Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 When I found out we were going to do an EEG on my 24 mo daughter (it is tomorrow) I stopped the proefa. But, Dr Laveman reassured me the proefa would make no difference in her EEG and I just finished reading the lcp solution, so I was pumped up to get her back on the proefa. Initially, she was on it for 3 weeks. In the 1st week we saw some changes, but then nothing the next 2 weeks. (I think it is also important to note she was also sick during these 2 weeks - does being sick work against you?) During the week we stopped the proefa she was not sick and did not regress. When I put her back on the proefa within 24 hours she was moving her tongue back and forth on her lips and up and down and making the " o " sound. She also brought me a rock and said " ock " . She has been running all around with minimal falling (usually we fall every few steps). My husband has been away on business for the past 2 weeks and he said she is a different person now. He swears by these pills and my husband said " there is no magic pill " when I wanted to start the proefa. I even convinced him to take them and guess what he just had his 1st normal blood pressure reading in years. (do they lower blood pressure?) So I guess my ? would be when I see a drop off in progression should I take her off the pills and then put her back on hoping for a new surge? Has anyone ever done this or do you just increase dosage? I'm a little worried about increasing dosage because she is only 2.0 and only weighs 21 pounds. She is very little. But according to Dr Stordy's book, she should have 240 mg of DHA a day and right now she only gets 99 mg. The book seems to focus on older children though. Thanks! Traci mom to Kennedy 2.0 and Hunter 4.6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Good question Traci! -unfortunately nobody knows the answer for sure. Dr. Stordy http://www.drstordy.com answered this to our group (it's in the archives) that she believes that the fatty " stores " in the brain get depleted when off, and then go back to where they would have been if you just left them on when put back on. I also heard the brain is like a sponge like that -the stores takes time to build up and takes time to deplete. (and yes they say it takes up to three months to " work " -but most of us see changes with EFAs in a few days to three weeks -with here or there four or five weeks) Again -if you blot off the oil on a slice of pizza at the fair it's more than you are giving your child in one capsule of ProEFA -the Omega 3/6 formula that works at the lowest dosage. I think that's why after a bit, unless parents take their child off -they begin to think the surge would have happened anyway -or start to credit other stuff. I think most of us believe the expression " to good to be true " and it's hard not to doubt something so cheap and easy and simple -in such a small dose, just a few drops really can make such a difference in your child, especially something that has no clinical proof -again -that is till you take them off. (all of you try it - lots of us did and yes that's why we are so sure) You may have to follow your mom instinct on this. By taking your child off and putting them back on you will prove to all the doubters including somewhere within you that the EFAs do " work " Off course if you think about it - it's obvious if your child regresses or stops progressing quick when off, then when back on and the stores are replenished the surge will happen again and be more dramatic than if you just left them on straight through....but is the stopping and starting good for our children -or not? Since I've been supplementing Tanner for three years -I have complete confidence in the EFAs working and that it's good for him. Taking Tanner off once was horrible enough -and in switching formula's we've had our share of regressions too -and the surge when back on the right formula we've seen too (especially children like mine that regress off) Somehow since my son Tanner regresses so fast off the right Omega 3/6 formulas (DHA, EPA with low amounts of GLA) I know it's something his body needs somehow -and since I personally no longer need proof it's working, I'd rather just keep giving him what's good for him and explore the additional EPA and the carnosine to the ProEFA for additional surges. (could all of you imagine if we looked for this much change and proof when giving our children Flintstone's Daily Multis or something) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 I would agree that I should not put her on and off the pills. I would like to try increasing. I'm not as much worried about the oils as I am the vitamin E. She also takes a multi w/ vitamin E. Do you know where I can get a multi w/out vitamin E? BTW, yesterday morning Kennedy got up and came up to me and did all her signs one after another and stood there w/ this big " look what I can do " smile. Sometimes she would use a sign if I requested and showed her. Since then she has been using her signs w/out request. I guess this would be considered motor planning? Now if I can just get her to put the words w/ the signs! Traci mom to Kennedy 2.0 and Hunter 4.6 Quote Link to comment Share on other sites More sharing options...
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