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Re: Digest Number 2654

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Hi Charlotte,

This is in Virginia. I've was diagnosed

with severe inflammatory arthritis in Nov. 1999. I've

been on Azulfidine EN since February 2000. It took a

good 6 months to notice a difference from the sulfa.

In fact, I didn't notice a difference until I ran out

and had to wait for my refill from the mail order

pharmacy. For my insurance at the time, it was a step

therapy (had to try it before taking Enbrel or

Remicade). I've been on Remicade for 2.5 years but am

still on the Sulfa as well. For the first 7 months or

so I took 8 sulfa tabs a day but now I take 5.

Hope that helps,

Has anyone had success with plaquinel and/or

sulfasalazine?

Or, is it just a first-line treatment that everyone

gets to satisfy

their

HMOs before something stronger and more expensive is

prescribed?

I realize I should consider myself lucky not to be in

constant pain

and discomfort, but I'm wondering if I'll ever get any

long term

relief.

=====

Rose DeNicola

Coordinator, Fauquier County's Promise

73 E. Lee Street, Box 22; Warrenton, VA 20186

Phone: (540) 347-7000, Fax: (540) 347-4732

www.fauquier.americaspromise.org

Fauquier County's Promise ... We're Pulling Our Weight

__________________________________________________

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  • 3 months later...

In a message dated 12/19/02 4:30:12 AM Pacific Standard Time, writes:

,

I just heard from Jeanette today, she is not doing

well. She said her doctors said they can't do

anything more for her, so she said that if they have

given up on her, she doesn't feel much like fighting.

She is still taking her meds but I am very worried

because it sounded as if she would stop her meds when

she runs out. I tried to encourage her to go to a new

doctor and to not give up. She really needs

encouragement right now.

Love,

Ruth

How can we reach Jeanette? Do you have a mail address for her?

Harper

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> Harper,

> I asked Jeanette for her mailing address but I

> haven't received it yet. Here is her email address:

> Carpenter, Jeanette

> jeanette_cuk@y... .

>

> I'm sorry I don't have her regular address.

> Ruth

Ruth,

I tried to send an e-mail directly to Jeanette, but it was returned

as non-deliverable. I wonder if she has changed her addy.

Jeanette,

If you are still getting our digest or e-mails, I just wanted you to

know that you have been on my mind a lot lately. My prayers go

out to you.

(in WY)

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  • 3 years later...
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please post your results ,,, stone passers ! let me know if you pass green

ones that looked like squashed peas ... I'm still wondering if they were

stones, or just peas that never digested !!

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In a message dated 3/8/2006 5:12:16 PM Eastern Standard Time, lescase@...

writes:

I'm still wondering if they were

stones, or just peas that never digested

The ones I passed were green, brown, and rust colored and about the size of

BBs.

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