venting

[Guest guest]

I am all for exposure and public awareness about Autism, but I am so fed up

with having to hear the same c%^$ on TV over and over again which is really

nothing enlighting or news-worthy.

Most segments is about how the child was severely autistic and then we did

x therapy and now look at him he is on the debate team or we don't know

whether vaccines implicated or not. Here is a tid-bit of what some people

think and then here is what the CDC/some pediatrician thinks......that's

it...there is no serious investigational reporting about this. I am so

beyond sick and tired of hearing about this.

when will it be reported that:

we know we need early intervention but what parents face is the lack of

enough qualified people; or not enough money; or insurance will not cover

it

when will it be reported that inspite of early intervention and all other

known treatments and still no speech..no recovery (sorry, but that

is the story of the majority of children with Autism). and my definition of

Autism is what I find in my son

(non-verbal, learning disability, sensory issues, stimming, rigidity, no

concept of danger or anything abstract,..etc)

which brings me to the next point:

when will it be reported that there is a problem with the monstrous

umbrella of what we call Autism Spectrum which frustrate the heck out of us

parents

by comparing our children knowing that no two are alike. There are plenty

of times that I feel that I do not belong to any of the Autism lists as I

can not relate

to others experiences.

When will it be reported that lumping everything under Autism will confuse

doctors, parents and will always have the Autism as puzzle unless we give it

serious attention by at least give each condition a separate diagnosis.

When will it be reported and (should be made as taboo) how family and

friends avoid you and exclude from activities when you have a child with

Autism. How public places, doctor offices, hospitals,,etc are not equipped

nor prepared or educated to handle people with Autism.

When will it be reported as an outrage the lack of education, research

funding , enough interest of medical community in this mysterious,

gut-wrenching, debilitating condition. As a matter of fact, some think it

as a life style.

I tell you my opinion if Autism is spread by sexual contact, then it will

get all the attention, research,funding, public awareness, compassion

necessary. Just look at AIDS.

ok... I feel better now.. I am debating whether I should post this or

not...but what the heck. I had a sleepless night followed by poop all over

the bed and an hour of moaning and crying of my son trying to figure out

what is he upset about.

Have a good day,