pro-efa

[Guest guest]

It is quite discouraging to me to read all the wonderful success stories and

improvements of children on pro-efa. I tried my son on it for 3 months, first

six weeks with one a day and then two a day, with absolutely no changes except

for a severe ear infection which perforated his ear drum (highly unusual for him

to have any ear infection, which is why I noticed it) and a complete clearing of

his excema symptoms (for which I was grateful). My son weighs 80 lbs (75 at the

time) and will be seven next month (6 1/4 at the time of trying) and is

diagnosed with hypotonia, global apraxia and sensory integration dysfunction. I

know this listserve is mainly for speech and language part of apraxia, which my

son does have problems with, but it seems as though his limb or all motor

movements are effected it a more severe way than the speech and language

specifically. HAS ANYONE WHOSE CHILD HAS LIMB OR GLOBAL APRAXIA HAD SUCCESS

WITH ANY SUPPLEMENTS??? During a team evaluation this month at UNH my child

was found to be almost 1 1/2 YEARS delayed in motor!!!! This is after SIX years

of occupational and physical therapy!! Thanks for any input, Carol

[Guest guest]

----- Original Message -----

. HAS ANYONE WHOSE CHILD HAS LIMB OR GLOBAL APRAXIA HAD SUCCESS WITH ANY

SUPPLEMENTS???

My son is 3 years old and diagnosed oral and limb apraxia. We have had him on

Efalex and then Pro EFA for a total of 4 months. Our OT noticed within the

first week a change in his motor planning, improvements with coloring, crayon

holding, feeding self with fork and spoon, using the scooter board across the

floor, etc. So yes, we have seen the biggest changed with his limb apraxia. He

just made his first REAL sound this past week and it was Ba and he continues to

do this. At ST today he made the P, B and M sounds and the therapist was very

impressed.

Daphne

Mom to 3 boys

[Guest guest]

Yes, within a month of starting EFA with my daughter she began to walk across

balance beams on the playground AND alternate feet going both up and down stairs

(though I still have to hang on to her in case her leg(s) give out). She is

also climbing " rock walls " at the school playground. She'd never dare to try

that stuff before and now it's like she is craving it and intentionally seeking

this stuff out.

Tammy

Re: [ ] pro-efa

----- Original Message -----

. HAS ANYONE WHOSE CHILD HAS LIMB OR GLOBAL APRAXIA HAD SUCCESS WITH ANY

SUPPLEMENTS???

My son is 3 years old and diagnosed oral and limb apraxia. We have had him on

Efalex and then Pro EFA for a total of 4 months. Our OT noticed within the

first week a change in his motor planning, improvements with coloring, crayon

holding, feeding self with fork and spoon, using the scooter board across the

floor, etc. So yes, we have seen the biggest changed with his limb apraxia. He

just made his first REAL sound this past week and it was Ba and he continues to

do this. At ST today he made the P, B and M sounds and the therapist was very

impressed.

Daphne

Mom to 3 boys

[Guest guest]

Hello to all. I have to believe that, like every other natural substance

and/or medication, that Pro-EFA will work for some of our kids, but not for all.

Every child's problems are unique in that individual-- no two kids can

possibly have exactly the same brain, body, or environment. We also have to

consider the possibility that apraxia may be multifactorial (have more than one

cause), and, therefore, sometimes (perhaps the majority) respond to Pro-EFA, but

not always (one might expect that the inherently complex nervous system may

require different supplements/meds in different individuals). That having been

said, I am awaiting the response of my 2.6 yo preverbal child's response to

Pro-EFA (he is now showing increased verbalizations, word approximations, and

interest in learning words after 2 months of Pro-EFA, and has been evaluated as

possibly apraxic with receptive delay). Jen (PS-- Marina, if you are reading

this post, thanks again for your help. Your email has been clogged for the

past week! You busy woman, you!)