Kathi

[Guest guest]

(((((Kathi)))))

I'm so sorry you are having all these problems, you must be very scared and

worried. It's great that you are going to get a better opinion. I will

pray for you that they can do something to help and give you some answers.

I loved reading about your dolls, what a lovely way to make people laugh!

You are in my thoughts and prayers.

Love and hugs,

Heidi

P.S. I laughed so much over your toilet seat joke I had to run to the loo!

Thank goodness I'm at home LOL! :-) Thanks

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[Guest guest]

I know what you mean about the sleep-overs. Sleep? Never. What made it all

worse was that the little girl that spent the night is really obnoxious. To

me, anyway. I hate to say this about any child, but I really could not wait

for her to go home. She kept chasing my cats, barging in doors that were

closed without knocking (I was almost too paranoid to get dressed or go to

the bathroom.), and she would only eat candy (which she helped herself to).

I was afraid to let them play out in the yard because of the pervert

neighbor, so they were in the house the whole time. Anyway, its over now and

we have survived. I'll know better next time. Wyatt had fun and sometimes,

that is what matters.

Love and Hugs

Stacey in PA

[Guest guest]

Stacey: Really I have good docs ..just I think first

scleroderma is not a common disease and most docs dont

see SD patients...my rheumy has and was at the

research center in Houston for awhile, but my primary

says the only SD he saw was in a text book in medical

school..I think they are doing the best they can with

a very confusing patient that has an overlap

autoimmune disease with something else going on they

cant define....so yes it is time for a major center in

hopes they can put it all together....but I believe my

local docs are doing the best they can and even if it

means they have to say I dunno ...better that than we

can fix this and not have a clue as to what they are

fixing....sounds like you had a busy weekend..we did

sleepover here also...although I never did get that

terminology as no one ever gets any sleep....LOL Kathi

in OK

--- bintherdunit@... wrote:

> Hi Kathi,

> Sorry to hear about your experience with the dr.

> Sometimes you wonder if

> they got their license as a prize in a cereal box.

> I hope that you can find

> one that will give you some other options. Wyatt

> and I had a busy weekend.

> Picnics and sleepovers. We spent all day yesterday

> at the firehall. They

> had a picnic for all of the members with fireworks

> at the end. It was pretty

> nice, but at the end, people started to get drunk

> from the free beer and I

> couldn't wait for the fireworks so I could gather

> Wyatt and leave. All in

> all, it was a very tiring weekend and, personally,

> I'm glad its over. It was

> nice while it lasted, but I'm glad its over. I have

> my second Remicade

> infusion on Thursday and I can tell that it's time.

> My hands and ankles are

> hurting. Not as bad as I know that they can get,

> but the RA is letting me

> know that it is still here. I plan on relaxing as

> much as possible today. I

> have already cleaned the toilet and the litter box,

> ran the vacuum, and added

> water to both of the fish tanks. That's enough for

> me today. Now I just

> have to keep after Wyatt to clean up his mess and

> that's it. He's a great

> procrastinator, but I guess he learned from the

> best. Me. I hope that you

> can get some relief soon. Its terrible how this

> disease can drain all the

> hope right out of you sometimes. I hope this does

> not happen with you.

> Love and Hugs

> Stacey in PA

>

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Be kind, for everyone you meet is fighting a harder battle. " Plato

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