RE: Colon pain despite clean tests

[Guest guest]

The gluten free bread will be located in the refrigerated or frozen

section of the store. We eat rice bread. It is a small loaf. Any

health food store should have it. I know HEB carries it. If you have

a Whole Foods, Central Market or Sprouts near, they should carry gf

bread along with gluten free pastas and many other products. Most

of the crackers are just food grade cardboard IMHO.

Bob's Red Mill also has wonderful gluten free flours, bread mixes and

a brownie mix that (we think) tastes much better than any gluten

laden brownie mix. Kroger carries some cake mixes that are gluten

free, I believe the name is CherryCreek Kitchens.

Carol Fenster has some really good cookbooks. She lists hidden

sources of gluten in them. On the web, search for celiac or " gluten

free " and that should produce websites with information.

Gluten can be in hidden in candies, medications, seasonings, salad

dressings, soy sauce, etc.

Be careful not to cross contaminate. If you put a gluten free waffle

or bread in a toaster that you have put gluten bread in - you have

just cross contaminated the gluten free product - and it will make

you sick. If you dip a knife in mayo and slather it on a piece of

wheat bread and dip it in again for the other slice - there is no

way it is going on my gluten free bread because the mayo is

contaminated. This also goes for jellies, butter, etc.

Outback Steakhouse, Chik-fil-A, McAlister's Deli and other

restaurants have gluten free menus and/or foods listed on their

websites. Most resturants have been very accomodating.

On a recent trip to Houston - the waitstaff, managers and kitchen

staff were just wonderful no matter where we ate. A manager at one of

our favorite restaurants told me to ask for him any time we were

there and he would personally cook my meal to insure there was no

cross-contamination. It is a Mexican food restaurant and they dip

their corn tortillas in the same oil that flour tortillas are dipped

in - so it really pays to ask.

Going gluten free has cut out 95% of my headaches and migraines, no

more IBS unless I get glutened accidently, and helped so many more

things. Every single joint in my daughter's body hurt and she was in

pain, her hands had started curling and tightening up and was very

weak, after less than two weeks gf - all pain was gone, no more

headaches, no more fuzzy vision, no more brain fog, it made it easier

for her to concentrate during schoolwork, not to mention no more

stomach aches. It took about 4 to 6 weeks for me to tell a

difference and actually it was my husband that noticed I was feeling

better. We don't miss anything because I find a gluten free

substitute.

Hope this helps and sorry it's so long,

Tina

>

> please somebody tell me a website that shows what NOT to eat re

celiac, I can't find one.

> >

> I don't know why I can't find find a LIST on a website somewhere.

>

> >

> My husband can't find any non-gluten bread in the supermarket, or

crackers either. The

> > Vicki from No Texas

>

[Guest guest]

Here's some good lists of safe/unsafe foods:

Safe:

====

http://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-

Ingredients/Page1.html

tinyurl: http://tinyurl.com/3de2pk

Unsafe:

=======

http://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-

Unsafe-Ingredients/Page1.html

tinyurl:

http://tinyurl.com/2afwa4

You can really get around most problems at home by sticking with a

whole foods diet (i.e., no packaged products) with fresh (or plain

frozen) veggies, fresh (or plain frozen or dried) fruit, healthy

unprocessed proteins like plain beans (extremely cheap if you

prepare from dry yourself), organic chicken (you MUST read the label

and make sure it has no added ingredients - flavorings are added to

some conventional chicken as natural flavoring - don't buy unless it

is labeled Gluten-Free), grass fed beef or bison (by law these don't

have any additives/flavorings), wild fish like salmon.

If you need something crunchy, I eat the ubiquitous rice cakes at

nite (carbs help you sleep) with almond butter (proteins help

stabilize blood sugar during the nite). There are some good gluten-

free crackers and pretzels made by Glutino at Sprouts. I personally

only buy products labeled GF that are not made on the same equipment

as products containing wheat. Even a small amount can impact you.

That all said, it is really not a good idea to go on the diet unless

you're certain that's your issue - you can try an extremely diligent

elimination diet - which is really, really difficult since there is

alot of hidden gluten and when eating out, 9 times out of 10, you

likely will get trace amounts. It takes at LEAST 6 mos to get all

the gluten out of ones diet and household (shampoos often have wheat

protein as do supplements and even Rx meds (e.g., generic Armour).

And with this approach, you have no documentation to show to

conventional docs why you're on the diet. Most will tell you it's

unnecessary.

The best approach the enterolab test:

www.enterolab.com ($99 for the basic, no doc required) - this is the

most accurate test available - lab is fully accredited and then some

and it's run by a top GI doc, who personally reviews all test

results.

Also, I have a Yahoo group with recipes and other folks that deal

with this diet everyday:

http://health.groups.yahoo.com/group/FM-Celiac-GI-FA/

We are very happy to answer ANY questions you might have wrt celiac.

One of the members is an RN/nurse midwife that teaches at UTA - she

had a practice in the past and was the recognized expert in Celiac -

she was called the " Celiac Nurse " . You don't have to be local to DFW

to join the group, but the lists of stores may not be in your area.

Also, I'm sure you're aware that a colonoscopy CANNOT detect celiac -

the biopsy for celiac is done in the small intestine (the other

end . All biopsies are specific to organs/diseases and only when

they're reviewed by an expert in a specific disease can they be

considered accurate AND they are very subject to human error.

Also, to get back on track, I do have some of this info under the

files " Related Issues and Diseases " . I will add some more including

a FAQ.

Happy New Year and best wishes for renewed health!

B.

>

> I keep having severe colon pain despite a clean colonoscopy (small

area of infection and

> removed two polyps) and an EGD showed " some nflammmation. "

>

> please somebody tell me a website that shows what NOT to eat re

celiac, I can't find one.

> I already cut out dairy.

>

> I don't know why I can't find find a LIST on a website somewhere.

>

> THANK YOU in advance.

>

> OR what else could it be??? I've had a hystero. My bladder seems

fine no symptoms. I am

> taking MiraLax to poop at all. (sorry). I am not eating very

much, yet I have not lost more

> than a few pounds.

>

> My husband can't find any non-gluten bread in the supermarket, or

crackers either. The

> gastro just says, eat more fiber, but that makes it hurt more!!!!!

>

> ARGGGGGHHHHH.

>

> Vicki from No Texas

>

[Guest guest]

Hi Vicki from No Texas,

Have you tried a progesterone cream?

Progesterone is known to relax the smooth muscles of the gut.

For most of my life, starting with my reproductive years, I

experienced very painful " colonitis " attacks. Hospitalization, tests,

showed nothing obvious.

I started using a progesterone cream about a decade ago. Makes a major

difference for me.

And if you just want the pain to go away, have you tried acupuncture?

For general pain relief, I find that, too, to be effective.

good health,

kidbobo

>

> I keep having severe colon pain despite a clean colonoscopy (small

area of infection and

> removed two polyps) and an EGD showed " some nflammmation. "

>

> please somebody tell me a website that shows what NOT to eat re

celiac, I can't find one.

> I already cut out dairy.

>

> I don't know why I can't find find a LIST on a website somewhere.

>

> THANK YOU in advance.

>

> OR what else could it be??? I've had a hystero. My bladder seems

fine no symptoms. I am

> taking MiraLax to poop at all. (sorry). I am not eating very much,

yet I have not lost more

> than a few pounds.

>

> My husband can't find any non-gluten bread in the supermarket, or

crackers either. The

> gastro just says, eat more fiber, but that makes it hurt more!!!!!

>

> ARGGGGGHHHHH.

>

> Vicki from No Texas

>

[Guest guest]

This is the list I am using on what to

avoid. It also includes casein (dairy) products to avoid. I also avoid soy.

http://www.gfcfdiet.com/unacceptable.htm

Kim

From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of W5EAK

Sent: Monday, December 29, 2008

10:32 PM

To: Texas_Thyroid_Groups

Subject: Colon pain despite clean

tests

I keep having severe colon pain despite a clean colonoscopy (small area

of infection and

removed two polyps) and an EGD showed " some nflammmation. "

please somebody tell me a website that shows what NOT to eat re celiac, I can't

find one.

I already cut out dairy.

I don't know why I can't find find a LIST on a website somewhere.

THANK YOU in advance.

_,___

[Guest guest]

I am excited that McAlister's has a gluten free menu. My husband loves to eat there and has been grumbling about potentially losing his favorite places to eat if the tests are positive. Was the mexican food restaurant in Houston?

-

EMAILING FOR THE GREATER GOODJoin me> To: Texas_Thyroid_Groups > Date: Tue, 30 Dec 2008 13:48:57 +0000> Subject: Re: Colon pain despite clean tests> > The gluten free bread will be located in the refrigerated or frozen > section of the store. We eat rice bread. It is a small loaf. Any > health food store should have it. I know HEB carries it. If you have > a Whole Foods, Central Market or Sprouts near, they should carry gf > bread along with gluten free pastas and many other products. Most > of the crackers are just food grade cardboard IMHO.> > Bob's Red Mill also has wonderful gluten free flours, bread mixes and > a brownie mix that (we think) tastes much better than any gluten > laden brownie mix. Kroger carries some cake mixes that are gluten > free, I believe the name is CherryCreek Kitchens. > > Carol Fenster has some really good cookbooks. She lists hidden > sources of gluten in them. On the web, search for celiac or "gluten > free" and that should produce websites with information.> > Gluten can be in hidden in candies, medications, seasonings, salad > dressings, soy sauce, etc. > > Be careful not to cross contaminate. If you put a gluten free waffle > or bread in a toaster that you have put gluten bread in - you have > just cross contaminated the gluten free product - and it will make > you sick. If you dip a knife in mayo and slather it on a piece of > wheat bread and dip it in again for the other slice - there is no > way it is going on my gluten free bread because the mayo is > contaminated. This also goes for jellies, butter, etc.> > Outback Steakhouse, Chik-fil-A, McAlister's Deli and other > restaurants have gluten free menus and/or foods listed on their > websites. Most resturants have been very accomodating. > > On a recent trip to Houston - the waitstaff, managers and kitchen > staff were just wonderful no matter where we ate. A manager at one of > our favorite restaurants told me to ask for him any time we were > there and he would personally cook my meal to insure there was no > cross-contamination. It is a Mexican food restaurant and they dip > their corn tortillas in the same oil that flour tortillas are dipped > in - so it really pays to ask.> > Going gluten free has cut out 95% of my headaches and migraines, no > more IBS unless I get glutened accidently, and helped so many more > things. Every single joint in my daughter's body hurt and she was in > pain, her hands had started curling and tightening up and was very > weak, after less than two weeks gf - all pain was gone, no more > headaches, no more fuzzy vision, no more brain fog, it made it easier > for her to concentrate during schoolwork, not to mention no more > stomach aches. It took about 4 to 6 weeks for me to tell a > difference and actually it was my husband that noticed I was feeling > better. We don't miss anything because I find a gluten free > substitute. > > Hope this helps and sorry it's so long,> Tina > > > >> > please somebody tell me a website that shows what NOT to eat re > celiac, I can't find one. > > > > > I don't know why I can't find find a LIST on a website somewhere.> > > > > > > My husband can't find any non-gluten bread in the supermarket, or > crackers either. The > > > Vicki from No Texas> >> > > > ------------------------------------> >