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Hi I am new to this site. I have FM,CFS and DDD. I have two kids . I

need help with my fatigue. Is there anything I can do to help with my

fatigue. Between the pain and sleeping all the time my quality of life

is real down. Summer is coming and my kids will be home all day. Is

ther anything I can do???

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Hi there,

First of, I am so sorry you are dealing with this. I have FMS and four children

ages 8, 6, 4

and 2. This is what I do to help with the fatigue. I hope find something that

works for

you.

1. Good sleep hygiene - go to bed at the same time, get up at the same time

every day.

Sleep comfortably with flannel sheets, dark room, mattress pad, pillow between

the knees.

I also take L-tryptophan, pharmacy grade, two capsules every night, which helps

me get

into the deep sleep cycle.

2. I take a nap every afternoon, while my 2 year old is napping. My other

children, if they

are home, know that this is quiet time and they play quietly and watch tv.

3. I gave up caffeine as a regular habit, and instead I drink a cup of coffee

when I feel

unusually tired in the morning and need a boost - not enough to be

habit-forming.

4. I avoid sleep medication that makes me groggy in the morning.

HTH,

T

>

> Hi I am new to this site. I have FM,CFS and DDD. I have two kids . I

> need help with my fatigue. Is there anything I can do to help with my

> fatigue. Between the pain and sleeping all the time my quality of life

> is real down. Summer is coming and my kids will be home all day. Is

> ther anything I can do???

>

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Hi evebo1, I brought up my 2 kids ill with this, so I speak from a very

practical perspective. Of course it depends on how old your kids are.

1) Find them an out of school program, day camp, summer camp, playdate

trades…whatever you can do so that you are not the ultimate provider of all

their recreational needs. Going from “school mommy” to full time with bored

kids on your hands can be quite a shock! Get them involved in household

tasks, even if it takes rewards, and don’t be the one to clean up after all

their activities!

Or, you could hire an au pair/summer help to take them on outings and

generally ride herd on the gang. If you can’t afford these options, there

are usually free/subsidised programs in your community for low-income

people.

2) REST – rest every minute you can. This is the BEST thing you can do for

your long term prognosis. How long have you been ill?

3) IF you have a supportive partner who is working, let them know that you

being ill is like your job, and you do need help with those kids when s/he

is not working. Ditto with any extended family…any grandparents or whoever

to ship them off to, for a couple of weeks? If not, that’s tough. I got sick

when I was recently separated, and though the kids’ dad did stay involved,

he was not at all understanding about how ill I was.

Good Luck! Aylwin xox

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be careful taking L-Tryptophan as it was removed from the market years ago due

to deaths. Again watch out for anything NOT FDA approved. Although sometimes the

FDA approves a drug and then a few years later it is also removed from the

market. for example, Vioxx in 2004. Buyer beware-do your homework and research

and then make your decision. Diane

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I think that was because a batch was contaminated. Obviously, like you said,

any alternative

(not FDA approved) supplement could turn out to be dangerous.

T

>

> be careful taking L-Tryptophan as it was removed from the market years ago

due to

deaths. Again watch out for anything NOT FDA approved. Although sometimes the

FDA

approves a drug and then a few years later it is also removed from the market.

for example,

Vioxx in 2004. Buyer beware-do your homework and research and then make your

decision.

Diane

>

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It does both for me. I know I am sleeping deeper because I no longer hear my

daughter

when she cries at night! A nice problem to have. We leave our bedroom door

open now.

I don't believe this is the answer for everyone. I started out taking Hydroxy 5

tryptophan,

which I understand works better for most people, but not for me.

T.

> >

> > Hi there,

> >

> > First of, I am so sorry you are dealing with this. I have FMS and

> four children ages 8, 6, 4

> > and 2. This is what I do to help with the fatigue. I hope find

> something that works for

> > you.

>

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