Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 Hi- Just got back from our initial visit with Dr. Goldberg and have started Valtrx. I'd like some comments from people who are seeing improvements with antivirals. What positive effects should I expect if this is the right antiviral? How soon might we see something? I know it is soon and every child is different, but I'm curious Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 Hi , We had our initial visit with Dr.G in early May. When we got home we started Valtrex. For the first three weeks there was nothing other than sleeping through the night which was a small miracle in itself, but no die off like we were expecting. Then our son spoke (he's been non-verbal for about a year) about 10 words within a two week period and seemed very connected. Then we started Nizoral he got very giggly and drunk acting and the language started to drop off after he was on it for about 5 days. At the same time his sister brought home a brutal flu that wiped out the whole family for about two weeks, in a way it was kind of a good thing that we all got it or we would have thought it was a die off also. The words stopped completely. Anyway he has been well again for about 2 weeks , we just started Paxil a few days ago and he is starting to become more alert again, and he said " open door " tonight. Yaaaaay. That's the first word in about 4 weeks. What a roller coaster ride, but worth it. Original Message ----- From: " sydbugg " <cewlslgr@...> < > Sent: Friday, August 02, 2002 7:31 PM Subject: Starting Valtrex > Hi- > Just got back from our initial visit with Dr. Goldberg and have > started Valtrx. I'd like some comments from people who are seeing > improvements with antivirals. What positive effects should I expect > if this is the right antiviral? How soon might we see something? I > know it is soon and every child is different, but I'm curious > Thanks, > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 Our son has been on Valtrex 3.5 weeks, so I can give you an overview of what we've seen. Week 1: After 2 or 3 days, exhibited dark circles around his eyes, developed sniffles and a very mild fever. A little clingy when he woke up, slightly more fragile overall. Week 2: More of everything from week 1. Very fragile, outburts of crying, wanted to watch TV all the time, wouldn't come downstairs, refused to go for walks or get into the car, very clingy and lethargic. Week 3: Not as fragile but very rigid and inflexible in daily life. Still a bit spaced-out much of the time. Fewer crying outburts, dark circles and sniffles going away and no more fever. A little aggressive towards baby sister. On a positive note ... we've seen a reduction in his need for vestibular stimulation -- no jumping, climbing, running around the house at all. Tactile sensory issues are still present but others seem decreased. He's very calm and able to stay with one activity for long lengths of time. I know from speaking with other parents that my son's experience has been quite different from others. Again, every kid is different. Dave > Hi- > Just got back from our initial visit with Dr. Goldberg and have > started Valtrx. I'd like some comments from people who are seeing > improvements with antivirals. What positive effects should I expect > if this is the right antiviral? How soon might we see something? I > know it is soon and every child is different, but I'm curious > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Dave and Donna, Thanks for the responses. I keep watching, hoping to see something- nothing yet. I need to give it time, as we are not even up to the full dose yet. Thanks again, > > Hi- > > Just got back from our initial visit with Dr. Goldberg and have > > started Valtrx. I'd like some comments from people who are seeing > > improvements with antivirals. What positive effects should I > expect > > if this is the right antiviral? How soon might we see something? > I > > know it is soon and every child is different, but I'm curious > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 , Just wondering what dose Dr.G put your child on and how much he weighs thx paul > > > Hi- > > > Just got back from our initial visit with Dr. Goldberg and have > > > started Valtrx. I'd like some comments from people who are > seeing > > > improvements with antivirals. What positive effects should I > > expect > > > if this is the right antiviral? How soon might we see > something? > > I > > > know it is soon and every child is different, but I'm curious > > > Thanks, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 TRIED VALTREX WITH HORIBLE RESULTS! SWITCHED TO FAMVIR. STILL HAD HORIBLE DIE OFF BUT AFTER APPROX TWO WEEKS, RETURNED TO BASE. I HAVE NOTICED BETTER FOCUS AND ATTENTION. IM TOLD THAT ONCE VIRUS IS GONE OR REDUCED, ITS LIKE A FOG HAS LIFTED AND THESE KIDS CAN SEE CLEARER. IM STILL HOPING FOR MORE POSITIVE RESULTS. ITS ONLY BEEN ABOUT A MONTH. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 MY SON, UP TO NOW NON-VERBAL, SAID TWO WORDS AFTER TWO WEEKS ON FAMVIR. BUT THAT WAS ALL. ANYWAY, ITS A START! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Thanks for the reassurance. Did you have any other physical side effects after the diarrhea cleared up? It's Sunday night and he's still got it. He also threw up once Friday night and once Saturday morning. He seems fine now except for the diarrhea. This is one of the few times that I'm actually glad he's still in diapers. We must have changed him 10 times today. ette Donnaaron wrote: > Absolutely. In fact, it's one of the more common side effects. My > son had it for about five days after starting Valtrex, then it cleared > up. Same with the reduced appetite. However, if the diarrhea is > " massive " as you say, it probably wouldn't hurt to give Dr. Goldberg a > call, just as a precaution. In the meantime, just be sure is > well-hydrated. > Donna > > > starting Valtrex > > > Hi Listmates: > > We just started Valtrex on Monday night (today is Friday). My 3 1/2 > > year old son has had constant diarreha (spelling?) since his > first > birthday. This has pretty much cleared up since we put him on a > GFCF > diet in November and eventually eliminated a few other things (the > last > being soy). Anyway after starting the Valtrex on Monday, he had a > loose > stool on Wednesday and this morning he woke up with massive diarreha > > that has continued throughout the day. And he hasn't had much > appetite > either. Could this in anyway be related to the Valtrex? Anyone > else > experience this? > > Thanks > > ette > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Hi ette. Besides the diarrhea, was very tired and needed much more sleep than usual. He needed to nap for the first time in a year, and the naps lasted 3 or 4 hours. Then he would go to sleep fairly close to his regular bedtime This went on for about four or five days. He also caught a bad cold with fever a few days after the diarrhea stopped. He also became more auditorily defensive (i.e. plugging his ears when the dishwasher went on or running out of the bathroom when the toilet was flushed). I want to add, though, that 's diarrhea was not as dramatic as you're describing -- he would go maybe four or five times in a day instead of ten -- so, I would still give Dr. Goldberg a call on Monday if it's still bad. I think the Valtrex temporarily makes the immune system more vulnerable so it's possible he could just have a stomach virus and that could be what's causing the trouble. Good luck, and hang in there! It's worth it. Donna starting Valtrex > > > Hi Listmates: > > We just started Valtrex on Monday night (today is Friday). My 3 1/2 > > year old son has had constant diarreha (spelling?) since his > first > birthday. This has pretty much cleared up since we put him on a > GFCF > diet in November and eventually eliminated a few other things (the > last > being soy). Anyway after starting the Valtrex on Monday, he had a > loose > stool on Wednesday and this morning he woke up with massive diarreha > > that has continued throughout the day. And he hasn't had much > appetite > either. Could this in anyway be related to the Valtrex? Anyone > else > experience this? > > Thanks > > ette > > > Quote Link to comment Share on other sites More sharing options...
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