Bumped up!

[Guest guest]

I have a funny story that I wanted to share. My soon to be six year

old Tanner has oral -verbal apraxia, hypotonia and sensory issues.

He's doing amazing with all the traditional and newer therapies,

however even though he's speaking in full complete sentences now and

doing so incredible it makes me scream and jump up and down with joy

inside -at times he struggles with certain words or sounds, or at

times he is dysfluent - what we call " bumpy " -especially when he's

tired. So that's how we know what's working for him now -instead of

saying he's talking great, we say " Wow -you are really smooth

today! " and he knows that means his speech is perfect.

Yesterday, Tanner was talking to Daddy on my cell phone. I heard him

say louder and louder " Daddy? Daddy you there Daddy? You hear me

Daddy?! " " so I said " Let me see the phone " and sure enough it had

lost signal. So I explained to Tanner how there are signals that

travel through the air that come from various poles that are set up -

and these signals then travel into this cell phone and that's how he

can talk to Daddy. I then explained how sometimes there is something

in the way of the signal (I clapped my hands together) so the signal

can't go through that way -we need to find a way for it to work -so

we move where we are standing -and work around it -and then the

signal can come through and you can talk to Daddy again. Thinking

about what I just said and what it reminded me of -I added -that's

just like what happens to you when you talk sometimes. Your brain

sends the signal to your mouth -and sometimes (I clapped my hands

together again) something blocks it. But you move around and work

around it and then you can talk!

So once back on the phone with Daddy again. Tanner said " Daddy I was

talking to you and you " bumped " up. "

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[Guest guest]

,

I loved your analogy to Tanner.

I have been wondering for some time what hypotonia was and just

did a search for it's definition... my daughter has moderate

verbal apraxia, sensory issues, and low tone in her arms and face.

She is btw receiving ot 1/wk and speech (when school is in

session 3X/wk). (and will be 4 Jul 31)

Anyway, the term hypotonia has never been used as a diagnosis

with us, but i wonder after reading the definition.. should i

ask my ped. or ot? Just curious.

My daughter started the Pro EFA with MAJOR backing from her ped.

and i have been trying to understand all of the carnosine information.

You all started way over my head :-) it took me several posts to

understand more of what it is, what it is used for.. etc. so

i am still studying that with you all.

BTW, Abigail is adopted with a CP birth mom. She has an amazing story!

Thanks to all of you on this site... i am really learing a lot. Her therapy

started a few months before 3, but she was just recently received the

diagnosis with

verbal apraxia.

Thanks for all you do!