Re: Intro: 30 month old daughter w/Hypotonia & speech delay.........

[Guest guest]

If your neuro put in a referral to your insurance stating apraxia

and hypotonia you might get approved for services through civilian

therapists. my doctors tried apraxia but insurance denied. so now we

are trying apraxia and hypotonia. My 24 mo daughter has apraxia,

hypotonia, and SI issues also. We are fortunate to have a civilian

therapist (through the state because the state was full and referred

us out) and she is trained in treating apraxia. But the state wants

to pull us back now because of availability. We are fighting to

stay. Do you have insurance that your neuro can put in a referral?

Traci mom to Kennedy 2.0 and Hunter 4.6

--- In @y..., " bargainmomof2 " <Momof2girls@c...>

wrote:

> My daughter is almost 30 months old and only has a diagnosis

of

> Hypotonia with speech delay. It's frustrating as no one seems to

be

> willing to go any further with a diagnosis. She does see a

> neurologist every 6 months (next appointment is on Monday). Her

> Hypotonia is very misunderstood as the therapists do not seem real

> familiar with it. From what I have read online both DSI and

Apraxia

> are common amongst Hypotonic children (and I feel she might have

> both). My daughter has no consistant words. She does spout out a

> word on occasion (at the correct time), but every time I get

excited,

> I then see that I am either never going to hear it again, or hear

it

> only sporadically. The SLP at the center where my daughter goes

is

> not experienced with Apraxia. She doesn't think has it, but

> has used no tools to make this assumption. can pronounce

some

> single words clearly (though she does not use them consistantly),

but

> when she strings them together such as in the Barney " I love you "

> song, they become a garbled mess...that I only understand as she

has

> the tune down of that song very well. As she has Hypotonia (low

> muscle tone), that very well could also be playing a part in her

> delay. I have yet to find someone in our area that is familiar

with

> speech delayed children that also have Hypotonia and DSI. My

> daughter's sensory issues consist of toe walking (though she can

come

> down when reminded), drooling, mouthing objects, sometimes

appearing

> deaf (though this has approved). She has had an ABR test earlier

> this month and her hearing is fine. So far her Neurologist will

only

> commit to a diagnosis of Hypotonia (this is genetic as my father-

in-

> law & brother-in-law had it) and a speech delay. He did rule out

> Autism though. As a lot of Hyptonia, DSI, & Apraxia symptoms can

be

> simular to autism, I am forever having to listen to people suggest

> that she might have it. I would love to get her evaluated for DSI

&

> Verbal Apraxia, but the EI (Regional Center) seems reluctant to

give

> her any more. She'll be 3 in December, but I am wondering if the

> school district will be any easier without a formal

diagnosis.....

>

> I have had her on ProEFA for a month now (2 a day) as well as 1

DMG

> tablet a day too. I had bursts of new words with both initially,

but

> it seems to have reached a plateau with nothing new recently.

>

> I am always looking for advice, information, suggestions as well

as

> referrals to SLP's and Parent Advocates in the Orange County, CA

> (we're in South OC) area. Thank you for reading this far.

>

> Jill - Mom to (almost 30 months) with Hypotonia & speech

delay

[Guest guest]

I need to know the neurological term for Apraxia as the last time I

mentioned apraxia to my daughter's neurologist he scoffed and

said " that is a therapist's term " . At the time, I didn't know much

about Apraxia to want to persue it, but now that I think my daughter

might have that, I want to press him further.

I'll have to work through the Early Intervention and then the school

district as our health insurance is through a HMO (Healthnet), so I

don't believe therapy would be covered through them. We are already

paying out of pocket for 's Hippotherapy (horse)at $60 a 1/2

hour session. I figure though if I could get the neurologist to

state that she has apraxia (motor speech disorder?) etc., that maybe

getting services through the school district (or EI) will be easier.

Jill

> If your neuro put in a referral to your insurance stating apraxia

> and hypotonia you might get approved for services through civilian

> therapists. my doctors tried apraxia but insurance denied. so now

we

> are trying apraxia and hypotonia. My 24 mo daughter has apraxia,

> hypotonia, and SI issues also. We are fortunate to have a civilian

> therapist (through the state because the state was full and

referred

> us out) and she is trained in treating apraxia. But the state wants

> to pull us back now because of availability. We are fighting to

> stay. Do you have insurance that your neuro can put in a referral?

>

> Traci mom to Kennedy 2.0 and Hunter 4.6

>

[Guest guest]

I'm surprised as apraxia falls under the neurological code section

for insurance purposes. Has she been evaluated by Early Intervention

yet? Perhaps they can help point you in the direction of a

neurologist or developmental ped. who is familar with apraxia.

Sadly, some doctors don't know what apraxia is. When I told my son's

pediatrician who also told me " don't worry he'll talk at 3 " he just

said OK and that was the end of our conversation. It still amazes me

that doctors and even our own families think our children will turn 3

and miraculously talk!

> > If your neuro put in a referral to your insurance stating apraxia

> > and hypotonia you might get approved for services through

civilian

> > therapists. my doctors tried apraxia but insurance denied. so now

> we

> > are trying apraxia and hypotonia. My 24 mo daughter has apraxia,

> > hypotonia, and SI issues also. We are fortunate to have a

civilian

> > therapist (through the state because the state was full and

> referred

> > us out) and she is trained in treating apraxia. But the state

wants

> > to pull us back now because of availability. We are fighting to

> > stay. Do you have insurance that your neuro can put in a

referral?

> >

> > Traci mom to Kennedy 2.0 and Hunter 4.6

> >