The passing of CFIDS pioneer advocate, Kaiser

[Guest guest]

From Kaiser's daughter (may be reposted):

The passing of pioneer advocate Kaiser

It is with great sadness for our family and friends to have lost my

mom, ,to end stages of CFIDS [on] June 14, 2008. The last 6

months my mom has declined in health. I was blessed to have moved

her close to me and we spent a lot of quality time together. Her

illness drastically changed in the last two weeks as she was put in

Hospice care. What ever the neurological event was the finally took

her is unknown at this point, but we will be finding out the cause

of death. To all her friends in the CFIDS community, long term

friends from growing up in Olean and to those who were here in

Albuquerque, you all were such an important part of her world. Being

so disabled, her computer and phone conversations were her lifeline.

To our family who live all over the country, it was family bonds

that she treasured most. She would have done any thing for anyone if

capable. She will be missed by so many. The part you need to know is

that she was at without pain in a coma for several days. As I stood

and looked at her, I saw peace for the first time in 30 some years.

This is difficult for my dad as his health is declining as well. I

know my mom is in heaven looking down on all of us right now. I hope

you know the impact you made on her life as she shared so many

stories with me. My mom was a fighter until the end. She always

hoped that her long journey with CFIDS would help someone else. That

was her goal. I pray you are all able to take away many good

memories of , known as patient " 00 " . My brother Jim is here to

help with lots of things we need to take care of. My mom's wishes

were cremation and no public service.

[Guest guest]

Oh too sad indeed…does anyone know, was she considered “patient 00” because

she first got ill in Incline? I honour her life and work, her battle with

this dread disease, and her memory. Deep condolences to the family and

community. Aylwin xox

[Guest guest]

Yes, this is very sad. First Jerry Crum, now ...<sigh>

FYI, was the first CFS patient to receive Ampligen, and was known

as " Patient 00 " during the drug trial in 1989.

tc, Liz

[Guest guest]

was known as patient OO because she was the first patient to be treated

with Ampligen in the Ampligen clinical trial. May she rest in peace. diane

[Guest guest]

I am so sorry for your loss - your family is in my thoughts and prayers.

>

> From Kaiser's daughter (may be reposted):

>

> The passing of pioneer advocate Kaiser

>

> It is with great sadness for our family and friends to have lost my

> mom, ,to end stages of CFIDS [on] June 14, 2008. The last 6

> months my mom has declined in health. I was blessed to have moved

> her close to me and we spent a lot of quality time together. Her

> illness drastically changed in the last two weeks as she was put in

> Hospice care. What ever the neurological event was the finally took

> her is unknown at this point, but we will be finding out the cause

> of death. To all her friends in the CFIDS community, long term

> friends from growing up in Olean and to those who were here in

> Albuquerque, you all were such an important part of her world. Being

> so disabled, her computer and phone conversations were her lifeline.

> To our family who live all over the country, it was family bonds

> that she treasured most. She would have done any thing for anyone if

> capable. She will be missed by so many.