Re: Vit B-12

[Guest guest]

Hi Cheryl,

Not me, except for a couple of times, something similar, just on one side...kind

of warmth, painful and radiating to and from groin . Maybe a nerve?

Other things to consider would be preservatives?

It can be compounded preservative-free.

Also, what kind do you use? There are 3...maybe try another one? I use

Hydroxy-form.

Other than that, I have heard of a few people with bad reactions.

BW,

Katrina

>

> Hi to all,

> I have been reading your posts about vit b-12 with interest. I am

> wondering if anyone has had any adverse effects from the injections?

> My doctor started me out on 1.0 every 2-3 days and my muscles in my

> legs and arms burned and were sore all day. I cut it way back and it

> still did it some but also gave me heart palpitations. I stopped it

> for awhile and just tried it again and started with a dose of .20 and

> had both side effects again. Since it was both legs burning and sore

> I don't think it had anything to do with where it was given. My

> doctor said he has never seen anyone this sensitive to it. I remember

> taking it a couple of times many years ago with no adverse effects. I

> am just curious if there are others that cannot tolerate it.

> Thank you,

> cheryl

>

[Guest guest]

Hi Cheryl, well I’m one who can’t tolerate B12 either…at any dose, it seems

<sigh>. I started getting shots from my alternative practitioner, .5 mg

(without and then with folic acid), only every 2 weeks,…all was well at

first, I was getting some mild benefit, but after a couple of months I

started getting a kind of global inflammatory response, especially the

brain…and I had to stop <sigh>.

Many years ago, I did try Gamma Globulin by injection, and it also helped me

a LOT, but I developed an allergic reaction to the preservative in it (pain

& burning at the injection site and then an extreme hyperness from which I’d

crash)…and, as there was none around that was preservative free (it had all

been shipped to Gulf War 1), I had to stop it.

But the B12 was pure, no preservatives, so there you go. You may want to see

if there is any preservative in your shots, and if that’s not it, you may be

outta luck…like me. Anybody else with this experience? TC, Aylwin xox

[Guest guest]

Cheryl,

could it be the additives that give you problems? I think there is

some dye in the medicine (?) and I know there is a small amt of

aluminum. I have seen on this list where people talk about getting a

form of injectable B12 w/o any additives. Though, I dont know if that

would make up risk it again or not.

Can you take the sublingual tabs? Or does that also give you the same

reaction?

Good luck!

Donna

>

> Hi to all,

> I have been reading your posts about vit b-12 with interest. I am

> wondering if anyone has had any adverse effects from the injections?

> My doctor started me out on 1.0 every 2-3 days and my muscles in my

> legs and arms burned and were sore all day. I cut it way back and it

> still did it some but also gave me heart palpitations. I stopped it

> for awhile and just tried it again and started with a dose of .20 and

> had both side effects again. Since it was both legs burning and sore

> I don't think it had anything to do with where it was given. My

> doctor said he has never seen anyone this sensitive to it. I remember

> taking it a couple of times many years ago with no adverse effects. I

> am just curious if there are others that cannot tolerate it.

> Thank you,

> cheryl

>

[Guest guest]

Hi Di,

I just had my first b12 shot this month, i was told i

would feel more energery within the first few days. I

don't feel any different can any here tell me how long

it is till the shots go in effect.

Diane

[Guest guest]

Up until I started giving myself B-12 injections, I had a thing

about injections. Couldn't even watch somebody giving me one. But now

my top priority is getting well - that makes a big difference. Having

been bedridden for a decade, I couldn't stand the thought of more of

the same - it is a living death, in my opinion. For me, there is

absolutely nothing more important then getting well; though obviously

not everyone feels that way. So I bit the bullet. I gave myself B-12

shots twice a week for a couple of years - only the cheap less

effective kind of B-12 though, Cyanocobalamin. Then I started seeing

a very good doctor whom wrote a perscription for me. I now give

myself B-12 3 times a week and have been for over 2 years. I use

Methylcobalamin which has no preservatives, fillers nor additives -

or as you would say 'inactive' ingredients. I also have Mulitiple

Chemical Sensitivities as well as M.E. and react to many fillers etc.

Even magnesium stearate which you will find not only in your drugs

but in most supplements - but not all. This is a trans-fat and may

only be a little in each tablet and/or capsule but how many of those

do you take a day and a month and a year? It really adds up and trans-

fats will only make you sicker.

Beware of Additives in Supplements

Stearates – Hydrogenated Fats Used in the Production of Most

Supplements– Decrease Absorption and May Be Toxic and

Immunosuppressive by Ron Schmid, N.D., ©2003 Magnesium stearate,

stearic acid and ascorbyl palmitate, made by hydrogenating cottonseed

or palm oil, are used throughout the supplements industry as

lubricants. They are added to the raw materials in supplements so

that production machinery will run at maximum speeds. These fatty

substances coat every particle of the nutrients, so the particles

will flow rapidly.

http://www.drrons.com/beware-additives.htm

Dietary Supplements:

What the Industry does NOT want you to know

http://www.westonaprice.org/healthissues/supplements.html

http://www.drrons.com/supplements-industry.htm

By Ron Schmid, ND

Why We Use Absolutely No Additives

Stearates found in supplements are hydrogenated fats such as

magnesium stearate, stearic acid and ascorbyl palmitate. They are

added to the raw materials so that machinery will run at maximum

speeds.Stearates coat every particle of the nutrients, so the

particles will flow rapidly. This has pictures showing how

supplements coated with magnesium stearate don't dissolve.

http://www.drrons.com/why-no-additives.htm

I don't know what Hydroxocobalamin is like; never tried it.

Now, lets see Dr Cheney's protocol that he puts his patients on,

which is very successful if you ask his patients, also has B-12 as

part of the protocol,only I think you have to inject yourself

everyday. And then I know that Dr Rea, Dr G Zeim, Dr J Armstrong, Dr

Matin Pall, and a whole host of others internationally well known

doctors use a protocol that uses B-12 frequently. I wonder if all of

those doctors with deserved reputations & piles of experiance for

getting people healthier could be all wrong?

blessings

Shan

It is not hard giving one an injection so it will not cause any

harm. It is only a matter of getting somebody to show you how -

crossig the street is dangerous if you don't know how.

[Guest guest]

Diane,

?Just from listening to other peoples' posts it seems that response time varies.

For me, I start feeling some effects in a few hours, but I really notice the

effects the day after or the second day after the shot. Bearing in mind I give

them to myself right before bed (b-12 makes it harder to sleep for me), which is

around 2 am, I would say I feel the full effects 12-36 hours later. I inject 3

cc once a week, though the effects only last for about 5 days. When I was

traveling in Australia this was the only thing that I think got me through. I

averaged about 0-3 hours of sleep a night because we kept changing hostels and I

can't sleep in strange beds. I got a cold that lasted for the last 3 weeks of

the trip. The only thing that allowed me to more or less keep up with my friends

every day was injecting 1cc of b-12 every other day. It's one of the rare

treatments that I've found to be effective, no matter how long I've been on it.

I wish it could help everyone here.

Alia

[Guest guest]

Once you FEEL so much better from the injection, I think it becomes a LOT

easier! I’m speaking, for myself, of back when I did Gamma Globulin shots

(big needle too!) and they helped me so much. But. Like you, Shan, I am MCS

too and reacted to the preservative <sigh>, so I had to stop it. And none

was available at that time that was preservative free, it had all been

shipped off to Gulf War 1. But unfortunately, after several months of the

high grade B12 you describe, I developed an inflammatory response to the

shots. So, that’s on hold for me, for now. Things are complicated by the

fact that I have a non-candida, fungal co-infection that has affected my

brain and other aspects, and I am now doing and extended homeopathic regimen

to get it out of me. I’m Herxing like crazy (but well-supported with

anti-inflammatory herbs etc.), which means it really must be working!

Who doesn’t want to get well? I had a bit of a reaction to you saying that,

to me it’s just that folks have different opinions about how to go about it,

and some have more resources than others to pursue “the cure”. In my 21-1/2

years’ experience with ME, (and ran support groups and counseled thousands,

never met ONE who didn’t want to get better) I’ve been all around the

alternative as well as mainstream perspectives, and tried just about

everything! I know there’s no “magic bullet”, and different combos of

therapies work for different people. And, there’s a lot of BS out there too.

I have excellent holistic support from a genius of an alt. practitioner

(multimodal, though originally a DCM), which has helped me so much with

certain aspects, the allergies and a lot of the MCS too, I no longer have

IBS (hooray!) and we’ve experimented until we found a way to reduce my pain

by about 70%, and now we are doing this antifungal regimen, but overall I’m

quite low on the functional scale…about 20-30%, sounds like you were

similar. How are you these days?

I’m really hoping that this antifungal treatment helps, because before that

I was 30-60% and could have some kind of life. I’m not completely bedridden

but you know…I sure would like to get some function back! I’ve also decided

at last to go and see Dr. Hyde in Ottawa, if he will have me, I’m sending

off the app now. To me he is the absolute BEST. I seem to be feeling chatty

but I’d best sign off for now, TC Shan, Aylwin xox