apraxia and prematurity and/or CP

[Guest guest]

I saw that a few children have CP and apraxia. I am wondering if there is a

relationship between prematurity and apraxia. I ask because was a 33

week preemie (going only by an ultrasound at 10 weeks that measured her

growth..I thought she was older but that is a different story). She has

microcephaly and many other " smaller " dxs but as far as bone studies, CAT,

MRI, FISH, urine testing, more bloodwork, and most recently a swallow study

she appears to have no problems. But, she is delayed in all areas of

development (way more than a " normal " preemie). She just started walking

week before last (THANK GOD)! Her fine motor skills are getting better,

hampered by her fingers that are contacted and she has a hard time rotating

her wrists up and down. But then she needed glasses and just got them about

a month or so ago after I finally found a doctor that listened to me (she

could not see up close and had double vision)!! Her reflexes are " brisk "

and the neuro always stood by and said she had CP and poo poos apraxia.

He's like well if she has CP then she is at risk for apraxic like symptoms.

Well, back to her speech stuff. She never said anything...the " serious "

baby until she was well over 11 months old. She never smiled either until

18-19 months and it is more of a horizontal smile but a cute one

nonetheless! She says sounds now. Like if you say fish, she says shhhh.

Or good girl she say g g g. But every once in a while she says the words

sort of clear but can never repeat it. She really won't say words " on

command " . In fact when she says things it is when no one is really watching

or listening and then we all go did you hear that?? She just started this

babbling thing ..blah blah ggg etc. ..when she walks so I am encouraged. It

is almost like she talks with her tongue flat. But you know what is weird,

when you get out bubbles she purses her lips and blows but cannot do

whistles or blow actual bubbles. Selective muscle control?? We had a

swallow study done last week, she still is not eating lumpy foods...still on

baby food and pedisure...but swallows normally. In fact, they saw no

reflux either..that's good. But she pockets her food in her mouth by her

cheeks and teeth. She does not really chew. She does have sensory issues.

She started wiping her mouth a few months ago with her arm but she cannot

lick her lips yet she can stick her tongue out when she plays. (She hates

to eat....food is definitely not a motivator, even candy)

I am just at a loss at what is happening to her. She can't seem to do

patty cake or those word songs with her body and she does not point to what

she wants or attempt to do sign. At least she will shake her head yes or no

and she does seem to understand what you say or sign to her. She gets so

frustrated. She will just look at you if you ask to to bring something to

you or point to her body parts but she has come over to me and touched

mine..ex:where is your nose and she touches mine.

Okay, there was a point to this but I have lost my train of thought between

, Snoopy (the beagle) and my hubby showing me the GI Joe that he found

for his collection.. LOL! It was much longer than I intended, but basically

is there even a correlation between prematurity and apraxia or could it be

possible that she has mild CP (my son born at 32 weeks has mild CP and he

has totally different issues) and apraxia? Not that it matters really, but I

am just curious about other children.

Seriously needing my second cup of coffee,

PS. has been getting PT, OT, and Speech once a week since she was 8

months old. She has seen all of the specialists and now is on a see every 6

months basis for them.

[Guest guest]

Hi ,

I am Mom to Identical twins born at 28 to 30 weeks depending on

which DOC you listen to....I am curious about your DD as we have many of the

same issues...how old is she now...you said she had just started to walk...we

started to walk at 2 years corrected age exactly!!! We are getting close to 3

years and still have no speech and very limited sounds....we also have

contractures of the hands....although not from CP...we were born with

them...they are congenitla...but we also have trouble with signs and simple

things....is she being splinted at night for her hands??? I know that we

splinted for 2 years!!!! lol

We have global delays as well....and fine motor is really bad...but we also

have cognitive delays...the boys do not understands much of what we say

yet...they are running at about a 9 month old level there.....I would be

interested in talking more....please feel free to email me at

crooksbums@...

if you want to talk privately!

Love and hugs,

,

Mom to Aidan & Devlin, 28 weekers, now 2 years, IUGR , TTTS, Apnea

(resolved), Bradycardia (resolved), ROP (resolved), pulmonary Stenosis,

Atrial Septal Defects, intrahepatic portal shunt (liver now resolved),

delayed in every area ( global delays), speech delays...now looking into

apraxia......and taking EFA's (ProEfa- Nordic Naturals)

But HAPPY, BEAUTIFUL baby boys.....a constant inspiration and source of joy

to their parents.

[Guest guest]

How old is right now? Traci

> I saw that a few children have CP and apraxia. I am wondering if

there is a

> relationship between prematurity and apraxia. I ask because

was a 33

> week preemie (going only by an ultrasound at 10 weeks that

measured her

> growth..I thought she was older but that is a different story).

She has

> microcephaly and many other " smaller " dxs but as far as bone

studies, CAT,

> MRI, FISH, urine testing, more bloodwork, and most recently a

swallow study

> she appears to have no problems. But, she is delayed in all areas

of

> development (way more than a " normal " preemie). She just started

walking

> week before last (THANK GOD)! Her fine motor skills are getting

better,

> hampered by her fingers that are contacted and she has a hard time

rotating

> her wrists up and down. But then she needed glasses and just got

them about

> a month or so ago after I finally found a doctor that listened to

me (she

> could not see up close and had double vision)!! Her reflexes

are " brisk "

> and the neuro always stood by and said she had CP and poo poos

apraxia.

> He's like well if she has CP then she is at risk for apraxic like

symptoms.

>

> Well, back to her speech stuff. She never said

anything...the " serious "

> baby until she was well over 11 months old. She never smiled

either until

> 18-19 months and it is more of a horizontal smile but a cute one

> nonetheless! She says sounds now. Like if you say fish, she says

shhhh.

> Or good girl she say g g g. But every once in a while she says

the words

> sort of clear but can never repeat it. She really won't say

words " on

> command " . In fact when she says things it is when no one is really

watching

> or listening and then we all go did you hear that?? She just

started this

> babbling thing ..blah blah ggg etc. ..when she walks so I am

encouraged. It

> is almost like she talks with her tongue flat. But you know what

is weird,

> when you get out bubbles she purses her lips and blows but cannot

do

> whistles or blow actual bubbles. Selective muscle control?? We

had a

> swallow study done last week, she still is not eating lumpy

foods...still on

> baby food and pedisure...but swallows normally. In fact, they

saw no

> reflux either..that's good. But she pockets her food in her mouth

by her

> cheeks and teeth. She does not really chew. She does have

sensory issues.

> She started wiping her mouth a few months ago with her arm but she

cannot

> lick her lips yet she can stick her tongue out when she plays.

(She hates

> to eat....food is definitely not a motivator, even candy)

>

> I am just at a loss at what is happening to her. She can't seem

to do

> patty cake or those word songs with her body and she does not

point to what

> she wants or attempt to do sign. At least she will shake her head

yes or no

> and she does seem to understand what you say or sign to her. She

gets so

> frustrated. She will just look at you if you ask to to bring

something to

> you or point to her body parts but she has come over to me and

touched

> mine..ex:where is your nose and she touches mine.

>

> Okay, there was a point to this but I have lost my train of

thought between

> , Snoopy (the beagle) and my hubby showing me the GI Joe that

he found

> for his collection.. LOL! It was much longer than I intended, but

basically

> is there even a correlation between prematurity and apraxia or

could it be

> possible that she has mild CP (my son born at 32 weeks has mild CP

and he

> has totally different issues) and apraxia? Not that it matters

really, but I

> am just curious about other children.

>

> Seriously needing my second cup of coffee,

>

>

>

>

> PS. has been getting PT, OT, and Speech once a week since

she was 8

> months old. She has seen all of the specialists and now is on a

see every 6

> months basis for them.

[Guest guest]

, may i ask you how these things were resolved? I'm especially

interested in the ROP. Maybe I'm missing what you mean by resolved. Have they

resolved because of proEFA or just development? How long have you been on the

proEFA?

TIA

Lynn

,

Mom to Aidan & Devlin, 28 weekers, now 2 years, IUGR , TTTS, Apnea

(resolved), Bradycardia (resolved), ROP (resolved), pulmonary Stenosis,

Atrial Septal Defects, intrahepatic portal shunt (liver now resolved),

delayed in every area ( global delays), speech delays...now looking into

apraxia......and taking EFA's (ProEfa- Nordic Naturals)

But HAPPY, BEAUTIFUL baby boys.....a constant inspiration and source of joy

to their parents.

[Guest guest]

Hi Lynn,

By resolved I do mean that they are gone!!!!

ROP well both my guys outgrew any problems that they may have had there....we

are far-sighted though....everything else they had that is resolved they

outgrew......Non of the things in my signature are related to the

ProEfa....but we have been taking it for about 6 weeks now and have seen

wonderful changes !!! The boys have started to slowly babble, to take us

where they want us to go...they take our hand....we have beginning stages of

pointing....they make clear choices, they are riding toy cars, they are

starting to pretend play with dolls.....they are noweating at a table and

chairs...when they are hungry or thirsty they take me to the table and they

sit down...no more boosters with straps!!! Aidans coordination has greatly

improved...he falls less often , they are starting to eat with forks!!!

Yeah!!! There have been so many changes....small ones that I cannot even name

them all....we are definately believers!!!!

If you have any more questions...please email me again!

Love and Hugs,

,

Mom to Aidan & Devlin, 28 weekers, now 2 years, IUGR , TTTS, Apnea

(resolved), Bradycardia (resolved), ROP (resolved), pulmonary Stenosis,

Atrial Septal Defects, intrahepatic portal shunt (liver now resolved),

delayed in every area ( global delays), speech delays...now looking into

apraxia......and taking EFA's (ProEfa- Nordic Naturals)

But HAPPY, BEAUTIFUL baby boys.....a constant inspiration and source of joy

to their parents.

[Guest guest]

Traci....

Oooops! is 21 months almost 22 months old now. That's why we were

beginning to sweat if she was going to walk or not on her own before two.

Subject: apraxia and prematurity and/or CP

I saw that a few children have CP and apraxia. I am wondering if there is a

relationship between prematurity and apraxia. I ask because was a 33

week preemie (going only by an ultrasound at 10 weeks that measured her

growth..I thought she was older but that is a different story). She has

microcephaly and many other " smaller " dxs but as far as bone studies, CAT,

MRI, FISH, urine testing, more bloodwork, and most recently a swallow study

she appears to have no problems. But, she is delayed in all areas of

development (way more than a " normal " preemie). She just started walking

week before last (THANK GOD)! Her fine motor skills are getting better,

hampered by her fingers that are contacted and she has a hard time rotating

her wrists up and down. But then she needed glasses and just got them about

a month or so ago after I finally found a doctor that listened to me (she

could not see up close and had double vision)!! Her reflexes are " brisk "

and the neuro always stood by and said she had CP and poo poos apraxia.

He's like well if she has CP then she is at risk for apraxic like symptoms.

Well, back to her speech stuff. She never said anything...the " serious "

baby until she was well over 11 months old. She never smiled either until

18-19 months and it is more of a horizontal smile but a cute one

nonetheless! She says sounds now. Like if you say fish, she says shhhh.

Or good girl she say g g g. But every once in a while she says the words

sort of clear but can never repeat it. She really won't say words " on

command " . In fact when she says things it is when no one is really watching

or listening and then we all go did you hear that?? She just started this

babbling thing ..blah blah ggg etc. ..when she walks so I am encouraged. It

is almost like she talks with her tongue flat. But you know what is weird,

when you get out bubbles she purses her lips and blows but cannot do

whistles or blow actual bubbles. Selective muscle control?? We had a

swallow study done last week, she still is not eating lumpy foods...still on

baby food and pedisure...but swallows normally. In fact, they saw no

reflux either..that's good. But she pockets her food in her mouth by her

cheeks and teeth. She does not really chew. She does have sensory issues.

She started wiping her mouth a few months ago with her arm but she cannot

lick her lips yet she can stick her tongue out when she plays. (She hates

to eat....food is definitely not a motivator, even candy)

I am just at a loss at what is happening to her. She can't seem to do

patty cake or those word songs with her body and she does not point to what

she wants or attempt to do sign. At least she will shake her head yes or no

and she does seem to understand what you say or sign to her. She gets so

frustrated. She will just look at you if you ask to to bring something to

you or point to her body parts but she has come over to me and touched

mine..ex:where is your nose and she touches mine.

Okay, there was a point to this but I have lost my train of thought between

, Snoopy (the beagle) and my hubby showing me the GI Joe that he found

for his collection.. LOL! It was much longer than I intended, but basically

is there even a correlation between prematurity and apraxia or could it be

possible that she has mild CP (my son born at 32 weeks has mild CP and he

has totally different issues) and apraxia? Not that it matters really, but I

am just curious about other children.

Seriously needing my second cup of coffee,

PS. has been getting PT, OT, and Speech once a week since she was 8

months old. She has seen all of the specialists and now is on a see every 6

months basis for them.

[Guest guest]

Wonderful! That is so exciting!

We are seeing absolutely amazing things here. I will try to do an update on our

first week on EFA's tomorrow. Austin has been doing amazing things. He has said

more words the last few days than he has in months. He's excited. The biggest

thing I'm seeing is that he's *with us* now. It's like he's been locked away in

his head and now he is here with us!

I promise more information later.

Lynn

Re: [ ] apraxia and prematurity and/or CP

Hi Lynn,

ProEfa....but we have been taking it for about 6 weeks now and have seen

wonderful changes !!! The boys have started to slowly babble, to take us

where they want us to go...they take our hand....we have beginning stages of

pointing....they make clear choices, they are riding toy cars, they are

starting to pretend play with dolls.....they are noweating at a table and

chairs...when they are hungry or thirsty they take me to the table and they

sit down...no more boosters with straps!!! Aidans coordination has greatly

improved...he falls less often , they are starting to eat with forks!!!

!

Love and Hugs,

,