Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 a, I had dizzyness like you describe, but not that kind of pain. That sounds awful. I am so sorry. For my dizzyness it was low aldosterone. You can have this test run by your doctor. Have you had other hormones tested besides thyroid? Darla > > When I was first diagnosed with Hashi's, I had pains that would > happen all over my body, mostly targeting joints and muscles in my > back, hips and arms. I have been taking armour for over a year now > and I am currently taking 300mg a day, 180 in the morning and 120 at > night. I have seen improvement in almost all areas except a couple. > One, my hormones still rage out of control for two or three days a > month, but at least I can request off those days or call out sick. > My main problem is this: Sometimes I get very dizzy, or woozy, like > my head is filled with water and I'm off-balance. Also, I get SEVERE > pain that shoots through my skull and makes me lose vision and > control for a few moments. As soon as it's over, I'm fine, and I > have no " side effects " but I live in fear of the next time they will > come. It usually happens once, like a warning shot, and then some > time later, (anywhere from 20min to an hour), I will have about ten > seconds of this pain. Believe me, I have gone to the ER with these > pains before, when I didn't know what they were. But this pain in my > head...it's another beast. I don't remember how to breathe when it > happens, I cry immediately because it hurts so bad. I'm a waitress, > and I'm lucky that it doesn't happen when I'm carrying plates, but > one day it will. Does anyone have suggestions as to how to control > this? I'm desperate. Thanks! a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 I don't know much about why Hashi's would cause these symptoms, a, but I would keep trying doctors who can run tests to see what's going on. We are more prone to pituitary tumors (usually benign, but the pituitary is in the head), also 's Disease... sounds to me like they should run some tests, an MRI perhaps. Don't wait to go to the ER, keep trying with docs, start with a GP and perhaps see an endo or neurologist? > > When I was first diagnosed with Hashi's, I had pains that would > happen all over my body, mostly targeting joints and muscles in my > back, hips and arms. I have been taking armour for over a year now > and I am currently taking 300mg a day, 180 in the morning and 120 at > night. I have seen improvement in almost all areas except a couple. > One, my hormones still rage out of control for two or three days a > month, but at least I can request off those days or call out sick. > My main problem is this: Sometimes I get very dizzy, or woozy, like > my head is filled with water and I'm off-balance. Also, I get SEVERE > pain that shoots through my skull and makes me lose vision and > control for a few moments. As soon as it's over, I'm fine, and I > have no " side effects " but I live in fear of the next time they will > come. It usually happens once, like a warning shot, and then some > time later, (anywhere from 20min to an hour), I will have about ten > seconds of this pain. Believe me, I have gone to the ER with these > pains before, when I didn't know what they were. But this pain in my > head...it's another beast. I don't remember how to breathe when it > happens, I cry immediately because it hurts so bad. I'm a waitress, > and I'm lucky that it doesn't happen when I'm carrying plates, but > one day it will. Does anyone have suggestions as to how to control > this? I'm desperate. Thanks! a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 I do know that my estrogen is very high and my progesterone very low. I used to control this with birth control, but my husband and I would like to start a family soon, so BC is out of the question right now. In reply to and Darla: Thank you both for your suggestions. I will talk to my docter about both ideas. I will try never to go the ER by me again. When I went, it took three hours to be seen and by then the pain was subsiding. They gave me a script for Valium and walked away. A complete waste of my time, and theirs. I will keep you updated, thanks again! a > > > > When I was first diagnosed with Hashi's, I had pains that would > > happen all over my body, mostly targeting joints and muscles in my > > back, hips and arms. I have been taking armour for over a year now > > and I am currently taking 300mg a day, 180 in the morning and 120 > at > > night. I have seen improvement in almost all areas except a > couple. > > One, my hormones still rage out of control for two or three days a > > month, but at least I can request off those days or call out sick. > > My main problem is this: Sometimes I get very dizzy, or woozy, > like > > my head is filled with water and I'm off-balance. Also, I get > SEVERE > > pain that shoots through my skull and makes me lose vision and > > control for a few moments. As soon as it's over, I'm fine, and I > > have no " side effects " but I live in fear of the next time they > will > > come. It usually happens once, like a warning shot, and then some > > time later, (anywhere from 20min to an hour), I will have about ten > > seconds of this pain. Believe me, I have gone to the ER with these > > pains before, when I didn't know what they were. But this pain in > my > > head...it's another beast. I don't remember how to breathe when it > > happens, I cry immediately because it hurts so bad. I'm a > waitress, > > and I'm lucky that it doesn't happen when I'm carrying plates, but > > one day it will. Does anyone have suggestions as to how to control > > this? I'm desperate. Thanks! a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 hi a and i have had severe dizziness, plus tinnitus 24/7 for Decades and was diagnosed as must having " menierre's finally after 30 years of this and have had shooting head pains (due to barmotric changes) as well as 24/7 headache since drs forced me onto synthroid back in the 80s. 2 months ago, for the first time, i Finally tested my aldosterone and it was high!! (tho only slightly,, just like my cortisol :)and renin. Definitely do some basic conventional blood tests of ACTH , 8AM cortisol and Aldosterone and renin (and potassium and sodium) for most accurate results : ACTH, cortisol and ALdosterone or Diurnal, so do at 8AM. should do the ALdosterone test on days 1-7 of your cycle fast salt the day before (don't eat canned soups or other salted foods like cheese or potato chips to more accurately test potassium: do NOT squeeze your fist before getting blood drawn.. (that falsely raises blood Potassium levels!!) and they shouldn't use a band on your arm (my veins are so hard to find, i did Not do that for my K tests -- and read up on adrenal fatigue and the best diet/nutrition and vitamins (C, Bs) -conventional medicine is just recently started studying ALdosterone and its role is Much more complex than just BP They know now it causes anxiety!! -Carol PS you should also do a 24hr cortisol Saliva test if you haven't done so yet.. > > > > When I was first diagnosed with Hashi's, I had pains that would > > happen all over my body, mostly targeting joints and muscles in my > > back, hips and arms. I have been taking armour for over a year now > > and I am currently taking 300mg a day, 180 in the morning and 120 > at > > night. I have seen improvement in almost all areas except a > couple. > > One, my hormones still rage out of control for two or three days a > > month, but at least I can request off those days or call out sick. > > My main problem is this: Sometimes I get very dizzy, or woozy, > like > > my head is filled with water and I'm off-balance. Also, I get > SEVERE > > pain that shoots through my skull and makes me lose vision and > > control for a few moments. As soon as it's over, I'm fine, and I > > have no " side effects " but I live in fear of the next time they > will > > come. It usually happens once, like a warning shot, and then some > > time later, (anywhere from 20min to an hour), I will have about ten > > seconds of this pain. Believe me, I have gone to the ER with these > > pains before, when I didn't know what they were. But this pain in > my > > head...it's another beast. I don't remember how to breathe when it > > happens, I cry immediately because it hurts so bad. I'm a > waitress, > > and I'm lucky that it doesn't happen when I'm carrying plates, but > > one day it will. Does anyone have suggestions as to how to control > > this? I'm desperate. Thanks! a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 If you have high aldosterone and renin , these items can make them elevate Taking medicines, such as female hormones (progesterone and estrogen), corticosteroids, heparin, opiates, laxatives, nonsteroidal anti-inflammatory drugs (NSAIDs), and diuretics. Most medicines used to treat high blood pressure, especially spironolactone (Aldactone), increase blood levels of aldosterone and renin. Re: sever pain and dizzyness hi aand i have had severe dizziness, plus tinnitus 24/7 for Decades and was diagnosed as must having "menierre'sfinally after 30 years of thisand have had shooting head pains (due to barmotric changes) as well as 24/7 headache since drs forced me onto synthroid back in the 80s.2 months ago, for the first time, i Finally tested my aldosterone and it was high!! (tho only slightly,, just like my cortisol :)and renin.Definitely do some basic conventional blood tests of ACTH , 8AM cortisol and Aldosterone and renin (and potassium and sodium)for most accurate results :ACTH, cortisol and ALdosterone or Diurnal, so do at 8AM.should do the ALdosterone test on days 1-7 of your cyclefast salt the day before (don't eat canned soups or other salted foods like cheese or potato chips :)to more accurately test potassium: do NOT squeeze your fist before getting blood drawn.. (that falsely raises blood Potassium levels!!)and they shouldn't use a band on your arm (my veins are so hard to find, i did Not do that for my K tests --and read up on adrenal fatigue and the best diet/nutrition and vitamins (C, Bs)-conventional medicine is just recently started studying ALdosterone and its role is Much more complex than just BP They know now it causes anxiety!!-CarolPS you should also do a 24hr cortisol Saliva test if you haven't done so yet..> >> > When I was first diagnosed with Hashi's, I had pains that would > > happen all over my body, mostly targeting joints and muscles in my > > back, hips and arms. I have been taking armour for over a year now > > and I am currently taking 300mg a day, 180 in the morning and 120 > at > > night. I have seen improvement in almost all areas except a > couple. > > One, my hormones still rage out of control for two or three days a > > month, but at least I can request off those days or call out sick. > > My main problem is this: Sometimes I get very dizzy, or woozy, > like > > my head is filled with water and I'm off-balance. Also, I get > SEVERE > > pain that shoots through my skull and makes me lose vision and > > control for a few moments. As soon as it's over, I'm fine, and I > > have no "side effects" but I live in fear of the next time they > will > > come. It usually happens once, like a warning shot, and then some > > time later, (anywhere from 20min to an hour), I will have about ten > > seconds of this pain. Believe me, I have gone to the ER with these > > pains before, when I didn't know what they were. But this pain in > my > > head...it's another beast. I don't remember how to breathe when it > > happens, I cry immediately because it hurts so bad. I'm a > waitress, > > and I'm lucky that it doesn't happen when I'm carrying plates, but > > one day it will. Does anyone have suggestions as to how to control > > this? I'm desperate. Thanks! a> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 Us Hashi's people are more likely to form pituitary tumors??? I've not heard this and am very concerned about this, as I started out years ago with the green colored milk in my breasts for around 2 yrs or so. Thing is, I had not had a baby for around 10 yrs before that and never another baby after that! What I read about that was that the substance that helps us form milk in the breasts is usually high, in that instance, and that this can be from a pituitary tumor. He ran that test, found it " normal " , at least in HIS thinking, and never ordered an MRI. My symptoms of Hashi's had already started. I researched the thing on empty sella syndrome then, but he would never do an MRI, so I dismissed it. Re: sever pain and dizzyness >I don't know much about why Hashi's would cause these symptoms, a, > but I would keep trying doctors who can run tests to see what's going > on. We are more prone to pituitary tumors (usually benign, but the > pituitary is in the head), also 's Disease... sounds to me like > they should run some tests, an MRI perhaps. Don't wait to go to the > ER, keep trying with docs, start with a GP and perhaps see an endo or > neurologist? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 My pituitary tumor was diagnosed back in the 90's, Hashi's a year ago. I started with the breast milk, my prolactin level was high, but nothing showed on the MRI- so the dr. put my symptoms off on me being overweight. The tumor was actually found by another doctor 12 years later, when the symptoms intensified. I think I've been not right for most of my life, and all the doctors didn't take me seriously because of my size. --- wrote: > Us Hashi's people are more likely to form pituitary > tumors??? I've not > heard this and am very concerned about this, as I > started out years ago with > the green colored milk in my breasts for around 2 > yrs or so. Thing is, I > had not had a baby for around 10 yrs before that and > never another baby > after that! What I read about that was that the > substance that helps us > form milk in the breasts is usually high, in that > instance, and that this > can be from a pituitary tumor. He ran that test, > found it " normal " , at > least in HIS thinking, and never ordered an MRI. My > symptoms of Hashi's had > already started. I researched the thing on empty > sella syndrome then, but > he would never do an MRI, so I dismissed it. > > > > Re: sever pain and dizzyness > > > >I don't know much about why Hashi's would cause > these symptoms, a, > > but I would keep trying doctors who can run tests > to see what's going > > on. We are more prone to pituitary tumors (usually > benign, but the > > pituitary is in the head), also 's > Disease... sounds to me like > > they should run some tests, an MRI perhaps. Don't > wait to go to the > > ER, keep trying with docs, start with a GP and > perhaps see an endo or > > neurologist? > > > > > > ________________________________________________________________________________\ ____ Special deal for Yahoo! users & friends - No Cost. Get a month of Blockbuster Total Access now http://tc.deals.yahoo.com/tc/blockbuster/text3.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 boxingchef13 wrote: > Also, I get SEVERE > pain that shoots through my skull and makes me lose vision and > control for a few moments. As soon as it's over, I'm fine, and I > have no " side effects " but I live in fear of the next time they will > come. No answers, but wanted to let you know I've had sharp very severe shooting pains in my head. They blanked out vision momentarily, and used to darn near knock me to my knees. Very much as if an ice pick had suddenly been driven into my head. Never happened regularly, usually only one pain per episode though once in a while there would be 2 or more some seconds or minutes apart. I used to believe I had a brain tumor. No one who hasn't felt them can imagine how bad the pain is, even though very brief, only a fraction of a second. But frightening! Oh, my. I haven't had them much in recent years, thankfully, and I've never known what caused them or why they stopped. sol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 I think we are just more prone to endocrine and hormone disorders in general.. of course a pituitary tumor without Hashis can cause hypothyroidism all by itself. This is a good site with a very enlightening video (I can't get to play right now, crashing my browser) about a newscaster with a tumor who was also not taken seriously because of her size: http://www.goodhormonehealth.com/ Keep in mind I have no idea what is causing a's symptoms, of course... this was just something that came to mind. These tumors are usually easily removed, believe it or not. > > > Us Hashi's people are more likely to form pituitary > > tumors??? I've not > > heard this and am very concerned about this, as I > > started out years ago with > > the green colored milk in my breasts for around 2 > > yrs or so. Thing is, I > > had not had a baby for around 10 yrs before that and > > never another baby > > after that! What I read about that was that the > > substance that helps us > > form milk in the breasts is usually high, in that > > instance, and that this > > can be from a pituitary tumor. He ran that test, > > found it " normal " , at > > least in HIS thinking, and never ordered an MRI. My > > symptoms of Hashi's had > > already started. I researched the thing on empty > > sella syndrome then, but > > he would never do an MRI, so I dismissed it. > > > > > > > > Re: sever pain and dizzyness > > > > > > >I don't know much about why Hashi's would cause > > these symptoms, a, > > > but I would keep trying doctors who can run tests > > to see what's going > > > on. We are more prone to pituitary tumors (usually > > benign, but the > > > pituitary is in the head), also 's > > Disease... sounds to me like > > > they should run some tests, an MRI perhaps. Don't > > wait to go to the > > > ER, keep trying with docs, start with a GP and > > perhaps see an endo or > > > neurologist? > > > > > > > > > > > > > > ________________________________________________________________________________\ ____ > Special deal for Yahoo! users & friends - No Cost. Get a month of Blockbuster Total Access now > http://tc.deals.yahoo.com/tc/blockbuster/text3.com > Quote Link to comment Share on other sites More sharing options...
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