Guest guest Posted January 1, 1970 Report Share Posted January 1, 1970 Hi, all! Thank you to everyone for being so involved and for providing such a wealth of useful information for our children. I wanted to add my 2 cents with regards to private/homeschooled children. We live in Bloomfield, NJ (Essex County) and have received zero services from our school district for Gordon since he turned three and was no longer covered under early intervention because we have chosen to send him to non-public schools. Currently, he is in an out-of-district, full-day, private kindergarten program because our town only has a half-day program. We requested that Gordon get OT/PT after school at our neighborhood elementary school (which is right down the street) and our district has done everything they can to stall and we've spent an entire semester with no services. I just sent them a letter which I cc " d to everyone I could think of (mayor, congressman, senator, secretary of spec. ed in Washington, etc. ) to see if it would make a difference. Under IDEA, a school district is not required to provide services to a child if that child is not attending a public school! Isn't that something! They may do so at " their discretion " . There are school districts with a conscience who do feel that they should do something for a child if they need help, but apparently, our town is not one of them. We are also a family that cannot afford to hire a lawyer. As you may or may not be aware, lawyers charge a retainer fee of upwards from $5,000. And then, if you go to litigation, it can cost $250 an hour. Where can the average household get that kind of money, especially if you have a child who needs therapy? We can barely afford our insurance premiums! I hope you all have better luck than I have had. If anyone has any suggestions, I'd love to hear them. We understand that somehow, in September, the way the funds are divied up will be different, so we may get some help then, but I am not very optimistic. The other thing that the school districts want you to do is to put your kid in the public school and then see if it " works. " In other words, set your kid up to fail, lose their self esteem, etc. Sorry to get on my soap box, but is has been a very long, tiring struggle without any success. We had to suspend my son's OT and PT for six months because we owed the therapists so much money. We practically begged our school district for help and just got stone walled. Judi F. Mom to two wonderful boys, Gordon, age 6, global dispraxia, sensory integration dysfunction, hypotonia and Noah, 2 years 3 mos. , speech delay? and hypotonia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Judi, I live not too far from you. I didn't mention it before but I am also an attorney, although my speciality is real estate, I had to learn spec. ed very quickly. I agree with everything you said. My child actually didn't get any services after EI for over a year from the town for the reasons you stated and I only wish I could have known then what I know now. At the time just from conversations with the woman who would have been our case manager, I could tell that she would have recommended placing my child in the district preschool disabled program and I knew it wouldn't be right for my child bec. her delays were so significant and their program was mainly for kids with articulation issues and some maturity issues. So, instead of getting private evals at the time that would recommend out of district placement and getting ready for a fight if necessary, I backed off. There are options out there for you and I will help as much as possible. First, if you can get the pt and ot and any other therapists you were seeing to put in writing what is NEEDED for your child than you go to the town with these reports and they will likely want their own evals (some do accept private ones, I had this happen with my ot report) but then if they conflict you can file a complaint and ask for mediation with the State Department of Education. This is not difficult. In fact the form is in the back of the book on NJ Spec. Ed. laws that the town is obligated to give you (I can mail or fax you the form if desired). When I spoke to the Depart. of Ed., they were very very sympathetic and kept on asking me what else I wanted for my child and didn't I want this and that. Do you have health insurance? You can also go to a dev. ped. or neurologist in your plan who can also put in their report what is necessary for your child's IEP. I just went to a great doctor at the University of Medicine and Dentistry in Newark and trust me I have been to many many doctors, they were great there! Let me know if you want a recommendation. I am so mad that I spent so much out of pocket money for doctors at Columbia pres. and other far off areas. You should also contact the head of special services in your town and ask for a meeting with her/him one on one. Advise that your child is missing therapies and your private therapists/doctors agree that out of district placement is necessary bec. full day is necessary, perhaps the ot needs to be a sensory ot (many towns don't have this), you need an slp who knows prompt therapy/oral motor/sensory therapy, etc. You can also mention that you have already discussed this with an attorney (me!) and are ready to file the complaint with the Depart. of Ed. in Trenton if necessary. When you file the complaint, you can also file for emergency relief since your child's services have been interrupted. My town has actually agreed to a home program and paying for my private therapists since we couldn't find the right out of district placement and my duaghter has different health issues that go with the hypotonia. Let me know if I can help further. You can email me direct, if desired at aigjr@... Carolyn Quote Link to comment Share on other sites More sharing options...
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