Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 , Welcome, but as long as you are going by the TSH, you are not going to know what your thyroid hormone is doing in your body. You need the FREE values for T3 and T4 (not Totals or just a T3 Uptake). Even then, you may not know what your body is doing with the T3 it creates from the T4, so symptoms are of utmost importance also, coupled WITH T3 and T4 test results. Plus your doctor understanding all of this. Another introduction.... Hi! My name is . I guess I've been a lurker on this site now for the past few months...figured I ought to get around to introducing myself already (I'm a great procrastinater...) Anyhow, I was diagnosed as hypothyroid back in 2000, probably had been that way for a while before that. Had just done the standard check ups with the doctors, got my medication, never really kept track of anything but I knew that I was slowly getting worse. This spring I had a mix-up with my Synthroid re-fill...the pharmacy incorrectly filled it at .025mcg instead of .125mcg. Oops. Can't say I really felt any different during that month...but while I was waiting for blood tests to come back and get a new prescription written up, I went back to an old bot!tle of .150 Synthroid. Wow! Suddenly I had more energy than I knew what to do with! More energy than I probably had in the past 10 years! It felt great.....for about the 2 weeks or so then it tappered off and I became my slow self again...no energy to do much of anything. During this time my Dr.'s office called me back to inquire what went wrong with my blood work - stupid me never asked what my TSH number was at the time, but the while talking with the nurse I looked at the old bottle and realized that the pharmacy had given me the wrong doseage. After that, during my next appointment I told the Dr. that I had a taste of that energy, and I wanted it (nearly demanded it) back! He understood and was somewhat willing to work with me on it...but only bumped me up to .175mcg. I felt slightly improved, but not much, so the next visit he left me at .175 but then added Cytomel once a day. I did feel better after starting to take the Cytomel, but my numbers were not looking much better to him, so he started me doing the Cytomel twice daily as well as the Synthroid. I had also asked my Dr. about trying to get tested for Adrenal Fatigue and Hashimoto after reading quite a bit within this group and a lot of other related websites, and it seemed that I had a lot of symptoms that fit these two conditions. At that point he pretty much rolled his eyes, said it probably wasn't that and that trying to get tested was "complicated" - meaning he wasn't going to do it & ! nbsp;- that the TSH test was the best way to determine what treatment I needed. I realized I need to be in search of a new Dr. My plan was to try to regain my lost energy and try to get my thyroid and body back into shape a bit before trying to trying to get pregnant. Well that was a thought that didn't last for too long....as I ended up getting prenant back at the end of July. I'm 38 and having my first baby, and I still have no energy amongst all my other symptoms. Well, since I've gotten pregnant I've now started seeing an OBGYN who was a bit concerned about my thyroid as well...she wanted to see my TSH move up to at least a 3.0. My last test with my regular Dr. was a 5.5. First test by the OBGYN was a 5.83. She bumped up my doseage to .200mcg - and didn't specify Synthroid only, so now I'm on a generic, and she kept me at the 2 doses daily of Cytomel (though I have to admit I'm not consistant enough with the 2nd dose). Well, my last TSH test came back at a 1.34! But I am really wondering if someone switched my blood or something.....how can I go from a 5.83 to a 1.34 and not feel any different??? Her nurse explained it's probably just prenancy related - hormones are all over the place.....but I think I really want to get another blood test done on my next visit later this week. Anyhow, that's been my roller coaster for the past few months. I've learned quite a bit looking through alot of the posts on this group and the websites it has led me to, and figured it was finally time to stop procrastinating and introduce myself already. ~ Isaacks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Jan, My GP insisted on using brand only (probably to keep his drug reps happy), so I've been on Synthroid for the past couple of years, and while my doseage had been continually adjusted I really hadn't felt any better. My OB didn't specify, so I ended up with generics but ended up with a dramatic change in my TSH levels. Not sure if it was the switch to the generic, or just part of the wild hormonal swings typical in pregnancy....who knows, maybe my baby will repair my thyroid for me :-) Since I was a new patient, my OB did run a few other tests: TSH - 5.83 - range (1st trimester) .20-4.70, T-3 Uptake - 22 - range 22-35%, T-4 (Thyroxine), Total - 12.2 - range 4.5-12.5 mcg/dl, Free T4 Index (T7)- 2.7 - range 1.4-3.8, T-4, Free - 1.2 - range .08-1. With these results she increased my doesage of the Synthroid (generic) to .200mcg and advised me to keep using the Cytomel twice daily. My next TSH test was done about 6 weeks later, and it came back showing a 1.34 - range (2nd Trimester) .30-4.10. I'm still having trouble believing that I could have that dramatic of a swing in the TSH number. My next appointment is later this morning. I think she was wanting to check my TSH every other appointment, but I'm going to ask if we could go ahead and run it again. I know I've wanted to try to see an endocrinologist, and with all that I've read on here, I've been wanting to try using Armor, but I'm not sure if I want to try changing medications until after I have my baby. ~ > > > > > > Hi! My name is . I guess I've been a lurker on this site now for > > the past few months...figured I ought to get around to introducing > > myself already (I'm a great procrastinater...) > > > > Anyhow, I was diagnosed as hypothyroid back in 2000, probably had been > > that way for a while before that. Had just done the standard check ups > > with the doctors, got my medication, never really kept track of > anything > > but I knew that I was slowly getting worse. > > > > This spring I had a mix-up with my Synthroid re-fill...the pharmacy > > incorrectly filled it at .025mcg instead of .125mcg. Oops. Can't say I > > really felt any different during that month...but while I was waiting > > for blood tests to come back and get a new prescription written up, I > > went back to an old bot!tle of .150 Synthroid. Wow! Suddenly I had > > more energy than I knew what to do with! More energy than I probably > > had in the past 10 years! It felt great.....for about the 2 weeks or > so > > then it tappered off and I became my slow self again...no energy to do > > much of anything. During this time my Dr.'s office called me back to > > inquire what went wrong with my blood work - stupid me never asked > what > > my TSH number was at the time, but the while talking with the nurse I > > looked at the old bottle and realized that the pharmacy had given me > the > > wrong doseage. > > > > After that, during my next appointment I told the Dr. that I had a > taste > > of that energy, and I wanted it (nearly demanded it) back! He > > understood and was somewhat willing to work with me on it...but only > > bumped me up to .175mcg. I felt slightly improved, but not much, so > the > > next visit he left me at .175 but then added Cytomel once a day. I did > > feel better after starting to take the Cytomel, but my numbers were > not > > looking much better to him, so he started me doing the Cytomel twice > > daily as well as the Synthroid. I had also asked my Dr. about trying > to > > get tested for Adrenal Fatigue and Hashimoto after reading quite a bit > > within this group and a lot of other related websites, and it seemed > > that I had a lot of symptoms that fit these two conditions. At that > > point he pretty much rolled his eyes, said it probably wasn't that and > > that trying to get tested was " complicated " - meaning he wasn't going > to > > do it - that the TSH test was the best way to determine what treatment > I > > needed. I realized I need to be in search of a new Dr. My plan was to > > try to regain my lost energy and try to get my thyroid and body back > > into shape a bit before trying to trying to get pregnant. Well that > was > > a thought that didn't last for too long....as I ended up getting > prenant > > back at the end of July. I'm 38 and having my first baby, and I still > > have no energy amongst all my other symptoms. > > > > Well, since I've gotten pregnant I've now started seeing an OBGYN who > > was a bit concerned about my thyroid as well...she wanted to see my > TSH > > move up to at least a 3.0. My last test with my regular Dr. was a 5.5. > > First test by the OBGYN was a 5.83. She bumped up my doseage to > .200mcg > > - and didn't specify Synthroid only, so now I'm on a generic, and she > > kept me at the 2 doses daily of Cytomel (though I have to admit I'm > not > > consistant enough with the 2nd dose). Well, my last TSH test came back > > at a 1.34! But I am really wondering if someone switched my blood or > > something.....how can I go from a 5.83 to a 1.34 and not feel any > > different??? Her nurse explained it's probably just prenancy related - > > hormones are all over the place.....but I think I really want to get > > another blood test done on my next visit later this week. > > > > Anyhow, that's been my roller coaster for the past few months. I've > > learned quite a bit looking through alot of the posts on this group > and > > the websites it has led me to, and figured it was finally time to stop > > procrastinating and introduce myself already. > > > > ~ Isaacks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Hi , I just posted my results of additional thyroid tests that my OB had done since I was a new patient for her. I have a feeling though that I will need to go and find an endocrinologist to go to in order to get these tests run on a regular basis. I did notice some positive results after starting the Cytomel...the joint pain/stiffness I'd been having for several months went away, and the amount of hair that I was pulling out daily in my showers decreased quite a bit. I felt a little more energy and a bit of a racing heart for the first couple weeks, but that went away as my body got used to it. Some of the " brain fog " /concentration/memory issues that I have at work, while still there, I have noticed that I have a few more " good " days now. I'm still pretty tired & exhausted all the time, but now that my TSH has changed a bit I don't know if it's just because of my pregnancy now or what. I haven't gained much weight in my pregnancy yet (even lost a few pounds for a couple weeks), but I'm thinking that's probably just from the higher doseage of generic Synthroid that I've been taking. I don't think I've mentioned it to a Dr. yet, but I've had some occassional numbness in my feet & toes which seems to have increased a bit over the last couple of months. I guess for now I just get to wait it out until my next test is done and see if anything else changes. ~ > > , Welcome, but as long as you are going by the TSH, you are not going to know what your thyroid hormone is doing in your body. You need the FREE values for T3 and T4 (not Totals or just a T3 Uptake). Even then, you may not know what your body is doing with the T3 it creates from the T4, so symptoms are of utmost importance also, coupled WITH T3 and T4 test results. Plus your doctor understanding all of this. > > > > Another introduction.... > > > Hi! My name is . I guess I've been a lurker on this site now for the past few months...figured I ought to get around to introducing myself already (I'm a great procrastinater...) > > Anyhow, I was diagnosed as hypothyroid back in 2000, probably had been that way for a while before that. Had just done the standard check ups with the doctors, got my medication, never really kept track of anything but I knew that I was slowly getting worse. > > This spring I had a mix-up with my Synthroid re-fill...the pharmacy incorrectly filled it at .025mcg instead of .125mcg. Oops. Can't say I really felt any different during that month...but while I was waiting for blood tests to come back and get a new prescription written up, I went back to an old bot!tle of .150 Synthroid. Wow! Suddenly I had more energy than I knew what to do with! More energy than I probably had in the past 10 years! It felt great.....for about the 2 weeks or so then it tappered off and I became my slow self again...no energy to do much of anything. During this time my Dr.'s office called me back to inquire what went wrong with my blood work - stupid me never asked what my TSH number was at the time, but the while talking with the nurse I looked at the old bottle and realized that the pharmacy had given me the wrong doseage. > > After that, during my next appointment I told the Dr. that I had a taste of that energy, and I wanted it (nearly demanded it) back! He understood and was somewhat willing to work with me on it...but only bumped me up to .175mcg. I felt slightly improved, but not much, so the next visit he left me at .175 but then added Cytomel once a day. I did feel better after starting to take the Cytomel, but my numbers were not looking much better to him, so he started me doing the Cytomel twice daily as well as the Synthroid. I had also asked my Dr. about trying to get tested for Adrenal Fatigue and Hashimoto after reading quite a bit within this group and a lot of other related websites, and it seemed that I had a lot of symptoms that fit these two conditions. At that point he pretty much rolled his eyes, said it probably wasn't that and that trying to get tested was " complicated " - meaning he wasn't going to do it & ! nbsp;- that the TSH test was the best way to determine what treatment I needed. I realized I need to be in search of a new Dr. My plan was to try to regain my lost energy and try to get my thyroid and body back into shape a bit before trying to trying to get pregnant. Well that was a thought that didn't last for too long....as I ended up getting prenant back at the end of July. I'm 38 and having my first baby, and I still have no energy amongst all my other symptoms. > > Well, since I've gotten pregnant I've now started seeing an OBGYN who was a bit concerned about my thyroid as well...she wanted to see my TSH move up to at least a 3.0. My last test with my regular Dr. was a 5.5. First test by the OBGYN was a 5.83. She bumped up my doseage to .200mcg - and didn't specify Synthroid only, so now I'm on a generic, and she kept me at the 2 doses daily of Cytomel (though I have to admit I'm not consistant enough with the 2nd dose). Well, my last TSH test came back at a 1.34! But I am really wondering if someone switched my blood or something.....how can I go from a 5.83 to a 1.34 and not feel any different??? Her nurse explained it's probably just prenancy related - hormones are all over the place.....but I think I really want to get another blood test done on my next visit later this week. > > Anyhow, that's been my roller coaster for the past few months. I've learned quite a bit looking through alot of the posts on this group and the websites it has led me to, and figured it was finally time to stop procrastinating and introduce myself already. > > ~ Isaacks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Hi , My understanding is that during pregnancy folks often need an increase in thyroid due to the increased demands on the body in growing that baby. Also, getting adequate dosage is really important for the health of your baby. I can't fathom why the OB would want your TSH to increase - it makes no sense based on what I understand. 3.0 is borderline hypo. I would hope your OB is aware of this - if note, you might look up and take in some of the research and see if she's willing to work with you. Your TSH has changed so much because you added T3. The pituatary reduces the TSH based on T3 far more than it does based on levels of T4. Once you are taking thyroid hormone, TSH is pretty much useless - the Frees are what's important. Also, I don't recall if you had your antibodies tested. That is of utmost importance if you are pregnant. Pregnancy (and childbirth) are one of the most common triggers of autoimmune thyroid disease. You might want to check out some of the celiac/gluten intolerance info I've put in the Files section. I was an undiagnosed celiac during pregnancy and it can result in nutritional deficiencies to both you and your fetus. This can be the cause of your tingling - low B12. You should ask your doctor to measure that, as well Ferritin (the best measure of iron store) is of utmost importance. If you are not absorbing, the pre- natal vitamins will not help. Also, many, many people find that generic Synthroid is not as effective for them. My sons are on Synthroid and I just had this discussion with their doctor - this is true for many of her patients, so she wrote their new Rxes for Brand only. B. > > > > , Welcome, but as long as you are going by the TSH, you are > not going to know what your thyroid hormone is doing in your body. > You need the FREE values for T3 and T4 (not Totals or just a T3 > Uptake). Even then, you may not know what your body is doing with > the T3 it creates from the T4, so symptoms are of utmost importance > also, coupled WITH T3 and T4 test results. Plus your doctor > understanding all of this. > > > > > > > > Another introduction.... > > > > > > Hi! My name is . I guess I've been a lurker on this site > now for the past few months...figured I ought to get around to > introducing myself already (I'm a great procrastinater...) > > > > Anyhow, I was diagnosed as hypothyroid back in 2000, probably had > been that way for a while before that. Had just done the standard > check ups with the doctors, got my medication, never really kept > track of anything but I knew that I was slowly getting worse. > > > > This spring I had a mix-up with my Synthroid re-fill...the > pharmacy incorrectly filled it at .025mcg instead of .125mcg. Oops. > Can't say I really felt any different during that month...but while I > was waiting for blood tests to come back and get a new prescription > written up, I went back to an old bot!tle of .150 Synthroid. Wow! > Suddenly I had more energy than I knew what to do with! More energy > than I probably had in the past 10 years! It felt great.....for > about the 2 weeks or so then it tappered off and I became my slow > self again...no energy to do much of anything. During this time my > Dr.'s office called me back to inquire what went wrong with my blood > work - stupid me never asked what my TSH number was at the time, but > the while talking with the nurse I looked at the old bottle and > realized that the pharmacy had given me the wrong doseage. > > > > After that, during my next appointment I told the Dr. that I had > a taste of that energy, and I wanted it (nearly demanded it) back! > He understood and was somewhat willing to work with me on it...but > only bumped me up to .175mcg. I felt slightly improved, but not > much, so the next visit he left me at .175 but then added Cytomel > once a day. I did feel better after starting to take the Cytomel, > but my numbers were not looking much better to him, so he started me > doing the Cytomel twice daily as well as the Synthroid. I had also > asked my Dr. about trying to get tested for Adrenal Fatigue and > Hashimoto after reading quite a bit within this group and a lot of > other related websites, and it seemed that I had a lot of symptoms > that fit these two conditions. At that point he pretty much rolled > his eyes, said it probably wasn't that and that trying to get tested > was " complicated " - meaning he wasn't going to do it & ! nbsp;- that > the TSH test was the best way to determine what treatment I needed. > I realized I need to be in search of a new Dr. My plan was to try to > regain my lost energy and try to get my thyroid and body back into > shape a bit before trying to trying to get pregnant. Well that was a > thought that didn't last for too long....as I ended up getting > prenant back at the end of July. I'm 38 and having my first baby, > and I still have no energy amongst all my other symptoms. > > > > Well, since I've gotten pregnant I've now started seeing an OBGYN > who was a bit concerned about my thyroid as well...she wanted to see > my TSH move up to at least a 3.0. My last test with my regular Dr. > was a 5.5. First test by the OBGYN was a 5.83. She bumped up my > doseage to .200mcg - and didn't specify Synthroid only, so now I'm on > a generic, and she kept me at the 2 doses daily of Cytomel (though I > have to admit I'm not consistant enough with the 2nd dose). Well, my > last TSH test came back at a 1.34! But I am really wondering if > someone switched my blood or something.....how can I go from a 5.83 > to a 1.34 and not feel any different??? Her nurse explained it's > probably just prenancy related - hormones are all over the > place.....but I think I really want to get another blood test done on > my next visit later this week. > > > > Anyhow, that's been my roller coaster for the past few months. > I've learned quite a bit looking through alot of the posts on this > group and the websites it has led me to, and figured it was finally > time to stop procrastinating and introduce myself already. > > > > ~ Isaacks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 , Perhaps I explained it wrong, my OB was not looking to increase my TSH. I was at a 5.83 and she wanted to bring it up to a minimum of a 3.0, but with it coming all the way up to a 1.34 both of us are happy with the results (though I'm still confused why I wouldn't be feeling more energy). She did think it was too soon though to re-test the TSH, so we will be doing it on the next visit in January. She did agree about Synthroid being better and didn't know that my pharmacy filled it with generics, so I had her write out a new "brand only" prescription since it was about time to get a new one anyway. I don't know if she will do a test for antibodies for me, but I'll ask for the next test. I'll have to check out your info on the celiac/gluten intolerance as I gained a little more insight a few days ago from an Iridologist that my mom and I went to see. She said I was having an absorbtion issue, which to me explains quite a bit....like why I had to get my Synthroid doseage up so high to get any effect, and why I can take plenty of B-12 during the day - and never feel any kick from it, or heck, from any medication I take...I always feel like I have to take more than the recommended dose of anything to get it to work. She also confirmed that I have a yeast overgrowth which is something that I've long suspected. That maybe something that I can't be too agressive about until after my pregnancy, but I would really like to work on that some. The absorbtion issue worries me for now though, since I worry about both me & the baby getting enough nutrition, especially if I'm not getting enough out of all of the prenatal vitamins I'm taking. ~ Subject: Re: Another introduction....To: Texas_Thyroid_Groups Date: Thursday, December 11, 2008, 10:32 AMHi , My understanding is that during pregnancy folks often need an increase in thyroid due to the increased demands on the body in growing that baby. Also, getting adequate dosage is really important for the health of your baby. I can't fathom why the OB would want your TSH to increase - it makes no sense based on what I understand. 3.0 is borderline hypo. I would hope your OB is aware of this - if note, you might look up and take in some of the research and see if she's willing to work with you. Your TSH has changed so much because you added T3. The pituatary reduces the TSH based on T3 far more than it does based on levels of T4. Once you are taking thyroid hormone, TSH is pretty much useless - the Frees are what's important. Also, I don't recall if you had your antibodies tested. That is of utmost importance if you are pregnant. Pregnancy (and childbirth) are one of the most common triggers of autoimmune thyroid disease. You might want to check out some of the celiac/gluten intolerance info I've put in the Files section. I was an undiagnosed celiac during pregnancy and it can result in nutritional deficiencies to both you and your fetus. This can be the cause of your tingling - low B12. You should ask your doctor to measure that, as well Ferritin (the best measure of iron store) is of utmost importance. If you are not absorbing, the pre- natal vitamins will not help. Also, many, many people find that generic Synthroid is not as effective for them. My sons are on Synthroid and I just had this discussion with their doctor - this is true for many of her patients, so she wrote their new Rxes for Brand only. B. > > > > , Welcome, but as long as you are going by the TSH, you are > not going to know what your thyroid hormone is doing in your body. > You need the FREE values for T3 and T4 (not Totals or just a T3 > Uptake). Even then, you may not know what your body is doing with > the T3 it creates from the T4, so symptoms are of utmost importance > also, coupled WITH T3 and T4 test results. Plus your doctor > understanding all of this. > > > > > > > > Another introduction.... > > > > > > Hi! My name is . I guess I've been a lurker on this site > now for the past few months...figured I ought to get around to > introducing myself already (I'm a great procrastinater...) > > > > Anyhow, I was diagnosed as hypothyroid back in 2000, probably had > been that way for a while before that. Had just done the standard > check ups with the doctors, got my medication, never really kept > track of anything but I knew that I was slowly getting worse. > > > > This spring I had a mix-up with my Synthroid re-fill...the > pharmacy incorrectly filled it at .025mcg instead of .125mcg. Oops. > Can't say I really felt any different during that month...but while I > was waiting for blood tests to come back and get a new prescription > written up, I went back to an old bot!tle of .150 Synthroid. Wow! > Suddenly I had more energy than I knew what to do with! More energy > than I probably had in the past 10 years! It felt great.....for > about the 2 weeks or so then it tappered off and I became my slow > self again...no energy to do much of anything. During this time my > Dr.'s office called me back to inquire what went wrong with my blood > work - stupid me never asked what my TSH number was at the time, but > the while talking with the nurse I looked at the old bottle and > realized that the pharmacy had given me the wrong doseage. > > > > After that, during my next appointment I told the Dr. that I had > a taste of that energy, and I wanted it (nearly demanded it) back! > He understood and was somewhat willing to work with me on it...but > only bumped me up to .175mcg. I felt slightly improved, but not > much, so the next visit he left me at .175 but then added Cytomel > once a day. I did feel better after starting to take the Cytomel, > but my numbers were not looking much better to him, so he started me > doing the Cytomel twice daily as well as the Synthroid. I had also > asked my Dr. about trying to get tested for Adrenal Fatigue and > Hashimoto after reading quite a bit within this group and a lot of > other related websites, and it seemed that I had a lot of symptoms > that fit these two conditions. At that point he pretty much rolled > his eyes, said it probably wasn't that and that trying to get tested > was "complicated" - meaning he wasn't going to do it & ! nbsp;- that > the TSH test was the best way to determine what treatment I needed. > I realized I need to be in search of a new Dr. My plan was to try to > regain my lost energy and try to get my thyroid and body back into > shape a bit before trying to trying to get pregnant. Well that was a > thought that didn't last for too long....as I ended up getting > prenant back at the end of July. I'm 38 and having my first baby, > and I still have no energy amongst all my other symptoms. > > > > Well, since I've gotten pregnant I've now started seeing an OBGYN > who was a bit concerned about my thyroid as well...she wanted to see > my TSH move up to at least a 3.0. My last test with my regular Dr. > was a 5.5. First test by the OBGYN was a 5.83. She bumped up my > doseage to .200mcg - and didn't specify Synthroid only, so now I'm on > a generic, and she kept me at the 2 doses daily of Cytomel (though I > have to admit I'm not consistant enough with the 2nd dose). Well, my > last TSH test came back at a 1.34! But I am really wondering if > someone switched my blood or something.....how can I go from a 5.83 > to a 1.34 and not feel any different??? Her nurse explained it's > probably just prenancy related - hormones are all over the > place.....but I think I really want to get another blood test done on > my next visit later this week. > > > > Anyhow, that's been my roller coaster for the past few months. > I've learned quite a bit looking through alot of the posts on this > group and the websites it has led me to, and figured it was finally > time to stop procrastinating and introduce myself already. > > > > ~ Isaacks > > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 On the absorbtion issue...my dr. has me taking prilosec or zantac over the counter (this is in addition to a prescription for prevacid). I also seem to not be able to absorb some things...iron, b's, etc. I guess this is working as my iron has finally started to go up. If only it didn't kill my stomach On the antibodies test...that should be the second, if not first, test that your doctor should do. Otherwise, how would you know if you have hashi's? Good luck on the rest of your pregnancy. I have had to do the yeast diet. Actually, I still follow it. You might consider seeing a nutritionist to see what supps might be safe to take if nursing. I good probiotic, like Threelac, is a must. , Perhaps I explained it wrong, my OB was not looking to increase my TSH. I was at a 5.83 and she wanted to bring it up to a minimum of a 3.0, but with it coming all the way up to a 1.34 both of us are happy with the results (though I'm still confused why I wouldn't be feeling more energy). She did think it was too soon though to re-test the TSH, so we will be doing it on the next visit in January. She did agree about Synthroid being better and didn't know that my pharmacy filled it with generics, so I had her write out a new " brand only " prescription since it was about time to get a new one anyway. I don't know if she will do a test for antibodies for me, but I'll ask for the next test. I'll have to check out your info on the celiac/gluten intolerance as I gained a little more insight a few days ago from an Iridologist that my mom and I went to see. She said I was having an absorbtion issue, which to me explains quite a bit....like why I had to get my Synthroid doseage up so high to get any effect, and why I can take plenty of B-12 during the day - and never feel any kick from it, or heck, from any medication I take...I always feel like I have to take more than the recommended dose of anything to get it to work. She also confirmed that I have a yeast overgrowth which is something that I've long suspected. That maybe something that I can't be too agressive about until after my pregnancy, but I would really like to work on that some. The absorbtion issue worries me for now though, since I worry about both me & the baby getting enough nutrition, especially if I'm not getting enough out of all of the prenatal vitamins I'm taking. ~ Subject: Re: Another introduction.... To: Texas_Thyroid_Groups Date: Thursday, December 11, 2008, 10:32 AMHi , My understanding is that during pregnancy folks often need an increase in thyroid due to the increased demands on the body in growing that baby. Also, getting adequate dosage is really important for the health of your baby. I can't fathom why the OB would want your TSH to increase - it makes no sense based on what I understand. 3.0 is borderline hypo. I would hope your OB is aware of this - if note, you might look up and take in some of the research and see if she's willing to work with you. Your TSH has changed so much because you added T3. The pituatary reduces the TSH based on T3 far more than it does based on levels of T4. Once you are taking thyroid hormone, TSH is pretty much useless - the Frees are what's important. Also, I don't recall if you had your antibodies tested. That is of utmost importance if you are pregnant. Pregnancy (and childbirth) are one of the most common triggers of autoimmune thyroid disease. You might want to check out some of the celiac/gluten intolerance info I've put in the Files section. I was an undiagnosed celiac during pregnancy and it can result in nutritional deficiencies to both you and your fetus. This can be the cause of your tingling - low B12. You should ask your doctor to measure that, as well Ferritin (the best measure of iron store) is of utmost importance. If you are not absorbing, the pre- natal vitamins will not help. Also, many, many people find that generic Synthroid is not as effective for them. My sons are on Synthroid and I just had this discussion with their doctor - this is true for many of her patients, so she wrote their new Rxes for Brand only. B. > > > > , Welcome, but as long as you are going by the TSH, you are > not going to know what your thyroid hormone is doing in your body. > You need the FREE values for T3 and T4 (not Totals or just a T3 > Uptake). Even then, you may not know what your body is doing with > the T3 it creates from the T4, so symptoms are of utmost importance > also, coupled WITH T3 and T4 test results. Plus your doctor > understanding all of this. > > > > > > > > Another introduction.... > > > > > > Hi! My name is . I guess I've been a lurker on this site > now for the past few months...figured I ought to get around to > introducing myself already (I'm a great procrastinater...) > > > > Anyhow, I was diagnosed as hypothyroid back in 2000, probably had > been that way for a while before that. Had just done the standard > check ups with the doctors, got my medication, never really kept > track of anything but I knew that I was slowly getting worse. > > > > This spring I had a mix-up with my Synthroid re-fill...the > pharmacy incorrectly filled it at .025mcg instead of .125mcg. Oops. > Can't say I really felt any different during that month...but while I > was waiting for blood tests to come back and get a new prescription > written up, I went back to an old bot!tle of .150 Synthroid. Wow! > Suddenly I had more energy than I knew what to do with! More energy > than I probably had in the past 10 years! It felt great.....for > about the 2 weeks or so then it tappered off and I became my slow > self again...no energy to do much of anything. During this time my > Dr.'s office called me back to inquire what went wrong with my blood > work - stupid me never asked what my TSH number was at the time, but > the while talking with the nurse I looked at the old bottle and > realized that the pharmacy had given me the wrong doseage. > > > > After that, during my next appointment I told the Dr. that I had > a taste of that energy, and I wanted it (nearly demanded it) back! > He understood and was somewhat willing to work with me on it...but > only bumped me up to .175mcg. I felt slightly improved, but not > much, so the next visit he left me at .175 but then added Cytomel > once a day. I did feel better after starting to take the Cytomel, > but my numbers were not looking much better to him, so he started me > doing the Cytomel twice daily as well as the Synthroid. I had also > asked my Dr. about trying to get tested for Adrenal Fatigue and > Hashimoto after reading quite a bit within this group and a lot of > other related websites, and it seemed that I had a lot of symptoms > that fit these two conditions. At that point he pretty much rolled > his eyes, said it probably wasn't that and that trying to get tested > was " complicated " - meaning he wasn't going to do it & ! nbsp;- that > the TSH test was the best way to determine what treatment I needed. > I realized I need to be in search of a new Dr. My plan was to try to > regain my lost energy and try to get my thyroid and body back into > shape a bit before trying to trying to get pregnant. Well that was a > thought that didn't last for too long....as I ended up getting > prenant back at the end of July. I'm 38 and having my first baby, > and I still have no energy amongst all my other symptoms. > > > > Well, since I've gotten pregnant I've now started seeing an OBGYN > who was a bit concerned about my thyroid as well...she wanted to see > my TSH move up to at least a 3.0. My last test with my regular Dr. > was a 5.5. First test by the OBGYN was a 5.83. She bumped up my > doseage to .200mcg - and didn't specify Synthroid only, so now I'm on > a generic, and she kept me at the 2 doses daily of Cytomel (though I > have to admit I'm not consistant enough with the 2nd dose). Well, my > last TSH test came back at a 1.34! But I am really wondering if > someone switched my blood or something.....how can I go from a 5.83 > to a 1.34 and not feel any different??? Her nurse explained it's > probably just prenancy related - hormones are all over the > place.....but I think I really want to get another blood test done on > my next visit later this week. > > > > Anyhow, that's been my roller coaster for the past few months. > I've learned quite a bit looking through alot of the posts on this > group and the websites it has led me to, and figured it was finally > time to stop procrastinating and introduce myself already. > > > > ~ Isaacks > > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 I switched to iron bisglycinate (don't hold me to the spelling) and have had no stomach problems since. The brand I take is Solgar " Gentle Iron " - but there are other manufacturers. Marti > On the absorbtion issue...my dr. has me taking prilosec or zantac over > the counter (this is in addition to a prescription for prevacid). I > also seem to not be able to absorb some things...iron, b's, etc. I > guess this is working as my iron has finally started to go up. If > only it didn't kill my stomach >  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 Yeah...I tried that one. Unfortunately, it bothered me too. Slow FE is ok for me. What I do now is take it for 3 days on and 2 days off. I switched to iron bisglycinate (don't hold me to the spelling) andhave had no stomach problems since. The brand I take is Solgar " Gentle Iron " - but there are other manufacturers.Marti > On the absorbtion issue...my dr. has me taking prilosec or zantac over> the counter (this is in addition to a prescription for prevacid). I > also seem to not be able to absorb some things...iron, b's, etc. I> guess this is working as my iron has finally started to go up. If> only it didn't kill my stomach > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 I switched to a similar product. No more tummy problems for me. I accidently ordered a multivitamin with iron. It caused me troubles the next day. Vitacost let me return both the open bottle and the unopened bottle. Kim From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Martha L Lovejoy Sent: Monday, December 15, 2008 5:21 PM To: Texas_Thyroid_Groups Subject: Re: Re: Another introduction.... I switched to iron bisglycinate (don't hold me to the spelling) and have had no stomach problems since. The brand I take is Solgar " Gentle Iron " - but there are other manufacturers. Marti > On the absorbtion issue...my dr. has me taking prilosec or zantac over > the counter (this is in addition to a prescription for prevacid). I > also seem to not be able to absorb some things...iron, b's, etc. I > guess this is working as my iron has finally started to go up. If > only it didn't kill my stomach > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 Hi , Sorry - I misread your post, so we usually refer to wanting to lower the TSH when one is hypo, which is confusing in that a high TSH can be indicative of low thyroid function. Here's a good reference for what the various values may indicate: http://thyroid.about.com/cs/newsinfo/l/bltest_values.htm On the yeast, there are some fairly safe anti-fungals - nystatin is something they give to babies for thrush, so it might be safe for a pregnant mama: http://www.americanpregnancy.org/pregnancycomplications/yeastinfectio npreg.html Also, do you know what type of fungal overgrowth you have - candida can be the most common, but, for example, it they find something like aspergillus in your blood, you've likely been exposed to mold. I am going to organize more files and links for the biotoxin topic in the files and I'm going to setup a separate yahoo group, since this is off-topic for the most part (other than the idea that the same genes are associated with problems with biotoxins and hypothyroidism and often they have the same root - damage to the hypothalamus). Diflucan and Sporanox, however, are absolutely contra-indicated during pregnancy and in my experience while breastfeeding. There are also lots of herbs that are very helpful for yeast control. The most effective is a good probiotic, which SHOULD be absolutely safe during pregnancy and during BF. But of course, you must discuss those with your doctor (there are reliable references for the safety of these during pregnancy and while breastfeeding). The one problem I had due to likely being hypo during pregnancy was that I had alot of trouble breastfeeding and it took alot of effort to get my milk supply up. Frequent nursing in the early days is the best thing, particularly right after birth when the baby is more alert than they'll be during the early weeks - they have a natural suckling instinct and breastfeeding right away tends to set a good direction for breastfeeding. I was not able to do that for a couple reasons - I was totally ignorant about BF (La Leche League is extremely helpful in these cases) AND my son was in ICU, so I just had to pump, but they didn't want to use my breastmilk - I think things have changed in that respect in the past decade. In my experience, breastfeeding is just so important since it eases our hormones back to normal (minimizing potential for PPD) AND it provides optimal nutrition and immune boosters for our babies. For my kids, they believe this really delayed the onset of the celiac as well as the severity. But, they were both born with a severe dairly allergy, which is another reason why BF was so important for them, as my older son did not tolerate the formula in ICU - the soy was barely tolerable and caused alot of GI distress (and of course, we know that contributes to hypothyroidism). Good luck. B. > > , >  > Perhaps I explained it wrong, my OB was not looking to increase my TSH. I was at a 5.83 and she wanted to bring it up to a minimum of a 3.0, but with it coming all the way up to a 1.34 both of us are happy with the results (though I'm still confused why I wouldn't be feeling more energy).   She did think it was too soon though to re- test the TSH, so we will be doing it on the next visit in January. She did agree about Synthroid being better and didn't know that my pharmacy filled it with generics, so I had her write out a new " brand only " prescription since it was about time to get a new one anyway. I don't know if she will do a test for antibodies for me, but I'll ask for the next test. >  > I'll have to check out your info on the celiac/gluten intolerance as I gained a little more insight a few days ago from an Iridologist that my mom and I went to see. She said I was having an absorbtion issue, which to me explains quite a bit....like why I had to get my Synthroid doseage up so high to get any effect, and why I can take plenty of B-12 during the day - and never feel any kick from it, or heck, from any medication I take...I always feel like I have to take more than the recommended dose of anything to get it to work. She also confirmed that I have a yeast overgrowth which is something that I've long suspected.  That maybe something that I can't be too agressive about until after my pregnancy, but I would really like to work on that some. The absorbtion issue worries me for now though, since I worry about both me & the baby getting enough nutrition, especially if I'm not getting enough out of all of the prenatal vitamins I'm taking. >  > ~ >  > Quote Link to comment Share on other sites More sharing options...
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