Guest guest Posted August 5, 2001 Report Share Posted August 5, 2001 hello, sometimes i do also experience nausea and also blurred vision. My wrist pain gets 75% better after injection but wears off till next injection. Strange,huh? [ ] enbrel question I was wondering, is anyone else having some nausea after taking an injection of Enbrel? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2001 Report Share Posted August 5, 2001 Dear ...I asked a similar question a couple of weeks back. I am prone to rare side effects to the point that one round of Prednesone a while back cost me a week long psychotic episode and left me on Zoloft for a year. So now I am very careful when starting a new drug. Enbrel seems to give me mild vertigo and disorientation that tapers off in a day or two. I am nauseated immediately after the injection. I'm not sure, however, what roll anxiety plays in this. I'm an extremely anxious, high strung, musician. It seems a lot of PA sufferers are anxious which makes me wonder about the thyroid disorders everyone seems to be posting about. I've been borderline hyperthyroid most of my life. I any event, I actually called the hot line and spoke to a nurse and then a staff pharmacologist. They said there are only reports of dizziness. Dizziness seems an awfully subjective term open to many related symptoms. These effects seem to be lessening the more I take the drug. The improvement and potential for improvement is so great I am just riding it out and making an effort to appear normal. Of course I'm used to that. Also taking Klonopin twice a day seems to help with the whole experience. Ronnie E. [ ] enbrel question I was wondering, is anyone else having some nausea after taking an injection of Enbrel? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 Re: Enbrel & nausea. A few days after my fourth injection I started feeling very nauseous along with headaches and very large injection site reactions.all at once at all four sites. I stopped for two weeks and when I started back again I did not experience any headaches or nausea. I still get the ISR but not as bad. I will let you know how things progress as I just gave myself the fourth injection today after starting back again.Peggy from upstate NY. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 > Re: Enbrel & nausea. A few days after my fourth injection I started feeling > very nauseous along with headaches and very large injection site > reactions.all at once at all four sites. I stopped for two weeks and when I > started back again I did not experience any headaches or nausea. I still get > the ISR but not as bad. I will let you know how things progress as I just > gave myself the fourth injection today after starting back again.Peggy from > upstate NY. > > You must be one of the lucky:( few to keep getting reactions to the injection sites. The reaction at the forth or fifth injection where all the injection sites react is fairly common. I've stopped injecting while being treated for ear infections and restarted with no reactions. Hope it gets better for you...PatB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Hi everyone - I've been on enbrel for about 4 weeks now and seem to be getting worse. I've heard such great success stories with Enbrel, but has anyone had it NOT work for them?? Hope you are all painfree today, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 , Don't be discouraged. I have been on Enbrel for about 5 weeks and I am just now beginning to improve. My doctor said that it can take up to 6 weeks to notice improvement (I always seem to fall in the later category). My swelling and redness has gone down but I am still in pain (although it appears to be less). I am not sure if that is due to the Enbrel or the fact that my Dr. increased my prednisone. I have noticed my morning stiffness has decreased but now I am finding that I am in more pain at night. Go figure. I guess we have to be patient. I wouldn't give up on it quite yet. Your progress may be gradual. Are you taking anything else besides Enbrel? My doc made it sound like once I started Enbrel I could stop all other drugs. Not true. I guess you have to find the right combination of drugs that will work for you. Hang in there. I hope you get to feeling better. >>> TADEL630@... 11/02/01 07:38AM >>> Hi everyone - I've been on enbrel for about 4 weeks now and seem to be getting worse. I've heard such great success stories with Enbrel, but has anyone had it NOT work for them?? Hope you are all painfree today, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 I<> Enbrel question> Hi , My success with enbrel was slow starting but at the 6 month point, I am about 75% better than at the starting point. I weaned down and finally stopped the mtx 3 months ago, and have had a much better energy level. Only problem is that my P is suddenly worsening, which my Dermatologist was puzzled by until she caught that I started taking atenalol (a beta blocker) for hypertension about 10 months ago and she said that beta blockers are notorious for making P worse.She said that some people can take it if they are on mtx, once of it , it usually flares badly------ so...... numerous prescriptions later and a lot co-pay poorer, I need to find a new antihypertensive that works. Hopefully that will get the P back under control. Good luck--- I really hope the enbrel starts to kick in and work for you! Hang in there. in Wisconsin > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 I was on Enbrel 3 months and the only relief I got was in my hands and fingers.Sadly, my doc took me off of it. He said the danger wasn't worth the little results I got. I think I'm sorry he did that as my hands are now worse than ever! Re: [ ] Enbrel question > Hi everyone - I've been on enbrel for about 4 weeks now and seem to be > getting worse. I've heard such great success stories with Enbrel, but has > anyone had it NOT work for them?? > Hope you are all painfree today, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 In a message dated 11/03/2001 10:40:50 PM Eastern Standard Time, lesliesa@... writes: << Are you taking anything else besides Enbrel? >> - only Vioxx. I had been on prednisone last year, but been off for some time now. I just stopped taking some supplements like flaxseed oil and evening primrose oil thinking they didn't help, but maybe I should start them again. Also taking Vit. E and glucosamine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 - I wasn't feeling any improvement until we increased my prednisone again. I am beginning to think that the prednisone is having more effect on my body than the Enbrel. I do have a bit more energy now. Your lucky you are off the prednisone. If I ever get off it I am never going back on it again. I desperately want to get off the prednisone but every time I try to wean myself off it I begin to flare. Saturday I overslept and awoke at 11:00. I was in so much pain because I was late taking my prednisone. I am beginning to think I am going to be stuck on this stuff for the rest of my life. I feel like some junkie - my body is physically addicted to the prednisone. My parents are upset with me because they really want me off the prednisone too. My mother tells me that I have to get used to the pain. She is 53 and has a slipped disc in her spine. She thinks she can relate, and maybe she can but I don't want to live the rest of my life in pain. I don't think it is something I can ever get used to. The worst thing is my GP keeps telling me to get off it too but these rheumatologists prescribe it like candy. You have one doctor telling you it is bad and another telling you it is ok and you are like - who do I believe? AGHHH!!! Sorry I kinda went off there. You may want to talk to your doctor about changing your anti-inflammatory. Was the Vioxx helping any before you started the Enbrel? I haven't tried many of the herbs (I hate taking pills and I don't want to take anymore than I already have too). I tried taking the glucosamine chondrotin too but I never noticed any difference. Wishing everyone a pain free day, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 In a message dated 11/06/2001 12:58:46 PM Eastern Standard Time, lesliesa@... writes: << I desperately want to get off the prednisone but every time I try to wean myself off it I begin to flare. >> - it's a VERY slow process - I went from 10 mg. twice a day, to 10 once and 5 once, then 5 twice a day, down to 5 once and 2.5 once - etc. etc. - it took at least 6-8 months to get off of it totally. Be patient and keep trying little by little - you can't just cut down by more than 2.5 a day and not feel it. As for your mom thinking she can relate - she can't. I know it's hard to explain, but with PA, you can be in so MUCH pain one minute and relatively ok the next - it's a weird disease and I don't think anyone who doesn't have it can truly relate to the pain of it. Well, best of luck in getting off the pred. It is sometimes our only salvation, but it has such nasty side effects in both the short and long term. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 - It is amazing how Doctors can misguide you. I was told that 5mg prednisone was a small enough dose that I could just quit taking it. When I was trying to wean myself off I cut the pills in half and took 2.5mg a day. That is when I started having problems. I was taking 15mg before and each time I cut down by 5mg and was ok. I guess at the lower dose my body starts to miss it. >>> TADEL630@... 11/06/01 03:59PM >>> In a message dated 11/06/2001 12:58:46 PM Eastern Standard Time, lesliesa@... writes: << I desperately want to get off the prednisone but every time I try to wean myself off it I begin to flare. >> - it's a VERY slow process - I went from 10 mg. twice a day, to 10 once and 5 once, then 5 twice a day, down to 5 once and 2.5 once - etc. etc. - it took at least 6-8 months to get off of it totally. Be patient and keep trying little by little - you can't just cut down by more than 2.5 a day and not feel it. As for your mom thinking she can relate - she can't. I know it's hard to explain, but with PA, you can be in so MUCH pain one minute and relatively ok the next - it's a weird disease and I don't think anyone who doesn't have it can truly relate to the pain of it. Well, best of luck in getting off the pred. It is sometimes our only salvation, but it has such nasty side effects in both the short and long term. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 In a message dated 11/08/2001 2:55:26 PM Eastern Standard Time, lesliesa@... writes: << When I was trying to wean myself off I cut the pills in half and took 2.5mg a day. >> - it also comes in 2.5 strength so you don't have to cut the pills. Some pills shouldn't be cut - I don't know if pred. is one or not. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 Re: Weaning off predisone.- I had been on 7.5 mgs for a little over a year. I had started on Enbrel & I felt it was time to cut back on my prednisone. The doctor advised me to cut back by one half mg every three weeks. That would mean I would take 7.0 mgs for three weeks followed by 6.5 mgs for the next three weeks, then 6.0 for three weeks , etc. After I was on 5mgs for three weeks I asked if I could alternate 10 mgs one day and 0 mgs the next day. The Rd said that would be fine as that is how it is recommended that prednisone be taken. So far I am not having any problems that I am aware of. When I had tried to wean myself off prednisone before I was on Enbrel I would wind up with a newly affected joint each time I tried to lower the dosage. I still keep taking extra calcium because taking pred. does something to your calcium absorption. Good Luck. Peggy B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 Does anyone know if there are any effects that Enbrel would have on a baby still in Uterero? The man being the one on Enbrel. Haven't been to the Enbrel site yet to check it out.This is the first place I stopped. Thanks Keri/MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 In a message dated 3/11/2003 11:46:12 AM Eastern Standard Time, clonan@... writes: > While Enbrel has done miracles for my PA, I still have a problem with the > P. Hi , I don't remember if you said in the past however, can you tell me how long the Enbrel took to help you with the PA. Janet Quote Link to comment Share on other sites More sharing options...
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