Re: pdd question? INFO RE D.A.N.

[Guest guest]

Hi Jeanne,

Apologies again for yesterday !

Anyway ,

Re the gluten /casein issue . Everything I wrote I do actually

believe - that your child is feeding an addiction rather than a

hunger and that he will not ever extend his diet unless you challenge

his craving. However I can off as unsympathetic when I am not . Quite

truly my sons diet was almost exactly the same as your sons ( except

he also had an excessive thirst and drank gallons of diluted apple

juice each day ). Removing even one of these foods seems so scarey

and if your child is underweight too ..... ( however it does speak to

his craving being nothing to do with hunger and something else

driving his eating habits - you don't see many overweight heroin

addicts!!!).

Anyway ..re chelation . It is true I have only really encountered

ythis as being part of a structured biomedical response to autism

where chelation is about step twelvev rather than step one - but I

know the science on this is changing all the time and maybe someone

is doing this now .

I will happily send you details of a USA based discussion group who

are all trying this - but I will do that off the board if you don't

mind ( I do get criticised for trying to ensnare you unwitting

innocents with my outlandish ideas and, as even I consider chelation

a little radical I don't want anyone thinking they'll just give it a

little try !)

I would also suggest that in your circumstances you may want to check

out the ARI site ( Autism Research Institute ) . It is part of the

Defeat Autism Now organisation and uses specialists in this area (

such as DR Rimland ) to work out and review specific protocols for

working through all biomedical intereventions for children with

autism . They have a list of Doctors who understand and support the

protocol and who can arrange appropriate testing etc as well as

directing a regime of supplements etc for you . The site is

www.autism.com ( The Doctors list is at www.autism.com/ari/danlist).

I think you will be surprised that there are so many reputable ,

regular Doctors who are open to this , who see that the climbing

figures and this new manifestation of autism/PDD have nothing to do

with Kanner and everything to do with disturbed gut function. As with

everything else though try and check that you are confident with any

particular Doctor ( a good sound medical education does not mean that

any particular practitioner has kept him/herself up to date - or is

thorough , professional or even has good people skills !! And the DAN

list is adjusted yearly but ....always worth checking !!). One way to

do this may be to go to a discuassion board like group GFCFkids

where you may find recommendations for good DAN practitioners in your

area . If you want the chelation site that may also be a good place

to double check for recommendations.

I hope this is of some help and makes up for my curt reply

yesterday !!

Regards

Deborah

PS the small child crisis was a HUGE reaction to some gluten eaten

in the form of some birthday cake on Sunday ! He is being very

difficult and displaying behaviours I haven't seen for months (

looking sideways at the TV and waggling his fingers just within his

peripheral vision . He is denmanding foods he hasn't had for months

and this morning I am awake at 5.00 am as the diarroeha has just

started .....Good morning everyone !!

-- In @y..., jbmistletoe@a... wrote:

> hi all,

> my youngest son josh, is diagnosed with pdd. After I sent the

information

> about the autism article someone posted about the metals in the

child's

> system.

> I have read from the digest that chelatin, was used to take out

the metal

> toxins from the child's system, do any of you know alot about and

are using

> this method? I am also looking in to the amino acid supplement

carnosine.

> Because josh's very limited diet, cheerios,cheese, yogurt, bread

and butter,

> peanut butter and jelly, he is very picky and won't try new things

or eat

> vegtables. I don't want to put him on a glutin free casin free

diet, he is

> only 31 pounds, afraid of any changes he will loose weight, and not

eat at

> all. I am seeing Dr. Agin tomorrow for a re-eval. He also has

exzema and

> allergies. He was on zyrtec but was asked to take him off because

he is using

> a topic ointment anti imflamatory for his exzema. Any imput would

help.

> Thanks .

> jeanne buesser

> president, apraxia network of bergen county

> outreach coordinator of cherab

> www.apraxia.cc

>

>

>