Re: Food IgG Panel results

January 8, 2008

Hi ,Wow. I'm not sure I have any useful advice, but...you have my sympathy! We tried being GF/CF for a while, and it was a huge challenge. And we may be back to it in the near future too. Incidentally, my DD has a new favorite GF food -- Koala Krisps, a brown rice cereal similar to Rice Krispies, but with cocoa added--we mix it with nut butter instead of milk for her, and then it's sort of like eating a Rice Krispie treat, but without the marshmallows. I don't know if the cereal itself might have too much sugar for your son, though--it does have some evaporated cane juice in it. Also, in my raw food experimenting (I decided last week to try being completely raw vegan with my own diet, even though I'm still making cooked food for my kids) I've been discovering lots of GF/CF options, most of which my DD would never eat, but that might give you another area in which to look for recipe ideas. Is fruit okay (I know you're worried about yeast)? If so, that might open up lots of possibilities. I made fruit soup the other day (fresh squeezed orange juice with slices of other fruits in it). Another option is slices of fruit or vegetables with a nut butter dip (if nuts are okay). We put peanut butter in a tiny dish and arrange baby carrots in it, and I tell my DD that the carrots are birthday candles. (There's always some stuffed animal or invisible friend who's ready for a birthday.) Also, if you can find it, there's a GF bread mix that has 3 grams of fiber per slice--I'll try to remember the brand and post it for you--I think someone on this list recommended it to me in Sept. of 2006 when we were trying to become GF, and I was glad to find it because most GF breads have practically no fiber. Giving breastmilk to your 3-year-old as a source of immunoglobulins makes sense to me...I'm in awe of you if you're able to pump enough milk to make yogurt! I nursed both my kids until they were 3 and a half, but never could pump more than a teaspoon or two of milk...Anyway, if you are giving breastmilk, that should make the CF side of things easier, I would think...

Good luck, and keep us posted!Bonnie

Hi all,

Apologies ahead of time - this is LONG. I'm overwhelmed right now.

We just got my DS's IgG test results back today. He reacted to 28

different foods as " positive " for food " allergy. " Basically,

confirmed my suspicion of leaky gut. (and despite my supplementing him

with probiotics, there's apparently no colonization because his stool

cultures were negative - no good bacteria - but thankfully no bad

bacteria either!)

One thing that I am not surprised by, but am disappointed in (because

it is going to be so much work) is that he is highly reactive to

gluten containing foods [wheat +3, rye +2, barely +2, oat +2 (not sure

if this is because we don't use gluten-free oats or if it's because he

has an issue with oat)]. The worst part is that he is also reactive

to rice (+1)and corn (+1) which are two of the easy gluten-free

alternatives...(also had a score of 85 on the gliaden test, with

anything over 30 being a strongly positive reaction).

She reiterated that many of her patients see dramatic improvement with

constipation by just going GF/CF. We've been CF for a while, but have

been dreading the GF. Easing up on gluten did seem to help some, but

I'll let you all know if there's drastic improvement with eliminating

gluten. At least with test results I can (hopefully) get DH on board.

I have two questions & hope for input:

1) Our doc suggested we avoid all reactive foods for a year, but

could do rotation with the +1 foods if needed. I wonder, though,

if anyone else has done this IgG panel and if they have any comment on

the relevance of the +1 foods....Do we stand a better chance of

healing his leaky gut if we do totally avoid all 28 foods stringently

or will rotating the +1's not alter the chances of healing the gut?

2) Doc recommended a bovine (cow) immunoglobulin supplement to help

with the leaky gut. I am not a fan of the idea of giving him bovine

immunoglobulin. Stick with me (if you're still reading) - some swear

that raw cow's milk healed their leaky gut. If purified bovine

immunoglobin supplements are helping with healing leaky guts, then

perhaps this is one of the components of raw milk that helps heal

leaky guts. We know that human breast milk has tons of immunoglobins

and immune factors. So, shouldn't human breast milk (a 'raw' milk) be

effective as well? Since I'm still BF'ing my 1 year old, I could pump

and and try giving my 3 yr old breast milk - wouldn't this have the

same effect (or better) as raw cow's milk? Has anyone heard of making

yogurt with human breastmilk? If I can get probiotics into him in

breastmilk yogurt, I'd be getting two supp's in at once..... Am I crazy?

Please don't think I'm totally insane - I just want to heal his gut

and thought if I can do it with the help of my breastmilk instead of

another supplement, all the better....

THANK YOU for " listening " and for any thoughts/comments.

Best,

p.s. - She recommends fermented veggies and cocobiotic (body ecology).

He's reactive (+1) to coconut, so I'm not sure if we'll try

cocobiotic, but I've read great things about it at another board. I

have long been considering making my own fermented veggies - so now I

have the motivation to give it a try - just need to learn how -

anybody doing this already?

p.p.s. - surprised to find they couldn't culture yeast from his stool,

but I still feel strongly that he has yeast symptoms (even the doc

confirmed at our first appointment that the rash and pimples on his

bottom are typically tell-tale signs of yeast). any thoughts?

January 9, 2008

WOW! ! That is a huge pill to swallow. Breast milk sounds good to me too, but I really don't know the science behind it. If you aren't able to pump enough then maybe you can find a local farmer with raw milk. We have a farmer that sells it to us for $2 a gallon! Crappy milk in the store sells for near $6 here! So we have nutritious milk that taste FANTASTIC and for cheep!! A treat my kids and I have always liked is a celery stick with peanut butter spread down the center and topped with raisins. Ants on a log. Makes a yummy snack and is nutritious enough to be lunch too.Susie ~Susie~ Please visit Trisha's site and feel free to pass it on: Busy Hands ~ Pencil Portraits and Other Handmade

Gifts

Never miss a thing. Make Yahoo your homepage.

January 9, 2008

Hi Bonnie,

Thank you for your thoughts ( & for reading my long post!)....

The problem we're going to have with many of the gluten-free cereals,

breads, baked stuff is that rice and corn are both not so great for

him, but I guess if I do the rotation thing, he could have something

like that every four days or so, and that could be something for him

to look forward to...

You are so creative - fruit soups & peanut butter and carrot party

cake! too cute! Aside from avoiding fruits he is reactive to, I'm

not going to worry about the natural sugars in fruit. Citrus is a +1

for him, so we might not get to try the fruit soup (although, again,

if we rotate...?), and I suppose we could try a different juice as the

base. What a great idea!

I am worried about yeast, but the test results are at odds with that.

I just don't know what else to make of the overt physical symptoms.

Anyway, we've cut back on sugar and have been using xylitol when

possible, but with everything else we're going to be taking on, I'm

probably going to be less stringent on the sugar aspect, so some of

the foods you suggested I'd be willing to try for him!

Regarding the breastmilk, not sure I can swing it at this point, but

am willing to try! The first six months for both boys I was a

veritable factory - could pump 8 oz in no time, sometimes from one

breast with my first son (I'm living proof that size doesn't matter in

this case - barely a 'B' cup). Definitely had sympathy for dairy

cows!! But, at 1 year and not having pumped much this go around (baby

REFUSES breastmilk from anything but the source - he has held out for

as long as 6 hours until I return - and that was before introducing

solid foods!). SO, it may be a fantasy to think I can pump enough to

give any to my 3 year old, let alone make yogurt! But, I can try! I

actually tried giving him breastmilk a few months ago to see if it

would help with the constipation. he turned up his nose - even to

chocolate breastmilk! I have to say, I was kind of hurt, even though

he had no clue it was breastmilk I sort of took it personally anyway!

Which is why I thought if I can make yogurt with it, maybe that would

be different tasting & he'd eat it..??

(Coincidentally, I did find some recipes out there & success stories

for using breastmilk! love that Google!)

Thanks, again, for your suggestions & support!

p.s. - I've been meaning to ask how school has been going for your DD?

It seems like just yesterday we were anticipating the start of school

and you were worried b/c they don't allow diapers at her school. Hope

the underwear club is still intriguing to her & that school is going well.

>

> > Hi all,

> > Apologies ahead of time - this is LONG. I'm overwhelmed right now.

> >

> > We just got my DS's IgG test results back today. He reacted to 28

> > different foods as " positive " for food " allergy. " Basically,

> > confirmed my suspicion of leaky gut. (and despite my supplementing him

> > with probiotics, there's apparently no colonization because his stool

> > cultures were negative - no good bacteria - but thankfully no bad

> > bacteria either!)

> >

> > One thing that I am not surprised by, but am disappointed in (because

> > it is going to be so much work) is that he is highly reactive to

> > gluten containing foods [wheat +3, rye +2, barely +2, oat +2 (not sure

> > if this is because we don't use gluten-free oats or if it's because he

> > has an issue with oat)]. The worst part is that he is also reactive

> > to rice (+1)and corn (+1) which are two of the easy gluten-free

> > alternatives...(also had a score of 85 on the gliaden test, with

> > anything over 30 being a strongly positive reaction).

> >

> > She reiterated that many of her patients see dramatic improvement with

> > constipation by just going GF/CF. We've been CF for a while, but have

> > been dreading the GF. Easing up on gluten did seem to help some, but

> > I'll let you all know if there's drastic improvement with eliminating

> > gluten. At least with test results I can (hopefully) get DH on board.

> >

> > I have two questions & hope for input:

> > 1) Our doc suggested we avoid all reactive foods for a year, but

> > could do rotation with the +1 foods if needed. I wonder, though,

> > if anyone else has done this IgG panel and if they have any comment on

> > the relevance of the +1 foods....Do we stand a better chance of

> > healing his leaky gut if we do totally avoid all 28 foods stringently

> > or will rotating the +1's not alter the chances of healing the gut?

> >

> > 2) Doc recommended a bovine (cow) immunoglobulin supplement to help

> > with the leaky gut. I am not a fan of the idea of giving him bovine

> > immunoglobulin. Stick with me (if you're still reading) - some swear

> > that raw cow's milk healed their leaky gut. If purified bovine

> > immunoglobin supplements are helping with healing leaky guts, then

> > perhaps this is one of the components of raw milk that helps heal

> > leaky guts. We know that human breast milk has tons of immunoglobins

> > and immune factors. So, shouldn't human breast milk (a 'raw' milk) be

> > effective as well? Since I'm still BF'ing my 1 year old, I could pump

> > and and try giving my 3 yr old breast milk - wouldn't this have the

> > same effect (or better) as raw cow's milk? Has anyone heard of making

> > yogurt with human breastmilk? If I can get probiotics into him in

> > breastmilk yogurt, I'd be getting two supp's in at once..... Am I

crazy?

> >

> > Please don't think I'm totally insane - I just want to heal his gut

> > and thought if I can do it with the help of my breastmilk instead of

> > another supplement, all the better....

> >

> > THANK YOU for " listening " and for any thoughts/comments.

> >

> > Best,

> >

> > p.s. - She recommends fermented veggies and cocobiotic (body ecology).

> > He's reactive (+1) to coconut, so I'm not sure if we'll try

> > cocobiotic, but I've read great things about it at another board. I

> > have long been considering making my own fermented veggies - so now I

> > have the motivation to give it a try - just need to learn how -

> > anybody doing this already?

> >

> > p.p.s. - surprised to find they couldn't culture yeast from his stool,

> > but I still feel strongly that he has yeast symptoms (even the doc

> > confirmed at our first appointment that the rash and pimples on his

> > bottom are typically tell-tale signs of yeast). any thoughts?

> >

>

January 9, 2008

Thanks, Susie!

Cute idea, too! Celery, peanuts (PB), and grapes (raisins) are all on

the o.k. list - so thank you! I'll see what he thinks!

I've considered raw milk off and on for a few years (as a general

matter) - although never tried it. Will keep it in mind. I don't

understand how the casein-sensitive leaky gut people could tolerate

it, but I've seen it talked about at a few different sites as healing

leaky guts, so I feel like there could be something to it.

thanks!

>

> WOW! !

> That is a huge pill to swallow. Breast milk sounds good to me too,

but I really don't know the science behind it. If you aren't able to

pump enough then maybe you can find a local farmer with raw milk. We

have a farmer that sells it to us for $2 a gallon! Crappy milk in the

store sells for near $6 here! So we have nutritious milk that taste

FANTASTIC and for cheep!! A treat my kids and I have always liked is a

celery stick with peanut butter spread down the center and topped with

raisins. Ants on a log. Makes a yummy snack and is nutritious enough

to be lunch too.

> Susie ~

>

> Susie~

>

> Please visit Trisha's site and feel free to pass it on:

> Busy Hands ~ Pencil Portraits and Other Handmade Gifts

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

January 9, 2008

It sounds like the +2 and +3 items may have been grains --but that

other things were +1? If so, I think you may see some amazing

results with GFCF. Any + for yogurt or casein? Did you give any

milk prior to the test?

My son came back with +5 for cashews, +3 for apples and yogurt and +1

15 others. BUT -- the apples and yogurt made perfect sense since he

was eating a lot of that at the time. The good news is that you've

confirmed leaky gut.

The GFCF does get easier -- but I still have enzymes with me

whereever we go -- and there's always a cooler of food in the car for

any trip over 2 hours.

>

> Hi all,

> Apologies ahead of time - this is LONG. I'm overwhelmed right now.

>

> We just got my DS's IgG test results back today. He reacted to 28

> different foods as " positive " for food " allergy. " Basically,

> confirmed my suspicion of leaky gut. (and despite my supplementing

him

> with probiotics, there's apparently no colonization because his

stool

> cultures were negative - no good bacteria - but thankfully no bad

> bacteria either!)

>

> One thing that I am not surprised by, but am disappointed in

(because

> it is going to be so much work) is that he is highly reactive to

> gluten containing foods [wheat +3, rye +2, barely +2, oat +2 (not

sure

> if this is because we don't use gluten-free oats or if it's because

he

> has an issue with oat)]. The worst part is that he is also reactive

> to rice (+1)and corn (+1) which are two of the easy gluten-free

> alternatives...(also had a score of 85 on the gliaden test, with

> anything over 30 being a strongly positive reaction).

>

> She reiterated that many of her patients see dramatic improvement

with

> constipation by just going GF/CF. We've been CF for a while, but

have

> been dreading the GF. Easing up on gluten did seem to help some,

but

> I'll let you all know if there's drastic improvement with

eliminating

> gluten. At least with test results I can (hopefully) get DH on

board.

>

> I have two questions & hope for input:

> 1) Our doc suggested we avoid all reactive foods for a year, but

> could do rotation with the +1 foods if needed. I wonder, though,

> if anyone else has done this IgG panel and if they have any comment

on

> the relevance of the +1 foods....Do we stand a better chance of

> healing his leaky gut if we do totally avoid all 28 foods

stringently

> or will rotating the +1's not alter the chances of healing the gut?

>

> 2) Doc recommended a bovine (cow) immunoglobulin supplement to help

> with the leaky gut. I am not a fan of the idea of giving him bovine

> immunoglobulin. Stick with me (if you're still reading) - some

swear

> that raw cow's milk healed their leaky gut. If purified bovine

> immunoglobin supplements are helping with healing leaky guts, then

> perhaps this is one of the components of raw milk that helps heal

> leaky guts. We know that human breast milk has tons of

immunoglobins

> and immune factors. So, shouldn't human breast milk (a 'raw' milk)

be

> effective as well? Since I'm still BF'ing my 1 year old, I could

pump

> and and try giving my 3 yr old breast milk - wouldn't this have the

> same effect (or better) as raw cow's milk? Has anyone heard of

making

> yogurt with human breastmilk? If I can get probiotics into him in

> breastmilk yogurt, I'd be getting two supp's in at once..... Am I

crazy?

>

> Please don't think I'm totally insane - I just want to heal his gut

> and thought if I can do it with the help of my breastmilk instead of

> another supplement, all the better....

>

> THANK YOU for " listening " and for any thoughts/comments.

>

> Best,

>

> p.s. - She recommends fermented veggies and cocobiotic (body

ecology).

> He's reactive (+1) to coconut, so I'm not sure if we'll try

> cocobiotic, but I've read great things about it at another board. I

> have long been considering making my own fermented veggies - so now

I

> have the motivation to give it a try - just need to learn how -

> anybody doing this already?

>

> p.p.s. - surprised to find they couldn't culture yeast from his

stool,

> but I still feel strongly that he has yeast symptoms (even the doc

> confirmed at our first appointment that the rash and pimples on his

> bottom are typically tell-tale signs of yeast). any thoughts?

>

January 9, 2008

Hi ,Yes, I worry about rice and corn too...I wonder if that was part of our problem when we tried the GF diet. The Koala Krisps cereal is made with brown rice, but I'm not sure if brown rice is any better, and another issue is that it's still a processed cereal.

I wasn't really being creative when I made the fruit soup--I was going to make a smoothie, and, after squeezing the orange juice, just didn't feel like hauling out the blender too. Laziness is the mother of invention...

Last night I read that you can also make a raw soup using carrots as the base, but I'm not sure it would be appealing to many kids...Come to think of it, if he likes them, bean soups might be a good option too. We had lentil soup and baked beans a lot before my DD suddenly lost interest in them...

Oh, school. Well, that didn't go well this fall. Her school has been very supportive, though, and they are letting her wear pull-ups, and for the moment, we've let the underwear club go, because she has stool leaking out a lot when she gets really backed up, and it's hard to feel successful using the potty when you have to change your underwear every time. Her sensory problems have also caused her a lot of difficulty at school. In retrospect, I'm not sure a Montessori environment was a good choice for her, even though a lot of the Montessori materials provide sensory stimulation. I think she'd feel more secure in a more structured environment, which I hope kindergarten will be, only I'm not sure she's going to kindergarten in the fall. I don't think they'll be as supportive of her pull-up problem! I'm thinking of enrolling her in one of Wisconsin's virtual schools for kindergarten, and using that curriculum to homeschool for a year. I was thinking that would buy us some time, to work out all her medical issues--I don't want to homeschool permanently (and my husband is very opposed to it even temporarily). We'll see. Maybe we'll make really good progress this spring. I think we are making progress with her sensory issues, but, at the same time, they seem to flare back up whenever her body is dumping lots of toxins. So it's a two-steps forward, one-step back kind of process....

Bonnie