RE: thanks Carol

[Guest guest]

Carol, you are so right, I am so glad it's not RA. I have a great deal of

respect for anyone who has to live with RA. I don't think people realize how

disabling and painful RA is, in my opinion it's as devastating as MS.

thanks again for your support and encouragement, I will be unsubbing soon, just

want to say goodbye and thank you.

Debbie

Carol wrote:Oh Debbie, I'm so happy for you. The thought of a complete

recovery must be

enough to have you dancing in the streets! It certainly sounds weird to say

I'm happy that you have Lyme disease, but it certainly beats RA.

Celebrate, and get well soon.

Much love,

Carol

[ ] test results - + lyme

Hi all,

Well the lyme disease test I asked for came back positive. My PCP is

starting me on tetracycline. RA factor was negative again. There has been

much celebrating at work and at home. Funny to hear everyone congratulating

me on Lyme Disease! It all makes sense though, the neurological, the

arthritis, the fatigue, weakness and pain I've been living with for the past

year. I am hoping that this is all there is to it.

This is the funny part. I called my old PCP who had done a lyme test one

week into the numbness and tingling and she said it was negative. I asked

to verify that it was negative. She said I only had three bars of 10 and I

needed 5 of 10 for the western blot, and maybe my current Dr didn't know how

to read these sophisticated tests. She said my rheumy did a type of lyme

disease test she hadn't seen before, a lyme titre, and read the results of

IGg and IGm as negative but positive for old infection. I had a copy of my

results and saw what she was looking at, it was my Epstein Barr test!

Started the tetracycline yesterday and hoping to have a second chance at

happier healthier days. I still have an appointment with the new rheumy

mid-September and plan on keeping it because I found he spoke on guess what,

Lyme Arthritis!

happy today,

Debbie

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