Jan in CA

[Guest guest]

Jan,

You have a lot going on. I hope Richie is doing much better today and

that you both can get better sleep now.

Your doctor sounds marvelous. I believe there are others out there like

her, but you really have to search. Lucky you!

I'm glad she is going to investigate your case further.

As for the " poly " mystery, here are some choices for you (there are more

" poly " terms that may be related to what your doctor has in mind, but

they are more general - polyarthralgia, polyarthritis, polyarthropathy,

polyarticular joint disease):

polyarteritis nodosa (PAN)

polychondritis, relapsing (RP)

polymyalgia rheumatica (PMR)

polymyositis (PM)

Do any of those ring a bell?

Have a much better end of the week!

[ ] a and

>

> I haven't posted for a while because things have been rough for the

past week or so. My grandson has been battling a virus since last

Monday. He has wakened almost every night in the wee hours of the

morning with severe throat pain and eventually an earache. This last

weekend, we both spent most of it in bed. Mine was mostly exhaustion

from 3-4 hours of interruped sleep every night, trying to catch what he

has and a bad flare of extreme pain. His doctor yesterday evening put

him on an antibiotic (he's been on motrin for the whole week) and it

kicked in last night and he got a full night's sleep and I had a little

longer sleep. He went to the first day of school(I think he willed

himself to go as he was excited about going back to school)but by the

time he was out, he was running a 102 degree temp again. His doctor is

having him miss two days of school and go back on Friday if his temp

doesn't shoot up again. Today, he was a 100% better and finally after 4

days, ate some food. He has been subsiding on fluids.

>

> Today I went to my doctor. The more I see her, the more I like her.

She went over my test results with me. My LDL(bad cholesterol) is 54

and the good one(HDL) is 42 and she is very pleased with that. My B-12

level is 192(low normal ranges from 211 to 911 high normal)and she says

I have pernicious anemia and will need lifetime maintaince of B-12

shots. My blood sugar is 97 and again she feels that is good. However,

my sed rate is 51(normal 1-20) and she wants to watch that and is going

to do a complete physical (more than just the routine) next month. She

said her feeling is that I may also have Poly..............(I'm sorry,

forgot the name as soon as I left) which is another auto immune disease

along with the FMS. Do you have any idea what she said to me with clue

of Poly....? I'm sure that I would recognize the name if I heard it

again. Another good news is that I've lost 13 lbs since my visit the

end of July. She also told me that I have IBS and over-active bladder.

The latter I knew because at one time I took Datrol for it for years but

was taken off 2 years ago when I had the blood clot in my lung and I was

not put back onto it. Since I gave up the Elavil in July, I have been

troubled by incontinence. Never happened at work, thank goodness,

though the urge was there but has happened at least a half dozen times

since July. During the night, when I wake up and rush to the bath room

or getting out of the car., etc. She gave me a prescription for Datrol

slow release and she feels it will be better that the plain Datrol. She

listens to everything I have to say or ask and acts like I am her only

patient. I have not had a doctor like her for over 20 years and thought

doctors like her died out a long time ago.

>

> I have read all the posts and even made some notes to respond to but I

am just too tired to put them all down tonight. I'm so glad Debs is

home from the hospital and hope the Cabana boys are entertaining her

outside her window. I haven't missed any work but I pay for it in the

evenings when I just vegetate and hope and pray to get sleepy even

though I am exhausted beyond words.

>

> Will close for now and will post tomorrow or Friday. Thanks for any

information you might find for me. You gals are just awesome. Love to

everyone in my family and others have said it before and I'll say it

again - you are more like family than my own family when it comes to

understanding. Jan in CA +/:=)