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,

You are the best. I haven't gone to the sites yet but I am going to go

today. This is all too upsetting and I am so worried. On top of it all the

surgeon is making me go for a colonscopy (sp) and to the gyn. I don't even

have a gyn and the GI doctor is helping me. I wish I could just craw into a

hole. The GI doctor told me, she doesn't want me to be upset but when a

patient has had a whipple and than this surgery everything may not be right.

The eating problems may never go away. Simply put the connection between the

stomach and the intestines just doesn't work right. So a lot of what I feel

when I eat will remain. She wanted me to know this up front. Surgeon didn't

tell me this, but I appreciate her honesty. I will just have to deal with

all that. Right now though they have to re-route some things, plus get the

scar tissue. What a mess.

Lynn (MeMom)

wrote:

> http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=77

> http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=48

>

> http://www.gastroresource.com/GITextbook/en/chapter6/6-5.htm

>

> http://www.vghtpe.gov.tw/~cmj/6408/640803.pdf

>

>

>

>

>

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Hi ,

Thank you for the sites, I have read them. It is helpful, since I don't

understand why the doctor didn't give me anything. I really think the reason

is that my insides are so different from anyone else's. I hope to educate

myself completely before I have this surgery. I remember so well how much

information you sent me last time that I went into the whipple with a full

knowledge of what to expect. I just read about after the surgery with this

one and it seems to be the same as the whipple. I was hoping for no tubes

but it seems like that is pretty standard with stomach surgery. I hope I am

strong enough for this, I tell myself I am. Isn't it great that Deb is

feeling better. That was very scary waiting to see how see was doing. Hope

her recovery continues to be good. Thank you again my friend for the sites,

you are an angel.

Love,

Lynn

wrote:

> http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=77

> http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=48

>

> http://www.gastroresource.com/GITextbook/en/chapter6/6-5.htm

>

> http://www.vghtpe.gov.tw/~cmj/6408/640803.pdf

>

>

>

>

>

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Lynn, you're welcome for the sites. It's the least I can do. Even though

they don't apply exactly to your situation, the drawings and some of the

details are relevant. I thought the last one was interesting since it

demonstrates that GI surgeons are trying to find different ways of

performing the gastrojejunostomy which lessen the possibility of delayed

gastric emptying (DGE) as a post-surgical problem.

You can do this. I'm really sorry you have to though. It's reassuring

that your local GI doc says she would do it.

Did to mention what type of gastrojejunostomy (Billroth II, with a

partition, anything else to describe it?)? Did he say anything about

improving your ability to eat? What about addressing the pain now and

post-surgery?

Re: [ ] Gastrojejunostomy

> Hi ,

> Thank you for the sites, I have read them. It is helpful, since I

don't

> understand why the doctor didn't give me anything. I really think the

reason

> is that my insides are so different from anyone else's. I hope to

educate

> myself completely before I have this surgery. I remember so well how

much

> information you sent me last time that I went into the whipple with a

full

> knowledge of what to expect. I just read about after the surgery with

this

> one and it seems to be the same as the whipple. I was hoping for no

tubes

> but it seems like that is pretty standard with stomach surgery. I

hope I am

> strong enough for this, I tell myself I am. Isn't it great that Deb

is

> feeling better. That was very scary waiting to see how see was doing.

Hope

> her recovery continues to be good. Thank you again my friend for the

sites,

> you are an angel.

> Love,

> Lynn

>

> wrote:

>

> > http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=77

> > http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=48

> >

> > http://www.gastroresource.com/GITextbook/en/chapter6/6-5.htm

> >

> > http://www.vghtpe.gov.tw/~cmj/6408/640803.pdf

> >

> >

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Hi ,

Your right the last one, I felt was more me. But any information is

good. to told me very little. He says the pain in not from all this,

but my GI says it is.

Apparently this is what surgeons says about scar tissue. My GI told me to be

prepared that the eating problems may not be improved. Actually, there is a

good chance that they will remain the same. Until you sent the sites I did

know there were different Gastrojejunostomy's. I will ask either my primary

or the GI doc. Now I do have questions and I don't know if I can call

to. They won't put him on, all I will get is a resident. I do have

delayed emptying, that may not get any better. I have had that since the

whipple. I have to start writing everything down. I think he didn't tell me

much because I have to be in the hospital on 26th. They have to get all the

bile out of the pouch and the nurse said they do that with an IV. But I want

to find out what else has to be done. How I wish there was a better answer

or I am thinking maybe it could be put off. I can't stop thinking about it,

I am so worried.

How you are getting use to your daughter being in college? It takes time but

you will get use to it.

Lynn

wrote:

> Lynn, you're welcome for the sites. It's the least I can do. Even though

> they don't apply exactly to your situation, the drawings and some of the

> details are relevant. I thought the last one was interesting since it

> demonstrates that GI surgeons are trying to find different ways of

> performing the gastrojejunostomy which lessen the possibility of delayed

> gastric emptying (DGE) as a post-surgical problem.

>

> You can do this. I'm really sorry you have to though. It's reassuring

> that your local GI doc says she would do it.

>

> Did to mention what type of gastrojejunostomy (Billroth II, with a

> partition, anything else to describe it?)? Did he say anything about

> improving your ability to eat? What about addressing the pain now and

> post-surgery?

>

>

>

> Re: [ ] Gastrojejunostomy

>

> > Hi ,

> > Thank you for the sites, I have read them. It is helpful, since I

> don't

> > understand why the doctor didn't give me anything. I really think the

> reason

> > is that my insides are so different from anyone else's. I hope to

> educate

> > myself completely before I have this surgery. I remember so well how

> much

> > information you sent me last time that I went into the whipple with a

> full

> > knowledge of what to expect. I just read about after the surgery with

> this

> > one and it seems to be the same as the whipple. I was hoping for no

> tubes

> > but it seems like that is pretty standard with stomach surgery. I

> hope I am

> > strong enough for this, I tell myself I am. Isn't it great that Deb

> is

> > feeling better. That was very scary waiting to see how see was doing.

> Hope

> > her recovery continues to be good. Thank you again my friend for the

> sites,

> > you are an angel.

> > Love,

> > Lynn

> >

> > wrote:

> >

> > > http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=77

> > > http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=48

> > >

> > > http://www.gastroresource.com/GITextbook/en/chapter6/6-5.htm

> > >

> > > http://www.vghtpe.gov.tw/~cmj/6408/640803.pdf

> > >

> > >

>

>

>

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,

After reading the sites I have questions for to. I probably shouldn't

call down there but I am. I want to know the mortality rate on this

surgery. I want to know which gastrojejunostomy I am going to have. Also,

will they take me to intensive care afterwards and for how long. When I had

the whipple, to did not want to be on vacation. He was leaving for

vacation on Sunday and I was operated on Friday. This is happening again, I

want to be sure that he knows that this surgery is scheduled and he will be

leaving. I think he doesn't know that. What can I expect after the

surgery? How are they going to get the bile out of my system. I know I have

to be in the hospital the day before, she said they do it with an IV. Can

you think of anything else? Am I expecting too much?

Lynn (MeMom)

wrote:

> Lynn, you're welcome for the sites. It's the least I can do. Even though

> they don't apply exactly to your situation, the drawings and some of the

> details are relevant. I thought the last one was interesting since it

> demonstrates that GI surgeons are trying to find different ways of

> performing the gastrojejunostomy which lessen the possibility of delayed

> gastric emptying (DGE) as a post-surgical problem.

>

> You can do this. I'm really sorry you have to though. It's reassuring

> that your local GI doc says she would do it.

>

> Did to mention what type of gastrojejunostomy (Billroth II, with a

> partition, anything else to describe it?)? Did he say anything about

> improving your ability to eat? What about addressing the pain now and

> post-surgery?

>

>

>

> Re: [ ] Gastrojejunostomy

>

> > Hi ,

> > Thank you for the sites, I have read them. It is helpful, since I

> don't

> > understand why the doctor didn't give me anything. I really think the

> reason

> > is that my insides are so different from anyone else's. I hope to

> educate

> > myself completely before I have this surgery. I remember so well how

> much

> > information you sent me last time that I went into the whipple with a

> full

> > knowledge of what to expect. I just read about after the surgery with

> this

> > one and it seems to be the same as the whipple. I was hoping for no

> tubes

> > but it seems like that is pretty standard with stomach surgery. I

> hope I am

> > strong enough for this, I tell myself I am. Isn't it great that Deb

> is

> > feeling better. That was very scary waiting to see how see was doing.

> Hope

> > her recovery continues to be good. Thank you again my friend for the

> sites,

> > you are an angel.

> > Love,

> > Lynn

> >

> > wrote:

> >

> > > http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=77

> > > http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=48

> > >

> > > http://www.gastroresource.com/GITextbook/en/chapter6/6-5.htm

> > >

> > > http://www.vghtpe.gov.tw/~cmj/6408/640803.pdf

> > >

> > >

>

>

>

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Lynn, call, call, call! to has an obligation to answer all the

questions you have before such a serious surgery.

In addition to what you have thought of, I would ask him if this surgery

will help you with your eating problems. Also ask him what he believes

is the major source of your pain.

Write everything down so that you don't leave anything out.

You're very welcome for the sites. Let me know if you want me to look

for anything else.

I am feeling better about , thank you. I can't believe she's

called me as many times as she has. I'm trying to leave her alone, but

she is calling me. I'm sure that will end, but I'm enjoying it while it

lasts. It's been a very long week.

Try not to worry,

Re: [ ] Gastrojejunostomy

> ,

>

> After reading the sites I have questions for to. I probably

shouldn't

> call down there but I am. I want to know the mortality rate on this

> surgery. I want to know which gastrojejunostomy I am going to have.

Also,

> will they take me to intensive care afterwards and for how long. When

I had

> the whipple, to did not want to be on vacation. He was leaving

for

> vacation on Sunday and I was operated on Friday. This is happening

again, I

> want to be sure that he knows that this surgery is scheduled and he

will be

> leaving. I think he doesn't know that. What can I expect after the

> surgery? How are they going to get the bile out of my system. I know

I have

> to be in the hospital the day before, she said they do it with an IV.

Can

> you think of anything else? Am I expecting too much?

> Lynn (MeMom)

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Hi Lynn

I'm very sorry to hear that you have to go through another surgery. But

maybe this one will do the trick for you. Try to stay hopeful and try not to

worry too much.

Love and Hugs

Stacey in PA

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I called , and they were nice. It will be a week give or take in the

hospital. Couple of months recovering at home. Mortality rate is 1 to 2%

but she told me, I am young and it is probably a little lower than that.

There is a good chance this will happen again. But I am putting that on the

back burner till it happens. I need to get through this. I ask her about

two surgeries like this back to back and only a year apart. She says I have

a good heart and he wouldn't do it if he had any thought I couldn't handle

it. A lot of what happens when I eat may not change with this surgery. It

is the way things are going to be, even my GI told me this. I can accept

that situation, as I have been learning to deal with it. I have to come off

of my metho, which I remember happened last time too. And that makes sense

to me. This is not as big a surgery as the whipple but it is still up

there. He also told me, I really need to do this, or it will just get

worse. So I guess it is a go.

Has anyone heard how Deb is doing? Keep hoping for good news about her.

Lynn (MEMom)

wrote:

> Lynn, call, call, call! to has an obligation to answer all the

> questions you have before such a serious surgery.

>

> In addition to what you have thought of, I would ask him if this surgery

> will help you with your eating problems. Also ask him what he believes

> is the major source of your pain.

>

> Write everything down so that you don't leave anything out.

>

> You're very welcome for the sites. Let me know if you want me to look

> for anything else.

>

> I am feeling better about , thank you. I can't believe she's

> called me as many times as she has. I'm trying to leave her alone, but

> she is calling me. I'm sure that will end, but I'm enjoying it while it

> lasts. It's been a very long week.

>

> Try not to worry,

>

>

>

> Re: [ ] Gastrojejunostomy

>

> > ,

> >

> > After reading the sites I have questions for to. I probably

> shouldn't

> > call down there but I am. I want to know the mortality rate on this

> > surgery. I want to know which gastrojejunostomy I am going to have.

> Also,

> > will they take me to intensive care afterwards and for how long. When

> I had

> > the whipple, to did not want to be on vacation. He was leaving

> for

> > vacation on Sunday and I was operated on Friday. This is happening

> again, I

> > want to be sure that he knows that this surgery is scheduled and he

> will be

> > leaving. I think he doesn't know that. What can I expect after the

> > surgery? How are they going to get the bile out of my system. I know

> I have

> > to be in the hospital the day before, she said they do it with an IV.

> Can

> > you think of anything else? Am I expecting too much?

> > Lynn (MeMom)

>

>

>

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Hi Kathy,

I go into the University of Penna., on Sept. 26 and they operate the next

day.

Lynn

kringlemom@... wrote:

> <PRE>i'm glad you are finally starting to get some answers lynn, even though

some

> are hard to hear. have you scheduled this yet? kathy in il

>

>

>

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I'm relieved to hear that you called, Lynn! Great, too, that they were kind and

answered your questions. I'm sorry that this is a

big worry for you, but it doesn't sound as if you have any other option.

They will take good care of you. And all of us and that good-looking Jesus will

be right there with you.

Re: [ ] Gastrojejunostomy

> I called , and they were nice. It will be a week give or take in the

> hospital. Couple of months recovering at home. Mortality rate is 1 to 2%

> but she told me, I am young and it is probably a little lower than that.

> There is a good chance this will happen again. But I am putting that on the

> back burner till it happens. I need to get through this. I ask her about

> two surgeries like this back to back and only a year apart. She says I have

> a good heart and he wouldn't do it if he had any thought I couldn't handle

> it. A lot of what happens when I eat may not change with this surgery. It

> is the way things are going to be, even my GI told me this. I can accept

> that situation, as I have been learning to deal with it. I have to come off

> of my metho, which I remember happened last time too. And that makes sense

> to me. This is not as big a surgery as the whipple but it is still up

> there. He also told me, I really need to do this, or it will just get

> worse. So I guess it is a go.

> Has anyone heard how Deb is doing? Keep hoping for good news about her.

> Lynn (MEMom)

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Thanks Kathy, I appreciate your kind thoughts.

Lynn (meMom)

kringlemom@... wrote:

> <PRE>i have it marked on my calender and i will say a prayer for you. please

try

> not to worry too much. i know easier said than done. kathy in il

>

>

>

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Hi Stacey,

I hope this works. But my understanding is that this can happen again. I

think I should worry about that when it happens. Hope you are having a good

day.

Lynn (MeMom)

bintherdunit@... wrote:

> Hi Lynn

> I'm very sorry to hear that you have to go through another surgery. But

> maybe this one will do the trick for you. Try to stay hopeful and try not to

> worry too much.

> Love and Hugs

> Stacey in PA

>

>

>

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k,

I found out last night I am having a Billroth II. At least that is what

my primary told me. He believes I will be better off. However, I have know

him for a great deal of my life, so I think it is a friend talking.

How is making out. I'm sure she is fine, they do get homesick.

Lynn (MeMom)

wrote:

> Lynn, you're welcome for the sites. It's the least I can do. Even though

> they don't apply exactly to your situation, the drawings and some of the

> details are relevant. I thought the last one was interesting since it

> demonstrates that GI surgeons are trying to find different ways of

> performing the gastrojejunostomy which lessen the possibility of delayed

> gastric emptying (DGE) as a post-surgical problem.

>

> You can do this. I'm really sorry you have to though. It's reassuring

> that your local GI doc says she would do it.

>

> Did to mention what type of gastrojejunostomy (Billroth II, with a

> partition, anything else to describe it?)? Did he say anything about

> improving your ability to eat? What about addressing the pain now and

> post-surgery?

>

>

>

> Re: [ ] Gastrojejunostomy

>

> > Hi ,

> > Thank you for the sites, I have read them. It is helpful, since I

> don't

> > understand why the doctor didn't give me anything. I really think the

> reason

> > is that my insides are so different from anyone else's. I hope to

> educate

> > myself completely before I have this surgery. I remember so well how

> much

> > information you sent me last time that I went into the whipple with a

> full

> > knowledge of what to expect. I just read about after the surgery with

> this

> > one and it seems to be the same as the whipple. I was hoping for no

> tubes

> > but it seems like that is pretty standard with stomach surgery. I

> hope I am

> > strong enough for this, I tell myself I am. Isn't it great that Deb

> is

> > feeling better. That was very scary waiting to see how see was doing.

> Hope

> > her recovery continues to be good. Thank you again my friend for the

> sites,

> > you are an angel.

> > Love,

> > Lynn

> >

> > wrote:

> >

> > > http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=77

> > > http://www.yoursurgery.com/ProcedureDetails.cfm?BR=1 & Proc=48

> > >

> > > http://www.gastroresource.com/GITextbook/en/chapter6/6-5.htm

> > >

> > > http://www.vghtpe.gov.tw/~cmj/6408/640803.pdf

> > >

> > >

>

>

>

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Say, Lynn, let's just hope your primary is right. I'm not sure he would

make up a whopper just to make you feel better. I am feeling optimistic

about the surgery, too.

Looks like the Billroth II is the most common type of gastrojejunostomy,

so at least we can guess that to has probably done a lot of them.

I know the waiting for the date to come up must be terribly difficult.

I'm so sorry about that.

is fine. Today is the two-week mark. Hard to believe. She is

still calling me daily. A little while ago, she called for some

homework-related advice. Thank God (or is it Al Gore?) for the Internet.

So easy to send her links. I remember so many trips to the library when

she was younger. Thanks for asking. We are adjusting very well, I think.

Hang in there,

Re: [ ] Gastrojejunostomy

> k,

> I found out last night I am having a Billroth II. At least that

is what

> my primary told me. He believes I will be better off. However, I

have know

> him for a great deal of my life, so I think it is a friend talking.

> How is making out. I'm sure she is fine, they do get

homesick.

> Lynn (MeMom)

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Hi ,

Glad you are getting use to being away. Before you know it she

will be home for Thanksgiving. The waiting for this surgery is terrible, I

wish there was an easier answer. I never wear sweat pants but I bought

some. I remembered how swollen I was last year and couldn't wear my jeans

for awhile. I went to the gyn and just have the last test on Friday. At the

gyn everything is fine and the pain I am having is from scar tissue, so that

is good. I think you should thank God for the internet not Gore, hehe.

Lynn (MeMom)

wrote:

> Say, Lynn, let's just hope your primary is right. I'm not sure he would

> make up a whopper just to make you feel better. I am feeling optimistic

> about the surgery, too.

>

> Looks like the Billroth II is the most common type of gastrojejunostomy,

> so at least we can guess that to has probably done a lot of them.

>

> I know the waiting for the date to come up must be terribly difficult.

> I'm so sorry about that.

>

> is fine. Today is the two-week mark. Hard to believe. She is

> still calling me daily. A little while ago, she called for some

> homework-related advice. Thank God (or is it Al Gore?) for the Internet.

> So easy to send her links. I remember so many trips to the library when

> she was younger. Thanks for asking. We are adjusting very well, I think.

>

> Hang in there,

>

>

>

> Re: [ ] Gastrojejunostomy

>

> > k,

> > I found out last night I am having a Billroth II. At least that

> is what

> > my primary told me. He believes I will be better off. However, I

> have know

> > him for a great deal of my life, so I think it is a friend talking.

> > How is making out. I'm sure she is fine, they do get

> homesick.

> > Lynn (MeMom)

>

>

>

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