RE: I was approved for Remicade!

[Guest guest]

Oh ,

What wonderful news. I am so happy for you. I have only had one infusion so

far and the most important thing that I can say is to relax and let the

procedure happen. Ask any questions that you have and wear something

comfortable. I do hope that this works for you and as quickly as it has for

me. I have my second infusion next week and am excited to keep this precious

fluid coming. I felt results the day after the infusion and each day has

been better since. I don't know if I actually have more energy or if I just

feel better because I feel better, but I have been catching up on some of

those things that have been let go in hopes of better days. Best of luck and

thanks for sharing your great news.

Love and Hugs

Stacey in PA

[Guest guest]

, congratulations! I'm so happy for you!!!!!!! I just started

Remicade less than a month ago, and I was so happy when I was approved.

Like you, I just cried. It does seem weird to be so happy about something

like that, but it just goes to show the degree of pain and inconvenience we

live with daily.

I am keeping a journal of my Remicade experiences, and I have it on a

website. I haven't updated it this week, but I'm supposed to tonight.

http://www.canplat.com/%2fRemicade%20journal/remicade.htm

As you'll read, my initial results with Remicade were amazing. I'm still

doing well, but I've gotten an upper respiratory infection this week. I

also flared last week. But I don't think it's a bad reflection on the

Remicade. I'm just on my loading doses still. Nonetheless, do be conscious

of germs when you're in public. And enjoy feeling good.

Love and hugs,

Carol

[ ] I was approved for Remicade!

I went home for lunch...something I almost never do. I

got a call from my rheumatologist's office. I have been

approved for Remicade...my current PPO- 100% coverage. I

just sat down and cried. Once I composed myself I called

my mom. She thought I was upset...I just explained it

was a combo of excited and a little scared ...I felt

overwhelmed. Let's face it...getting excited about

Remicade is kind of like being happy about dialysis or

chemotherapy. I have been on my current combo of drugs

for over 10 years and was getting to think...like

someone so aptly put it here " that this was as good as

it gets. " I didn't expect to be approved for the drug.I

have been struggling with this since 1976.. and truth be

told maybe 1974,so the thought of a drug that might work

and of taking a real dance class or maybe kneeling down

again to garden...little things most people take for

granted- sounds pretty nice. I don't have the level of

deformity or joint damage many people have with this- so

I do count my blessings- but lets just say I still get

discouraged and wallow in it periodically....especially

the side effects of the prednisone - especially the

vanity issues like weight and the clumsy way I move.I am

trying to keep my expections realistic. Any words of

wisdom from the Remicade veterans on the site...would be

verrrry much appreciated. You are some of the very first

people I've shared the good news with!!

Hugs and thanks,

[Guest guest]

Carol-

Thank you so much. I have bookmarked your journal and

really look forward to comparing the experience.

Thanks,

[Guest guest]

:

Great news about the Remicade! There have been a few

people on this board who have been helped by this

medication, and I know of one other woman not in the

group who has her life back again because of it. I

wish you the best of luck!

Kathe in CA

__________________________________________________

[Guest guest]

, that is great. I hope everyhting goes well. Good Luck.

Keri

> I went home for lunch...something I almost never do. I

> got a call from my rheumatologist's office. I have been

> approved for Remicade...my current PPO- 100% coverage. I

> just sat down and cried. Once I composed myself I called

> my mom. She thought I was upset...I just explained it

> was a combo of excited and a little scared ...I felt

> overwhelmed. Let's face it...getting excited about

> Remicade is kind of like being happy about dialysis or

> chemotherapy. I have been on my current combo of drugs

> for over 10 years and was getting to think...like

> someone so aptly put it here " that this was as good as

> it gets. " I didn't expect to be approved for the drug.I

> have been struggling with this since 1976.. and truth be

> told maybe 1974,so the thought of a drug that might work

> and of taking a real dance class or maybe kneeling down

> again to garden...little things most people take for

> granted- sounds pretty nice. I don't have the level of

> deformity or joint damage many people have with this- so

> I do count my blessings- but lets just say I still get

> discouraged and wallow in it periodically....especially

> the side effects of the prednisone - especially the

> vanity issues like weight and the clumsy way I move.I am

> trying to keep my expections realistic. Any words of

> wisdom from the Remicade veterans on the site...would be

> verrrry much appreciated. You are some of the very first

> people I've shared the good news with!!

>

> Hugs and thanks,

[Guest guest]

Congratulations ! I wish you all the luck with the new treatment. Keep us

posted!

Debbie Mc

" No day is so bad it can't be fixed with a nap. "

[ ] I was approved for Remicade!

I went home for lunch...something I almost never do. I

got a call from my rheumatologist's office. I have been

approved for Remicade...my current PPO- 100% coverage. I

just sat down and cried. Once I composed myself I called

my mom. She thought I was upset...I just explained it

was a combo of excited and a little scared ...I felt

overwhelmed. Let's face it...getting excited about

Remicade is kind of like being happy about dialysis or

chemotherapy. I have been on my current combo of drugs

for over 10 years and was getting to think...like

someone so aptly put it here " that this was as good as

it gets. " I didn't expect to be approved for the drug.I

have been struggling with this since 1976.. and truth be

told maybe 1974,so the thought of a drug that might work

and of taking a real dance class or maybe kneeling down

again to garden...little things most people take for

granted- sounds pretty nice. I don't have the level of

deformity or joint damage many people have with this- so

I do count my blessings- but lets just say I still get

discouraged and wallow in it periodically....especially

the side effects of the prednisone - especially the

vanity issues like weight and the clumsy way I move.I am

trying to keep my expections realistic. Any words of

wisdom from the Remicade veterans on the site...would be

verrrry much appreciated. You are some of the very first

people I've shared the good news with!!

Hugs and thanks,

[Guest guest]

, congratulations!!!

I really hope and pray you get as good results as I have I will have my 5th

infus sept. the 10th. I am so gratful to my dr and thankful to God that there

is finally a drug that really works and gives most of us a higher quality of

life.

I now can hold my grandkids and actually open a bottle.

Yesterday I actually peeled 3 potatoes, something I couldn't do for quit a

long time, I was surprised.

So be excited and happy and I hope you get great results. I noticed a change

the very day I received first infus.

Good luck

Judy in Indy

[Guest guest]

Thanks Kathe. I really appreciate your support and the

more we learn about one another's successes the more we

are of support.

Big hugs,

[Guest guest]

Thanks Stacey. It is nice to know others here are going

through the same experience. I have had transfusions

before so I assume this won't be too bad. Only concern I

have is the that IV's are sometimes tricky because of

the years on pred - the veins aren't as obvious. Thanks

again for your support.

Hugs,

[Guest guest]

:

I am so glad you were approved for Remicade. Good Luck and I hope you do

well.

Sincerely, Colletti

Anjillah@...