Guest guest Posted August 27, 2002 Report Share Posted August 27, 2002 I went home for lunch...something I almost never do. I got a call from my rheumatologist's office. I have been approved for Remicade...my current PPO- 100% coverage. I just sat down and cried. Once I composed myself I called my mom. She thought I was upset...I just explained it was a combo of excited and a little scared ...I felt overwhelmed. Let's face it...getting excited about Remicade is kind of like being happy about dialysis or chemotherapy. I have been on my current combo of drugs for over 10 years and was getting to think...like someone so aptly put it here " that this was as good as it gets. " I didn't expect to be approved for the drug.I have been struggling with this since 1976.. and truth be told maybe 1974,so the thought of a drug that might work and of taking a real dance class or maybe kneeling down again to garden...little things most people take for granted- sounds pretty nice. I don't have the level of deformity or joint damage many people have with this- so I do count my blessings- but lets just say I still get discouraged and wallow in it periodically....especially the side effects of the prednisone - especially the vanity issues like weight and the clumsy way I move.I am trying to keep my expections realistic. Any words of wisdom from the Remicade veterans on the site...would be verrrry much appreciated. You are some of the very first people I've shared the good news with!! Hugs and thanks, Quote Link to comment Share on other sites More sharing options...
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