Doctor's Visit

April 5, 2004

Dear Jackie,

Thanks for sending us your update with your rheumatologist. I

created a file and entered it into our Member Medical History Files. I

couldn't find a " case history " that you sent in, so I pieced two

emails together. Your dr. sounds quite thorough! I imagine she has

already done a chest x-ray to check for sarcoidosis and the various

blood work to look for infections? Those are usually done first.

Sounds like the drugs you are going to try are the ones that

quite a few of our members have experience with, especially those with

RA, Sarc. and Crohn's. With MD and Glaucoma, you are already under

the care of an opthalmologist and probably already have a baseline

field test, so that is good.

You might want to show this site to your doctor. If nothing

shows up in the cat scan, she might get some ideas of what else to

look for. Just give her the group site:

http://health.groups.yahoo.com/group/erythema_nodosum_Group/

and she can read all the resources. I would not be surprised if we

have more info. here than in many medical books.

Have a Happy Day, Jackie!

Love,

PS: I'm getting good results from wearing my TED stocking too. It

really keeps the redness and edema down.

> Hi & Group,

> Just got back from the Rheumatologist to see what treatment she had

> in mind after having the biopsy done last month. She is putting me

> on prednesone and plaquill, that is if the eye doctor says it is ok

> to take the plaquill as I have other eye problems such as macular

> degeneration and glaucoma. Anyway, she said that sometimes this

> disease is a precursor for a malignancy and is sending me for a cat

> scan of the chest, abdomin and pelvis to be sure she is not missing

> anything. They will call me and let me know when they schedule the

> cat scans and I will keep you posted. She was amazed at how bad my

> leg has gotten in such a short time as it has really spread and

> inflammed the whole lower part of the leg and not just a few lumps as

> was there a few months ago. It's like they all meshed into one big

> area, swollen, red and looking like swiss cheese with all the dents.

> Just hope that this medication helps with the pain and swelling. I

> told her that I was back to wearing the TED stockings to help with

> the swelling and she said to continue wearing them as it will help.

>

> I continue to read all your posings and great ideas. Thanks for all

> your help and support.

>

> Jackie Siraco

April 5, 2004

Yes , the blood work and chest x-rays have already been done as you suspected. The doctor I am going to is very thorough and I am so glad to have found her. As for my opthomologist, I had just gone to him last week and after talking to him today he said to please call back for an appointment within 6 months so he can check the retina. I will keep you posted from time to time as to what is going on. Thanks for all your help. This is a good group and glad I joined as I've found out a lot since joining last month.

Love,

Jackie

Re: Doctor's visit

Dear Jackie, Thanks for sending us your update with your rheumatologist. Icreated a file and entered it into our Member Medical History Files. Icouldn't find a "case history" that you sent in, so I pieced twoemails together. Your dr. sounds quite thorough! I imagine she hasalready done a chest x-ray to check for sarcoidosis and the variousblood work to look for infections? Those are usually done first. Sounds like the drugs you are going to try are the ones thatquite a few of our members have experience with, especially those withRA, Sarc. and Crohn's. With MD and Glaucoma, you are already underthe care of an opthalmologist and probably already have a baselinefield test, so that is good. You might want to show this site to your doctor. If nothingshows up in the cat scan, she might get some ideas of what else tolook for. Just give her the group site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/and she can read all the resources. I would not be surprised if we have more info. here than in many medical books. Have a Happy Day, Jackie! Love, PS: I'm getting good results from wearing my TED stocking too. Itreally keeps the redness and edema down.> Hi & Group,> Just got back from the Rheumatologist to see what treatment she had > in mind after having the biopsy done last month. She is putting me > on prednesone and plaquill, that is if the eye doctor says it is ok > to take the plaquill as I have other eye problems such as macular > degeneration and glaucoma. Anyway, she said that sometimes this > disease is a precursor for a malignancy and is sending me for a cat > scan of the chest, abdomin and pelvis to be sure she is not missing > anything. They will call me and let me know when they schedule the > cat scans and I will keep you posted. She was amazed at how bad my > leg has gotten in such a short time as it has really spread and > inflammed the whole lower part of the leg and not just a few lumps as > was there a few months ago. It's like they all meshed into one big > area, swollen, red and looking like swiss cheese with all the dents. > Just hope that this medication helps with the pain and swelling. I > told her that I was back to wearing the TED stockings to help with > the swelling and she said to continue wearing them as it will help.> > I continue to read all your posings and great ideas. Thanks for all > your help and support.> > Jackie Siraco

April 10, 2004

Sharon-

Thanks for the input about the eye. I've already been dealing with

dry eye for the last 2-3 yrs. already... Sure hope it doesn't get

worse. Will keep everyone posted as the CT scan is scheduled for

next Wed. and my return visit to the doctor is on the 21st.

Fingers are crossed, that's for sure..

Jackie

-- In erythema_nodosum_Group , " Sharon Carlson "

<jerryc2@b...> wrote:

> Jackie one thing he may find is Dry Eye Syndrome.

>

> Sharon

> Re: Doctor's visit

>

> Dear Jackie,

> Thanks for sending us your update with your

rheumatologist. I

> created a file and entered it into our Member Medical History

Files. I

> couldn't find a " case history " that you sent in, so I pieced two

> emails together. Your dr. sounds quite thorough! I imagine she

has

> already done a chest x-ray to check for sarcoidosis and the

various

> blood work to look for infections? Those are usually done

first.

> Sounds like the drugs you are going to try are the ones

that

> quite a few of our members have experience with, especially

those with

> RA, Sarc. and Crohn's. With MD and Glaucoma, you are already

under

> the care of an opthalmologist and probably already have a

baseline

> field test, so that is good.

> You might want to show this site to your doctor. If

nothing

> shows up in the cat scan, she might get some ideas of what else

to

> look for. Just give her the group site:

> http://health.groups.yahoo.com/group/erythema_nodosum_Group/

> and she can read all the resources. I would not be surprised if

we

> have more info. here than in many medical books.

> Have a Happy Day, Jackie!

> Love,

>

> PS: I'm getting good results from wearing my TED stocking too.

It

> really keeps the redness and edema down.

>

> > Hi & Group,

> > Just got back from the Rheumatologist to see what treatment

she had

> > in mind after having the biopsy done last month. She is

putting me

> > on prednesone and plaquill, that is if the eye doctor says it

is ok

> > to take the plaquill as I have other eye problems such as

macular

> > degeneration and glaucoma. Anyway, she said that sometimes

this

> > disease is a precursor for a malignancy and is sending me for

a cat

> > scan of the chest, abdomin and pelvis to be sure she is not

missing

> > anything. They will call me and let me know when they

schedule the

> > cat scans and I will keep you posted. She was amazed at how

bad my

> > leg has gotten in such a short time as it has really spread

and

> > inflammed the whole lower part of the leg and not just a few

lumps as

> > was there a few months ago. It's like they all meshed into

one big

> > area, swollen, red and looking like swiss cheese with all the

dents.

> > Just hope that this medication helps with the pain and

swelling. I

> > told her that I was back to wearing the TED stockings to help

with

> > the swelling and she said to continue wearing them as it will

help.

> >

> > I continue to read all your posings and great ideas. Thanks

for all

> > your help and support.

> >

> > Jackie Siraco

>

April 11, 2004

Jeff right along with the Restasis my ophthalmologist put me on Alrex twice a

day left eye and the Restasis twice a day both eyes and to use Refresh Plus

whenever needed. Then Allergan Liqigel at bedtime.

I am also on Methotrexate, but then the rest of my meds are Imuran and

Plaquenil.

Sharon

Re: Doctor's visit

<tt>

hello jackie and others,

i thought i might share some info on this autoimmune dry eye business

for those that may be interested.

it has been known for some time, people suffering from various

autoimmunity problems, ra, ibd and others often suffer from dry eye

syndrome.

i have crohns and also scleritis in my left eye. the scleritis is a

cronic inflammation type situation. many immunomodulators such as

prednesone, imuran, fk-47 and so forth will ease this inflammation.

i am currently on methotrexate and remicade. neither of these touch

the scleritis. i have been using a nsaid drop called voltaren to

keep the inflammation down.

i have an opthamologist that is well versed in autoimmunity

diseases. he suggested something on the market available via rx

called " restasis " . it is a cyclosporine emulshion. it is

specifically developed for us people with autoimmune problems and dry

eye. i noticed it also keeps down the inflammation.

there is a " program " allergan, inc. has for 3 months use of the

product for free, all you have to do is call in on an 800 number to

answer some survey questions. it worked quite easily. the doc has

to give you a coupon and you call the 800 number to register and get

started, then you go to any pharmacy and they fill the rx for free.

the daily dose comes in little individual viles, but i can get 2 days

out of a vile at 2 drops per eye per day.

hope the suggestion helps out for anyone interested.

jeff

> > Jackie one thing he may find is Dry Eye Syndrome.

>

</tt>

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April 11, 2004

hello jackie and others,

i thought i might share some info on this autoimmune dry eye business

for those that may be interested.

it has been known for some time, people suffering from various

autoimmunity problems, ra, ibd and others often suffer from dry eye

syndrome.

i have crohns and also scleritis in my left eye. the scleritis is a

cronic inflammation type situation. many immunomodulators such as

prednesone, imuran, fk-47 and so forth will ease this inflammation.

i am currently on methotrexate and remicade. neither of these touch

the scleritis. i have been using a nsaid drop called voltaren to

keep the inflammation down.

i have an opthamologist that is well versed in autoimmunity

diseases. he suggested something on the market available via rx

called " restasis " . it is a cyclosporine emulshion. it is

specifically developed for us people with autoimmune problems and dry

eye. i noticed it also keeps down the inflammation.

there is a " program " allergan, inc. has for 3 months use of the

product for free, all you have to do is call in on an 800 number to

answer some survey questions. it worked quite easily. the doc has

to give you a coupon and you call the 800 number to register and get

started, then you go to any pharmacy and they fill the rx for free.

the daily dose comes in little individual viles, but i can get 2 days

out of a vile at 2 drops per eye per day.

hope the suggestion helps out for anyone interested.

jeff

> > Jackie one thing he may find is Dry Eye Syndrome.

>

April 13, 2004

No, just the Dry Eye.

I am on Methotrexate for my Sarcoidosis.

Sharon

>

> Date: Mon Apr 12, 10:50 PM

> To: erythema_nodosum_Group

> Subject: Re: Doctor's visit

>

hi sharon,

do you have other eye complications besides the dry eye? why are you

on mtx? do you have cd?

jeff

>

> Jeff right along with the Restasis my ophthalmologist put me on

Alrex twice a day left eye and the Restasis twice a day both eyes and

to use Refresh Plus whenever needed. Then Allergan Liqigel at

bedtime.

>

> I am also on Methotrexate, but then the rest of my meds are Imuran

and Plaquenil.

>

> Sharon

>

August 22, 2008

Hey everyone and I hope you are breathing well. Off topic of the

rest of this post, I read in prevention magazine that Pine bark

extract really helped people with their asthma in an Iranian study,

and that 65% of the people in the study were able to reduce their

meds. Worth researching.

I went to the doctor today to see the physician assistant and it has

to be the worst visit I have ever had (even including the doctor I

went to for chronic fatigue in my twenties who told me it was

because I was " too pretty " and probably suffering from too much

attention). I brought my records from my old primary where I moved

from and she looked at the tests and then said she thinks she wants

to move forward with a psychiatric evalution. I told her my forehead

and temples have so much pressure I feel like they are going to

explode, and my wheezing has gotten worse since the move. She said

in a rude voice " Well, you're not wheezing now. " I guess she

actually thought I was making up the wheezing, not sure why the

documents from emergency noting wheezing didn't help. She grilled me

about drug use and seemed suspicious when I said " No, I don't drink,

no I don't smoke, I don't use drugs, I don't use marajuana " Then she

asks do you ingest marajuana or intake it in any other way? " My god,

get off the marajuana, I don't even drink coffee for gosh sakes. I

finally had to say " Do you think you might want to consider my

sinuses since I am telling you my head feels like it is going to

explode and my sinuses are inflamed? " She said she would review my

sinus x-ray from a few months ago (one an allergist ordered and said

I had an infection, and my primary disagreed and said she didn't

think I needed the antibiotics prescribed) and possibly order

another to match them. But at this point I have no intention of

going back even if she does decide I am actually in need of medical

care.

Thanks for listening, I am just so frustrated. It's hard enough

being sick without getting insentive rude physician's assistants.

August 22, 2008

Oh I just hate it when doctors treat you that way. I have had that in the past.

Cheryl Burton ncicheryl@...

Doctor's Visit

Hey everyone and I hope you are breathing well. Off topic of the rest of this post, I read in prevention magazine that Pine bark extract really helped people with their asthma in an Iranian study, and that 65% of the people in the study were able to reduce their meds. Worth researching. I went to the doctor today to see the physician assistant and it has to be the worst visit I have ever had (even including the doctor I went to for chronic fatigue in my twenties who told me it was because I was "too pretty" and probably suffering from too much attention). I brought my records from my old primary where I moved from and she looked at the tests and then said she thinks she wants to move forward with a psychiatric evalution. I told her my forehead and temples have so much pressure I feel like they are going to explode, and my wheezing has gotten worse since the move. She said in a rude voice "Well,

you're not wheezing now." I guess she actually thought I was making up the wheezing, not sure why the documents from emergency noting wheezing didn't help. She grilled me about drug use and seemed suspicious when I said "No, I don't drink, no I don't smoke, I don't use drugs, I don't use marajuana" Then she asks do you ingest marajuana or intake it in any other way?" My god, get off the marajuana, I don't even drink coffee for gosh sakes. I finally had to say "Do you think you might want to consider my sinuses since I am telling you my head feels like it is going to explode and my sinuses are inflamed?" She said she would review my sinus x-ray from a few months ago (one an allergist ordered and said I had an infection, and my primary disagreed and said she didn't think I needed the antibiotics prescribed) and possibly order another to match them. But at this point I have no intention of going back

even if she does decide I am actually in need of medical care. Thanks for listening, I am just so frustrated. It's hard enough being sick without getting insentive rude physician's assistants.

August 22, 2008

Thanks all. It is frustrating. I was going to a primary because I

need a new primary because I moved. But I am going to another on

Wednesday. I think I need a new allergist too though, because the

allergist I went to is the opposite of the PA, he doesn't think

anything is in my head and always tries to presribe oral prednisone

and antibiotics for everything. I'm going to retry the Nasonex in

the meantime, I had a mild side effect but i'm going to try again

and see if it happens this time.

> >

> > Oh I just hate it when doctors treat you that way. I have had

that

> in the past.

> >

> > Cheryl Burton

> > ncicheryl@

> >

> > Doctor's Visit

> >

> > Hey everyone and I hope you are breathing well. Off topic of the

> > rest of this post, I read in prevention magazine that Pine bark

> > extract really helped people with their asthma in an Iranian

study,

> > and that 65% of the people in the study were able to reduce

their

> > meds. Worth researching.

> > I went to the doctor today to see the physician assistant and it

> has

> > to be the worst visit I have ever had (even including the doctor

I

> > went to for chronic fatigue in my twenties who told me it was

> > because I was " too pretty " and probably suffering from too much

> > attention). I brought my records from my old primary where I

moved

> > from and she looked at the tests and then said she thinks she

wants

> > to move forward with a psychiatric evalution. I told her my

> forehead

> > and temples have so much pressure I feel like they are going to

> > explode, and my wheezing has gotten worse since the move. She

said

> > in a rude voice " Well, you're not wheezing now. " I guess she

> > actually thought I was making up the wheezing, not sure why the

> > documents from emergency noting wheezing didn't help. She

grilled

> me

> > about drug use and seemed suspicious when I said " No, I don't

> drink,

> > no I don't smoke, I don't use drugs, I don't use marajuana " Then

> she

> > asks do you ingest marajuana or intake it in any other way? " My

> god,

> > get off the marajuana, I don't even drink coffee for gosh sakes.

I

> > finally had to say " Do you think you might want to consider my

> > sinuses since I am telling you my head feels like it is going to

> > explode and my sinuses are inflamed? " She said she would review

my

> > sinus x-ray from a few months ago (one an allergist ordered and

> said

> > I had an infection, and my primary disagreed and said she didn't

> > think I needed the antibiotics prescribed) and possibly order

> > another to match them. But at this point I have no intention of

> > going back even if she does decide I am actually in need of

medical

> > care.

> > Thanks for listening, I am just so frustrated. It's hard enough

> > being sick without getting insentive rude physician's assistants.

> >

>

August 23, 2008

Just make sure that he is also an asthma specialist. Most of them

around here are, but that could be different where you are.

Madeline

> > >

> > > Oh I just hate it when doctors treat you that way. I have had

> that

> > in the past.

> > >

> > > Cheryl Burton

> > > ncicheryl@

> > >

> > > Doctor's Visit

> > >

> > > Hey everyone and I hope you are breathing well. Off topic of

the

> > > rest of this post, I read in prevention magazine that Pine bark

> > > extract really helped people with their asthma in an Iranian

> study,

> > > and that 65% of the people in the study were able to reduce

> their

> > > meds. Worth researching.

> > > I went to the doctor today to see the physician assistant and

it

> > has

> > > to be the worst visit I have ever had (even including the

doctor

> I

> > > went to for chronic fatigue in my twenties who told me it was

> > > because I was " too pretty " and probably suffering from too much

> > > attention). I brought my records from my old primary where I

> moved

> > > from and she looked at the tests and then said she thinks she

> wants

> > > to move forward with a psychiatric evalution. I told her my

> > forehead

> > > and temples have so much pressure I feel like they are going to

> > > explode, and my wheezing has gotten worse since the move. She

> said

> > > in a rude voice " Well, you're not wheezing now. " I guess she

> > > actually thought I was making up the wheezing, not sure why the

> > > documents from emergency noting wheezing didn't help. She

> grilled

> > me

> > > about drug use and seemed suspicious when I said " No, I don't

> > drink,

> > > no I don't smoke, I don't use drugs, I don't use marajuana "

Then

> > she

> > > asks do you ingest marajuana or intake it in any other way? " My

> > god,

> > > get off the marajuana, I don't even drink coffee for gosh

sakes.

> I

> > > finally had to say " Do you think you might want to consider my

> > > sinuses since I am telling you my head feels like it is going

to

> > > explode and my sinuses are inflamed? " She said she would review

> my

> > > sinus x-ray from a few months ago (one an allergist ordered and

> > said

> > > I had an infection, and my primary disagreed and said she

didn't

> > > think I needed the antibiotics prescribed) and possibly order

> > > another to match them. But at this point I have no intention of

> > > going back even if she does decide I am actually in need of

> medical

> > > care.

> > > Thanks for listening, I am just so frustrated. It's hard enough

> > > being sick without getting insentive rude physician's

assistants.

> > >

> >

>

August 23, 2008

Similar thing here. I used to smoke. That ended very suddenly one

day last August when I was lying on the floor of my car without

enough breath to call 911. So, I have been smoke free for a year

now, but everytime I check out of the hospital it includes quit

smoking instructions. I guess there are some things you just can't

medically out run.

Madeline

> >

> > Oh I just hate it when doctors treat you that way. I have had

that

> in the past.

> >

> > Cheryl Burton

> > ncicheryl@

> >

> > Doctor's Visit

> >

> > Hey everyone and I hope you are breathing well. Off topic of the

> > rest of this post, I read in prevention magazine that Pine bark

> > extract really helped people with their asthma in an Iranian

study,

> > and that 65% of the people in the study were able to reduce their

> > meds. Worth researching.

> > I went to the doctor today to see the physician assistant and it

> has

> > to be the worst visit I have ever had (even including the doctor

I

> > went to for chronic fatigue in my twenties who told me it was

> > because I was " too pretty " and probably suffering from too much

> > attention). I brought my records from my old primary where I

moved

> > from and she looked at the tests and then said she thinks she

wants

> > to move forward with a psychiatric evalution. I told her my

> forehead

> > and temples have so much pressure I feel like they are going to

> > explode, and my wheezing has gotten worse since the move. She

said

> > in a rude voice " Well, you're not wheezing now. " I guess she

> > actually thought I was making up the wheezing, not sure why the

> > documents from emergency noting wheezing didn't help. She grilled

> me

> > about drug use and seemed suspicious when I said " No, I don't

> drink,

> > no I don't smoke, I don't use drugs, I don't use marajuana " Then

> she

> > asks do you ingest marajuana or intake it in any other way? " My

> god,

> > get off the marajuana, I don't even drink coffee for gosh sakes.

I

> > finally had to say " Do you think you might want to consider my

> > sinuses since I am telling you my head feels like it is going to

> > explode and my sinuses are inflamed? " She said she would review

my

> > sinus x-ray from a few months ago (one an allergist ordered and

> said

> > I had an infection, and my primary disagreed and said she didn't

> > think I needed the antibiotics prescribed) and possibly order

> > another to match them. But at this point I have no intention of

> > going back even if she does decide I am actually in need of

medical

> > care.

> > Thanks for listening, I am just so frustrated. It's hard enough

> > being sick without getting insentive rude physician's assistants.

> >

>

August 23, 2008

I think that quit smoking thing is just a generic part of the forms, if it's the

same thing they do here. I asked the nurse once and she said they put that on

all the forms if you are there for respiratory reasons.

And congrats on quiting!!!

Rhonda~

--------- Doctor's Visit

> >

> > Hey everyone and I hope you are breathing well. Off topic of the

> > rest of this post, I read in prevention magazine that Pine bark

> > extract really helped people with their asthma in an Iranian

study,

> > and that 65% of the people in the study were able to reduce their

> > meds. Worth researching.

> > I went to the doctor today to see the physician assistant and it

> has

> > to be the worst visit I have ever had (even including the doctor

I

> > went to for chronic fatigue in my twenties who told me it was

> > because I was " too pretty " and probably suffering from too much

> > attention). I brought my records from my old primary where I

moved

> > from and she looked at the tests and then said she thinks she

wants

> > to move forward with a psychiatric evalution. I told her my

> forehead

> > and temples have so much pressure I feel like they are going to

> > explode, and my wheezing has gotten worse since the move. She

said

> > in a rude voice " Well, you're not wheezing now. " I guess she

> > actually thought I was making up the wheezing, not sure why the

> > documents from emergency noting wheezing didn't help. She grilled

> me

> > about drug use and seemed suspicious when I said " No, I don't

> drink,

> > no I don't smoke, I don't use drugs, I don't use marajuana " Then

> she

> > asks do you ingest marajuana or intake it in any other way? " My

> god,

> > get off the marajuana, I don't even drink coffee for gosh sakes.

I

> > finally had to say " Do you think you might want to consider my

> > sinuses since I am telling you my head feels like it is going to

> > explode and my sinuses are inflamed? " She said she would review

my

> > sinus x-ray from a few months ago (one an allergist ordered and

> said

> > I had an infection, and my primary disagreed and said she didn't

> > think I needed the antibiotics prescribed) and possibly order

> > another to match them. But at this point I have no intention of

> > going back even if she does decide I am actually in need of

medical

> > care.

> > Thanks for listening, I am just so frustrated. It's hard enough

> > being sick without getting insentive rude physician's assistants.

> >

>

August 23, 2008

That physicians assistant is in the wrong line of work. Shame on her!! I am sorry you were treated that way.

August 23, 2008

I ran into one like that one time when I had bronchitis. Dork gives a known asthmatic prescription cough syrup and tessalon pearls with antibiotics to treat me. I said thats not going to be enough...and he told me thats all he can give me b/c thats all I need. I told him that when Ive had bronchitis before (at least every 6 months for 3 years) Ive also had a prednisone burst and an additional inhaler. He refused.

I ended up calling the office back 2 days later and got the same message from the dr's secretary. I argued with her to the point that she finally said well if you think you need that medicine so bad, you can come in but we will have to work you in between his other patients. I said Id be there b/c I didnt care how long it took him to see me, since I know what I need. I waited an hour and he got me in. He took one listen to my chest and said, no lie, " You are so congested and full that if we dont get you cleared out by 2 days from now you'll end up in the hospital." And then he proceeded to give me exactly what I asked him for over the phone. At that point I just asked him "Will you listen to me now when I tell you what I need" Two months later the doc asked him to leave the practice over complaints from other patients.Get the MapQuest Toolbar. Directions, Traffic, Gas Prices More!

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