the skin rash > (dermatitis herpitiformis) associated with celiac or not. I don't know how > it is confirmed other then it going away once I stop eating gluten. > > > > I knew gluten can be in almost anything but can you believe they are in > band-aids? > > > > Tuesday is the big day! Monday I am having a tea with my mother and > daughter (one of our Christmas traditions). I'll be looking for a new > tradition for next year. Maybe I'll host a gluten free tea. > > > > I'll post when I get back the results on my daughter's test. It will > probably be another week. > > > > Kim in No Texas > > > > > > _____ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 Kim That's a good explanation that you pulled up. While you don't have the main celiac genes (DQ2 and DQ8), the ones you have also have a predisposition for an immune reaction to gluten. The DQ7 that I'm recalling you also have (I have that one too) is moleculary very similar to DQ8 - they're both subtypes of DQ3, so from a biological perspective, it's not that difficult to see that both genes can result in similar immune reactions. The gluten acts like a key, if you will, that unlocks the reaction in your body. Also, that DQ7 often goes along with a DR4, which is associated with autoimmune arthritis (and it's one of the ones that gets most zapped by any kind of toxin). There's a book on autoimmune endocrine disorders that discusses the genes and DQ7 goes along with a higher incidence of post-partum thyroid disease: " Endocrine Autoimmunity and Associated Conditions " By P. Weetman (note: the book is $243.00, but you can preview on amazon And, here's the abstract of an article on DQ7 and Autoimmune thyroid disease: http://www.informaworld.com/smpp/content~content=a786640084~db=all In my experience it was likely pregnancy/childbirth that put me well into the hypo range in lab tests and based on symptoms, I'd likely been hypo for at least 15 years. Also, you can call the nurse at enterolab and she can answer lots of questions. In looking up the above info on DQ7, a general search in pubmed of HLA DQ and thyroid shows that the DQ8 is the gene for which there is the largest potential for thyroid cancer - not something I want to read given that's the gene my younger son (with the really funky nodules and vascular thyroid) has - I think I'll have to be very aggressive about monitoring his thyroid and may need a second opinion. Does anyone know a DFW area doc that would be objective in evaluating my son? BTW, I've always had in mind to have a gluten free tea. Scones and a real high tea are something I miss the most on a GF diet. One of my most favorite things to do has been to have tea whenever I travel to Europe and to big cities in the U.S. with fancy hotels - the last time I had tea was at the Drake hotel in Chicago. My favorite was the Savoy in London (on Sunday - they have a small orchestra). B. > > Good question. I've googled it and am still confused myself. Here is an > answer from: > http://surefoodsliving.com/2007/05/26/ask-the-doc-difference- between-celiac- > disease-gluten-intolerance/ > > > > Q. What is the difference between celiac disease and gluten intolerance? Is > one more serious than the other? > > A. The strict definition of celiac disease - positive antibodies to gliadin, > intestinal endomysium, and tissue transglutaminase, together with the > presence of HLA-DQ2 or HLA-DQ8 genes and an intestinal biopsy that shows at > least 20-25 CD3 cells per 100 epithelial cells - will account for about > 75-80% of all those sensitive to gluten. It must be noted, however, that > there are injurious grain proteins that cause damage and produce symptoms by > mechanisms that are as yet obscure. As well, many other gene markers for > grain-mediated injury have been described, thus placing many into the > category of gluten intolerant, but not truly having celiac disease. We do > know the consequences of untreated celiac disease - an increased risk for > lymphomas and other solid tumors, along with a host of associated > auto-immune, neurological and endocrine diseases. It is unclear whether > other people who are not celiacs but clearly cannot tolerate gluten are at > risk for any other associated diseases. If you test negative for the strict > criteria for celiac disease, but still cannot tolerate gluten, there is no > harm in keeping to a gluten-free diet. > Health and happiness, > Dr. Aron <http://www.surefoodsliving.com/ask-the-doc/> > > > All I know is that the test results state that I must permanently give up > gluten. My blood tests were negative. I do have a blistery rash on my right > foot which has been present for 3-4 months and eczema on my shins that has > been present for about 5 years. I don't know whether this is the skin rash > (dermatitis herpitiformis) associated with celiac or not. I don't know how > it is confirmed other then it going away once I stop eating gluten. > > > > I knew gluten can be in almost anything but can you believe they are in > band-aids? > > > > Tuesday is the big day! Monday I am having a tea with my mother and > daughter (one of our Christmas traditions). I'll be looking for a new > tradition for next year. Maybe I'll host a gluten free tea. > > > > I'll post when I get back the results on my daughter's test. It will > probably be another week. > > > > Kim in No Texas > > > > > > _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 Tea has gluten? I like tea alot and I don't want to give it up if I have celiac's. how reliable is enterolab? I going to order the gluten sensitivity test. Yvette > > Kim > > That's a good explanation that you pulled up. While you don't have > the main celiac genes (DQ2 and DQ8), the ones you have also have a > predisposition for an immune reaction to gluten. The DQ7 that I'm > recalling you also have (I have that one too) is moleculary very > similar to DQ8 - they're both subtypes of DQ3, so from a biological > perspective, it's not that difficult to see that both genes can > result in similar immune reactions. The gluten acts like a key, if > you will, that unlocks the reaction in your body. Also, that DQ7 > often goes along with a DR4, which is associated with autoimmune > arthritis (and it's one of the ones that gets most zapped by any > kind of toxin). > > There's a book on autoimmune endocrine disorders that discusses the > genes and DQ7 goes along with a higher incidence of post-partum > thyroid disease: > " Endocrine Autoimmunity and Associated Conditions " > By P. Weetman (note: the book is $243.00, but you can > preview on amazon > > And, here's the abstract of an article on DQ7 and Autoimmune thyroid > disease: > http://www.informaworld.com/smpp/content~content=a786640084~db=all > > In my experience it was likely pregnancy/childbirth that put me well > into the hypo range in lab tests and based on symptoms, I'd likely > been hypo for at least 15 years. > > Also, you can call the nurse at enterolab and she can answer lots of > questions. > > In looking up the above info on DQ7, a general search in pubmed of > HLA DQ and thyroid shows that the DQ8 is the gene for which there is > the largest potential for thyroid cancer - not something I want to > read given that's the gene my younger son (with the really funky > nodules and vascular thyroid) has - I think I'll have to be very > aggressive about monitoring his thyroid and may need a second > opinion. Does anyone know a DFW area doc that would be objective in > evaluating my son? > > BTW, I've always had in mind to have a gluten free tea. Scones and a > real high tea are something I miss the most on a GF diet. One of my > most favorite things to do has been to have tea whenever I travel to > Europe and to big cities in the U.S. with fancy hotels - the last > time I had tea was at the Drake hotel in Chicago. My favorite was > the Savoy in London (on Sunday - they have a small orchestra). > > B. > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 Yvette, Most teas are gluten free. Although, some of the flavored ones are not. The reason I gave up going out for a nice tea is because all the accompaniments contain gluten - finger sandwiches, scones and nice pastries. So, that's the stuff that Kim and I would enjoy if they were gluten free, although these days I don't deal so well with all the carbs. But, I might just splurge one day. The enterolab test is very accurate since it catches both the gluten intolerance and celiac. It's just not specific to celiac disease. It's 100% accurate for biopsy positive celiacs - it's just that it will also catch those that may not have reached the end stage or don't have the immune reaction in the gut - it can be in the skin, brain, etc. B. > > > > Kim > > > > That's a good explanation that you pulled up. While you don't have > > the main celiac genes (DQ2 and DQ8), the ones you have also have a > > predisposition for an immune reaction to gluten. The DQ7 that I'm > > recalling you also have (I have that one too) is moleculary very > > similar to DQ8 - they're both subtypes of DQ3, so from a biological > > perspective, it's not that difficult to see that both genes can > > result in similar immune reactions. The gluten acts like a key, if > > you will, that unlocks the reaction in your body. Also, that DQ7 > > often goes along with a DR4, which is associated with autoimmune > > arthritis (and it's one of the ones that gets most zapped by any > > kind of toxin). > > > > There's a book on autoimmune endocrine disorders that discusses the > > genes and DQ7 goes along with a higher incidence of post-partum > > thyroid disease: > > " Endocrine Autoimmunity and Associated Conditions " > > By P. Weetman (note: the book is $243.00, but you can > > preview on amazon > > > > And, here's the abstract of an article on DQ7 and Autoimmune > thyroid > > disease: > > http://www.informaworld.com/smpp/content~content=a786640084~db=all > > > > In my experience it was likely pregnancy/childbirth that put me > well > > into the hypo range in lab tests and based on symptoms, I'd likely > > been hypo for at least 15 years. > > > > Also, you can call the nurse at enterolab and she can answer lots > of > > questions. > > > > In looking up the above info on DQ7, a general search in pubmed of > > HLA DQ and thyroid shows that the DQ8 is the gene for which there > is > > the largest potential for thyroid cancer - not something I want to > > read given that's the gene my younger son (with the really funky > > nodules and vascular thyroid) has - I think I'll have to be very > > aggressive about monitoring his thyroid and may need a second > > opinion. Does anyone know a DFW area doc that would be objective in > > evaluating my son? > > > > BTW, I've always had in mind to have a gluten free tea. Scones and > a > > real high tea are something I miss the most on a GF diet. One of my > > most favorite things to do has been to have tea whenever I travel > to > > Europe and to big cities in the U.S. with fancy hotels - the last > > time I had tea was at the Drake hotel in Chicago. My favorite was > > the Savoy in London (on Sunday - they have a small orchestra). > > > > B. > > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 I just ordered the test yesterday for enterolab and I'm already nervous about the outcome. I've been wheat free about a week and already I have less symptoms like less bloating. Yvette > > Yvette, > > Most teas are gluten free. Although, some of the flavored ones are > not. > > The reason I gave up going out for a nice tea is because all the > accompaniments contain gluten - finger sandwiches, scones and nice > pastries. So, that's the stuff that Kim and I would enjoy if they > were gluten free, although these days I don't deal so well with all > the carbs. But, I might just splurge one day. > > The enterolab test is very accurate since it catches both the gluten > intolerance and celiac. It's just not specific to celiac disease. > It's 100% accurate for biopsy positive celiacs - it's just that it > will also catch those that may not have reached the end stage or > don't have the immune reaction in the gut - it can be in the skin, > brain, etc. > > B. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 , Correct me if I’m wrong but it is best not to alter the diet until after you provide your specimen to Enterolab. Kim in No Texas From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of yvettecvzs Sent: Wednesday, December 17, 2008 11:53 AM To: Texas_Thyroid_Groups Subject: Re: Update on GERD I just ordered the test yesterday for enterolab and I'm already nervous about the outcome. I've been wheat free about a week and already I have less symptoms like less bloating. Yvette > > Yvette, > > Most teas are gluten free. Although, some of the flavored ones are > not. > > The reason I gave up going out for a nice tea is because all the > accompaniments contain gluten - finger sandwiches, scones and nice > pastries. So, that's the stuff that Kim and I would enjoy if they > were gluten free, although these days I don't deal so well with all > the carbs. But, I might just splurge one day. > > The enterolab test is very accurate since it catches both the gluten > intolerance and celiac. It's just not specific to celiac disease. > It's 100% accurate for biopsy positive celiacs - it's just that it > will also catch those that may not have reached the end stage or > don't have the immune reaction in the gut - it can be in the skin, > brain, etc. > > B. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Kim, Yes, they recommend that you remain on gluten for the most accurate results. I had been off gluten for a couple months by the time I did my test and tried to do a gluten challenge. That was a bad idea as I had never felt sicker in my life. I did the test, but really didn't care about the results other than the gene test, because I KNEW gluten made me sick. I only had high normal antibodies, but then again, it's rare that I have above high normal antibodies to anything, so for me this was a positive result. I did ask Dr. Fine about it and he says they have the bar quite high to ensure the accuracy, but he believes that anyone that's even close to the upper end of the range is likely reacting to gluten. So, Yvette, just beware that if you've been off gluten you may get a false negative, so if you're not doing the gene test as well, you might have mixed views about sticking to the diet. However, if you are feeling better, then certainly I wouldn't tell you to consume gluten (nor would anyone at enterolab - but you can call them and double check). It is highly variable as to how long it can take for the antibodies to get back to normal - neither of my two sons were in the normal range even after 2 yrs on the diet, but we know that did inadvertently consume gluten a couple times. For them, that was enough to keep the antibodies high. . > > > > Yvette, > > > > Most teas are gluten free. Although, some of the flavored ones are > > not. > > > > The reason I gave up going out for a nice tea is because all the > > accompaniments contain gluten - finger sandwiches, scones and nice > > pastries. So, that's the stuff that Kim and I would enjoy if they > > were gluten free, although these days I don't deal so well with all > > the carbs. But, I might just splurge one day. > > > > The enterolab test is very accurate since it catches both the > gluten > > intolerance and celiac. It's just not specific to celiac disease. > > It's 100% accurate for biopsy positive celiacs - it's just that it > > will also catch those that may not have reached the end stage or > > don't have the immune reaction in the gut - it can be in the skin, > > brain, etc. > > > > B. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Well now I should admit that I had a cookie this morning. I couldn't help myself, they were homemade and chocolate chip. Yvette > > Kim, > > Yes, they recommend that you remain on gluten for the most accurate > results. I had been off gluten for a couple months by the time I did > my test and tried to do a gluten challenge. That was a bad idea as I > had never felt sicker in my life. I did the test, but really didn't > care about the results other than the gene test, because I KNEW > gluten made me sick. I only had high normal antibodies, but then > again, it's rare that I have above high normal antibodies to > anything, so for me this was a positive result. I did ask Dr. Fine > about it and he says they have the bar quite high to ensure the > accuracy, but he believes that anyone that's even close to the upper > end of the range is likely reacting to gluten. > > So, Yvette, just beware that if you've been off gluten you may get a > false negative, so if you're not doing the gene test as well, you > might have mixed views about sticking to the diet. However, if you > are feeling better, then certainly I wouldn't tell you to consume > gluten (nor would anyone at enterolab - but you can call them and > double check). It is highly variable as to how long it can take for > the antibodies to get back to normal - neither of my two sons were > in the normal range even after 2 yrs on the diet, but we know that > did inadvertently consume gluten a couple times. For them, that was > enough to keep the antibodies high. > > . > > > > - > > > > > > > > _____ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Yes, the holidays are tough on this diet - so likely a really good time to run the test - they typically ship quickly and you'll usually get results in just a couple weeks, although, they will likely be closed after the holidays. My whole family will retest after the holidays. B. > > > > Kim, > > > > Yes, they recommend that you remain on gluten for the most accurate > > results. I had been off gluten for a couple months by the time I > did > > my test and tried to do a gluten challenge. That was a bad idea as > I > > had never felt sicker in my life. I did the test, but really didn't > > care about the results other than the gene test, because I KNEW > > gluten made me sick. I only had high normal antibodies, but then > > again, it's rare that I have above high normal antibodies to > > anything, so for me this was a positive result. I did ask Dr. Fine > > about it and he says they have the bar quite high to ensure the > > accuracy, but he believes that anyone that's even close to the > upper > > end of the range is likely reacting to gluten. > > > > So, Yvette, just beware that if you've been off gluten you may get > a > > false negative, so if you're not doing the gene test as well, you > > might have mixed views about sticking to the diet. However, if you > > are feeling better, then certainly I wouldn't tell you to consume > > gluten (nor would anyone at enterolab - but you can call them and > > double check). It is highly variable as to how long it can take > for > > the antibodies to get back to normal - neither of my two sons were > > in the normal range even after 2 yrs on the diet, but we know that > > did inadvertently consume gluten a couple times. For them, that was > > enough to keep the antibodies high. > > > > . > > > > > > > > - > > > > > > > > > > > > _____ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Kim, best of luck with the new eating plan. Food allergies can be a bit overwhelming at first. I am allergic to over 20 foods, so I know what you are going through. Do some research online, and go check out some gluten free products. They carry many gluten free products in the grocery stores. I know that you will start to feel much better when all these things are out of your diet. applegirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 I am shocked how much better I feel just eliminating the gluten. It was almost the next day. I can’t explain it except for feeling lighter. I guess compared to how I feel when I eat a big heavy meal. That heavy feeling is gone. I’m also not feeling so groggy in the morning. Still haven’t given up the dairy/casein. My biggest problem is my coffee…especially with it being so cold out the past few days. Almond milk just does not do it. I’m trying a couple of other GFCFSF products. I just might have to just give it up and start drinking tea to warm up. Kim in Texas From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of applegirl016 Sent: Friday, December 19, 2008 11:02 AM To: Texas_Thyroid_Groups Subject: Re: Update on GERD Kim, best of luck with the new eating plan. Food allergies can be a bit overwhelming at first. I am allergic to over 20 foods, so I know what you are going through. Do some research online, and go check out some gluten free products. They carry many gluten free products in the grocery stores. I know that you will start to feel much better when all these things are out of your diet. applegirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 I make hot flavored tea a lot and put a little honey in it. It has replaced hot chocolate for me. You can also get the stevie sweetener...it comes in a little bottle with dropper. They have several different flavors. I like to put the vanilla in my tea. I am shocked how much better I feel just eliminating the gluten. It was almost the next day. I can't explain it except for feeling lighter. I guess compared to how I feel when I eat a big heavy meal. That heavy feeling is gone. I'm also not feeling so groggy in the morning. Still haven't given up the dairy/casein. My biggest problem is my coffee…especially with it being so cold out the past few days. Almond milk just does not do it. I'm trying a couple of other GFCFSF products. I just might have to just give it up and start drinking tea to warm up. Kim in Texas From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of applegirl016 Sent: Friday, December 19, 2008 11:02 AMTo: Texas_Thyroid_Groups Subject: Re: Update on GERD Kim, best of luck with the new eating plan. Food allergies can be a bit overwhelming at first. I am allergic to over 20 foods, so I know what you are going through. Do some research online, and go check out some gluten free products. They carry many gluten free products in the grocery stores. I know that you will start to feel much better when all these things are out of your diet.applegirl -- Cauleywww.shaneandlauracauley.blogspot.com Home Cell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2008 Report Share Posted December 22, 2008 I am glad to hear that you felt better so quickly. It took me several months, and I can really tell when I backslide. And yes, the dairy can be really hard to give up. I was able to switch to goat milk, but some people can't tolerate it either. I miss my coffee as well! Sometimes I just bite the bullet and have some, and hope I don't feel bad later! Tea is a good alternative. applegirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2008 Report Share Posted December 22, 2008 I have pretty much have given up on the coffee for now. I am trying different teas. I found a cute travel tea mug at Target. It has a strainer in it for loose tea. I have to go find another one for my daughter. I’ll try reintroducing coffee with some of the dairy/soy free creamers in a few weeks. Maybe I’ll have forgotten a little bit how good the real dairy is in it. I think the reason I felt some better so quickly is that I was eating so much of dairy/gluten getting ready to abstain that I was literally making myself sick on it. I have heard that once you go gluten free, the reaction can be quite strong if it is reintroduced. My daughter is waiting for her test results. She hopes that she does not have to give up both. Although I cannot imagine having to give up 20 different things due to allergies like a previous poster. Kim From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of applegirl016 Sent: Monday, December 22, 2008 10:47 AM To: Texas_Thyroid_Groups Subject: Re: Update on GERD I am glad to hear that you felt better so quickly. It took me several months, and I can really tell when I backslide. And yes, the dairy can be really hard to give up. I was able to switch to goat milk, but some people can't tolerate it either. I miss my coffee as well! Sometimes I just bite the bullet and have some, and hope I don't feel bad later! Tea is a good alternative. applegirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2008 Report Share Posted December 22, 2008 KimIf you will remember, when I was diagnosed ten years ago, I was allergic to 65 of the 75 things I ate. I went on a 100% elimination diet: no wheat, no gluten, only organic, no hormones, no antibiotics, six allergy shots a week and food drops. All of this for one year. This was a MAJOR piece of my wellness. Equal to the vitamins, minerals and hormones!Sharon Sent: Monday, December 22, 2008 11:18 AMTo: Texas_Thyroid_Groups Subject: RE: Re: Update on GERDI have pretty much have given up on the coffee for now. I am trying different teas. I found a cute travel tea mug at Target. It has a strainer in it for loose tea. I have to go find another one for my daughter. I’ll try reintroducing coffee with some of the dairy/soy free creamers in a few weeks. Maybe I’ll have forgotten a little bit how good the real dairy is in it. I think the reason I felt some better so quickly is that I was eating so much of dairy/gluten getting ready to abstain that I was literally making myself sick on it. I have heard that once you go gluten free, the reaction can be quite strong if it is reintroduced. My daughter is waiting for her test results. She hopes that she does not have to give up both. Although I cannot imagine having to give up 20 different things due to allergies like a previous poster. Kim From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of applegirl016 Sent: Monday, December 22, 2008 10:47 AM To: Texas_Thyroid_Groups Subject: Re: Update on GERD I am glad to hear that you felt better so quickly It took me several months, and I can really tell when I backslide. And yes, the dairy can be really hard to give up. I was able to switch to goat milk, but some people can't tolerate it either. I miss my coffee as well! Sometimes I just bite the bullet and have some, and hope I don't feel bad later! Tea is a good alternative. applegirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2008 Report Share Posted December 22, 2008 Good luck finding a non-dairy creamer that doesn't contain soy... and if you do find one, let all of us know quick! ;-) Marti > > > I’ll try reintroducing coffee with some of the dairy/soy free creamers > in a few weeks. Maybe I’ll have forgotten a little bit how good the > real dairy is in it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2008 Report Share Posted December 22, 2008 I have found a couple brands of non-dairy milk powders - those are a handy substitute for creamer. Vance's dari-free (vanilla flavored) is potato based and there is a rice based on I found at Sprouts. The Vance's container has the amounts to make a creamer or just use dry. It contains no allergens (unless you're like me and don't do well with sugar or potatoes Also, many products only contain soy lecithin, which generally is okay due to both the amounts and it only contains miniscule amounts of soy protein/isoflavans. B. > > > > > > > I'll try reintroducing coffee with some of the dairy/soy free creamers > > in a few weeks. Maybe I'll have forgotten a little bit how good the > > real dairy is in it. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2008 Report Share Posted December 23, 2008 I had forgotten that you had all of those allergies. What type of test did you have done to find out what the allergies were? I actually was feeling really good EXCEPT the GERD and the skin rashes. My eczema is definitely less itchy. But I think my baseline for “feeling well” is not normal since I had been functioning at such a low level for so long. Kim in No Texas From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sharon Sent: Monday, December 22, 2008 2:55 PM To: Texas_Thyroid_Groups Subject: RE: Re: Update on GERD Kim If you will remember, when I was diagnosed ten years ago, I was allergic to 65 of the 75 things I ate. I went on a 100% elimination diet: no wheat, no gluten, only organic, no hormones, no antibiotics, six allergy shots a week and food drops. All of this for one year. This was a MAJOR piece of my wellness. Equal to the vitamins, minerals and hormones! Sharon From: Kim in North Texas <CAdata4ugmail> Sent: Monday, December 22, 2008 11:18 AM To: Texas_Thyroid_Groups Subject: RE: Re: Update on GERD I have pretty much have given up on the coffee for now. I am trying different teas. I found a cute travel tea mug at Target. It has a strainer in it for loose tea. I have to go find another one for my daughter. I’ll try reintroducing coffee with some of the dairy/soy free creamers in a few weeks. Maybe I’ll have forgotten a little bit how good the real dairy is in it. I think the reason I felt some better so quickly is that I was eating so much of dairy/gluten getting ready to abstain that I was literally making myself sick on it. I have heard that once you go gluten free, the reaction can be quite strong if it is reintroduced. My daughter is waiting for her test results. She hopes that she does not have to give up both. Although I cannot imagine having to give up 20 different things due to allergies like a previous poster. Kim From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of applegirl016 Sent: Monday, December 22, 2008 10:47 AM To: Texas_Thyroid_Groups Subject: Re: Update on GERD I am glad to hear that you felt better so quickly It took me several months, and I can really tell when I backslide. And yes, the dairy can be really hard to give up. I was able to switch to goat milk, but some people can't tolerate it either. I miss my coffee as well! Sometimes I just bite the bullet and have some, and hope I don't feel bad later! Tea is a good alternative. applegirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2008 Report Share Posted December 23, 2008 Nothing esoteric or out of the ordinary! Skin testing and blood work with our favorite ENT/allergist! 99% of our pts see him. I also had TERRIBLE reflux at that time. All gone now! Rarely have any now.Sharon Sent: Monday, December 22, 2008 08:22 PMTo: Texas_Thyroid_Groups Subject: RE: Re: Update on GERDI had forgotten that you had all of those allergies. What type of test did you have done to find out what the allergies were? I actually was feeling really good EXCEPT the GERD and the skin rashes. My eczema is definitely less itchy. But I think my baseline for “feeling well” is not normal since I had been functioning at such a low level for so long. Kim in No Texas From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sharon Sent: Monday, December 22, 2008 2:55 PM To: Texas_Thyroid_Groups Subject: RE: Re: Update on GERD Kim If you will remember, when I was diagnosed ten years ago, I was allergic to 65 of the 75 things I ate. I went on a 100% elimination diet: no wheat, no gluten, only organic, no hormones, no antibiotics, six allergy shots a week and food drops. All of this for one year. This was a MAJOR piece of my wellness. Equal to the vitamins, minerals and hormones! Sharon From: Kim in North Texas <CAdata4ugmail>Sent: Monday, December 22, 2008 11:18 AMTo: Texas_Thyroid_Groups Subject: RE: Re: Update on GERDI have pretty much have given up on the coffee for now. I am trying different teas. I found a cute travel tea mug at Target. It has a strainer in it for loose tea. I have to go find another one for my daughter. I’ll try reintroducing coffee with some of the dairy/soy free creamers in a few weeks. Maybe I’ll have forgotten a little bit how good the real dairy is in it. I think the reason I felt some better so quickly is that I was eating so much of dairy/gluten getting ready to abstain that I was literally making myself sick on it. I have heard that once you go gluten free, the reaction can be quite strong if it is reintroduced. My daughter is waiting for her test results. She hopes that she does not have to give up both. Although I cannot imagine having to give up 20 different things due to allergies like a previous poster. Kim From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of applegirl016 Sent: Monday, December 22, 2008 10:47 AM To: Texas_Thyroid_Groups Subject: Re: Update on GERD I am glad to hear that you felt better so quickly It took me several months, and I can really tell when I backslide. And yes, the dairy can be really hard to give up. I was able to switch to goat milk, but some people can't tolerate it either. I miss my coffee as well! Sometimes I just bite the bullet and have some, and hope I don't feel bad later! Tea is a good alternative. applegirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2008 Report Share Posted December 23, 2008 I thought my 20 or so allergies were really bad till I heard about Sharon. Yikes! I know that I struggled with figuring out what to eat for the first 2 weeks, but it became easier. Of course, I do still " fall off the wagon " and eat things I am allergic to once in a while. However, it always makes me feel so bad that I don't do it very often. applegirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2008 Report Share Posted December 23, 2008 One thing I find with food allergies is that they go up and down with airborne allergies - for example when the ragweed was so bad in the fall I had to stay away from anything in the gourd family including pumpkin seeds. I find in general that I have to stay away from whole families, including nightshades (causes arthritic reactions). I also have problems with latex (which includes bananas and avocados). And, I unfortunately, remain allergic to walnuts, pecans and many seeds - these cause oral reactions. And, I can't eat anything that is either in the fungi family (mushrooms) or that might have high levels of fungal contamination - peanuts, some legumes and most corn products. I also am allergic to eggs and dairy. So, no - 20 allergens aren't so bad I had an IgG blood tests done which measured longer term allergic reactions - those are the ones that are more common actually and can be the hardest to track down with an elimination diet, unless you're really obsessive about it - i.e., going off everything until you feel better and then adding only one new food every 4 days, since delayed reactions can take as long as 72 hours to show up. For IgE tests (like the skin test or blood tests for IgE antibodies, which is what most conventional allergy doctors use), the only thing I was allergic to was household dust/mites. Also, there's the concept that you can handle x amount of a variety of allergens and it's only when you go over that threshold that you will have noticeable reactions - that's the case for me with the seasonal allergies - the problem I had was that with the amount of ragweed, I was over my tolerance level daily. You can also get tested using energy techniques - such as NAET, ART, muscle testing, etc. These have been most useful for me in determining whether my supplements were causing me problems, as well as Rx medications. I've had NAET treatments for foods, but those just don't seem to have taken - at least for the things that I've had the strongest reactions to. Although, I do plan on repeating some of them as my immune system may have healed. And, avoiding things like eggs (in baked goods) is most difficult during the holidays. Fortunately, I seem to tolerate small amounts of egg in baked products, but can't close to eating a soft boiled (my favorite) or fried egg. Supposedly, cooking does neutralize some of the proteins. And, for me the most frustrating allergy is the one to pork, so I can't take Armour - that one is on the top of my list when I get back to the accupuncturist in Jan. And, of course, allergies are a sign of adrenal issues and while mine have become significantly less, daily stress makes it very difficult to totally optimize. For me, I don't see that getting too much better until I get my youngest son out of the house! And unfortunately, the doctors seem to concur ;( But, I have scheduled a mini vacation for myself for my birthday in early Feb, so that will hopefully help. I think I've mentioned on this list before, but they did research and found the stress levels of mothers (stay-at-home moms in particular) to be equivalent to that of a soldier on the frontline in a battlefield (and certainly, I don't want to downplay that the soldiers life is on the line for the sake of all of us), but it just reflects how our bodies are reacting to our daily responsibilities and all the demands on us. Happy Holidays to everyone and do try to take some time for yourself - I plan to take over the bathroom for an hour tonite and take a nice long bath! And, I'm serving leftovers for dinner for the next two nites! B. > > I thought my 20 or so allergies were really bad till I heard about Sharon. Yikes! I know that I > struggled with figuring out what to eat for the first 2 weeks, but it became easier. Of course, > I do still " fall off the wagon " and eat things I am allergic to once in a while. However, it > always makes me feel so bad that I don't do it very often. > > applegirl > Quote Link to comment Share on other sites More sharing options...
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