a and

September 5, 2002

I haven't posted for a while because things have been rough for the past week or

so. My grandson has been battling a virus since last Monday. He has wakened

almost every night in the wee hours of the morning with severe throat pain and

eventually an earache. This last weekend, we both spent most of it in bed.

Mine was mostly exhaustion from 3-4 hours of interruped sleep every night,

trying to catch what he has and a bad flare of extreme pain. His doctor

yesterday evening put him on an antibiotic (he's been on motrin for the whole

week) and it kicked in last night and he got a full night's sleep and I had a

little longer sleep. He went to the first day of school(I think he willed

himself to go as he was excited about going back to school)but by the time he

was out, he was running a 102 degree temp again. His doctor is having him miss

two days of school and go back on Friday if his temp doesn't shoot up again.

Today, he was a 100% better and finally after 4 days, ate some food. He has

been subsiding on fluids.

Today I went to my doctor. The more I see her, the more I like her. She went

over my test results with me. My LDL(bad cholesterol) is 54 and the good

one(HDL) is 42 and she is very pleased with that. My B-12 level is 192(low

normal ranges from 211 to 911 high normal)and she says I have pernicious anemia

and will need lifetime maintaince of B-12 shots. My blood sugar is 97 and again

she feels that is good. However, my sed rate is 51(normal 1-20) and she wants

to watch that and is going to do a complete physical (more than just the

routine) next month. She said her feeling is that I may also have

Poly..............(I'm sorry, forgot the name as soon as I left) which is

another auto immune disease along with the FMS. Do you have any idea what she

said to me with clue of Poly....? I'm sure that I would recognize the name if I

heard it again. Another good news is that I've lost 13 lbs since my visit the

end of July. She also told me that I have IBS and over-active bladder. The

latter I knew because at one time I took Datrol for it for years but was taken

off 2 years ago when I had the blood clot in my lung and I was not put back onto

it. Since I gave up the Elavil in July, I have been troubled by incontinence.

Never happened at work, thank goodness, though the urge was there but has

happened at least a half dozen times since July. During the night, when I wake

up and rush to the bath room or getting out of the car., etc. She gave me a

prescription for Datrol slow release and she feels it will be better that the

plain Datrol. She listens to everything I have to say or ask and acts like I am

her only patient. I have not had a doctor like her for over 20 years and

thought doctors like her died out a long time ago.

I have read all the posts and even made some notes to respond to but I am just

too tired to put them all down tonight. I'm so glad Debs is home from the

hospital and hope the Cabana boys are entertaining her outside her window. I

haven't missed any work but I pay for it in the evenings when I just vegetate

and hope and pray to get sleepy even though I am exhausted beyond words.

Will close for now and will post tomorrow or Friday. Thanks for any information

you might find for me. You gals are just awesome. Love to everyone in my

family and others have said it before and I'll say it again - you are more like

family than my own family when it comes to understanding. Jan in CA

+/:=)

Jan Tully, PO Box 19362, San Diego CA 92159

---------------------------------

September 5, 2002

((((((((((((Jan)))))))))))))

I'm so sorry you're feeling so crummy, and also that your grandson has been

so ill. Hopefully your new doctor will get the situation under control

soon. She sounds like a keeper!

Much love,

Carol

[ ] a and

I haven't posted for a while because things have been rough for the past

week or so. My grandson has been battling a virus since last Monday. He

has wakened almost every night in the wee hours of the morning with severe

throat pain and eventually an earache. This last weekend, we both spent

most of it in bed. Mine was mostly exhaustion from 3-4 hours of interruped

sleep every night, trying to catch what he has and a bad flare of extreme

pain. His doctor yesterday evening put him on an antibiotic (he's been on

motrin for the whole week) and it kicked in last night and he got a full

night's sleep and I had a little longer sleep. He went to the first day of

school(I think he willed himself to go as he was excited about going back to

school)but by the time he was out, he was running a 102 degree temp again.

His doctor is having him miss two days of school and go back on Friday if

his temp doesn't shoot up again. Today, he was a 100% better and finally

after 4 days, ate some food. He has been subsiding on fluids.

Today I went to my doctor. The more I see her, the more I like her. She

went over my test results with me. My LDL(bad cholesterol) is 54 and the

good one(HDL) is 42 and she is very pleased with that. My B-12 level is

192(low normal ranges from 211 to 911 high normal)and she says I have

pernicious anemia and will need lifetime maintaince of B-12 shots. My blood

sugar is 97 and again she feels that is good. However, my sed rate is

51(normal 1-20) and she wants to watch that and is going to do a complete

physical (more than just the routine) next month. She said her feeling is

that I may also have Poly..............(I'm sorry, forgot the name as soon

as I left) which is another auto immune disease along with the FMS. Do you

have any idea what she said to me with clue of Poly....? I'm sure that I

would recognize the name if I heard it again. Another good news is that

I've lost 13 lbs since my visit the end of July. She also told me that I

have IBS and over-active bladder. The latter I knew because at one time I

took Datrol for it for years but was taken off 2 years ago when I had the

blood clot in my lung and I was not put back onto it. Since I gave up the

Elavil in July, I have been troubled by incontinence. Never happened at

work, thank goodness, though the urge was there but has happened at least a

half dozen times since July. During the night, when I wake up and rush to

the bath room or getting out of the car., etc. She gave me a prescription

for Datrol slow release and she feels it will be better that the plain

Datrol. She listens to everything I have to say or ask and acts like I am

her only patient. I have not had a doctor like her for over 20 years and

thought doctors like her died out a long time ago.

I have read all the posts and even made some notes to respond to but I am

just too tired to put them all down tonight. I'm so glad Debs is home from

the hospital and hope the Cabana boys are entertaining her outside her

window. I haven't missed any work but I pay for it in the evenings when I

just vegetate and hope and pray to get sleepy even though I am exhausted

beyond words.

Will close for now and will post tomorrow or Friday. Thanks for any

information you might find for me. You gals are just awesome. Love to

everyone in my family and others have said it before and I'll say it again -

you are more like family than my own family when it comes to understanding.

Jan in CA +/:=)

Jan Tully, PO Box 19362, San Diego CA 92159

---------------------------------

September 6, 2002

I have been sleeping for more like 4 hours at a time since starting a new

sleeping pll..I watch what I eat and drink in the evenings..had have tried

warm milk an hour before I try to slep...I leave Sunday for a conference in

Las Vegas for a week...so will miss you all the 8th through the 12th...great

week to fly I think..I will be wishing you all a great week while I am off

line...best wishes to you all....marge

[ ] a and

>

> >

> > I haven't posted for a while because things have been rough for the past

> week or so. My grandson has been battling a virus since last Monday. He

> has wakened almost every night in the wee hours of the morning with severe

> throat pain and eventually an earache. This last weekend, we both spent

> most of it in bed. Mine was mostly exhaustion from 3-4 hours of

interruped

> sleep every night, trying to catch what he has and a bad flare of extreme

> pain. His doctor yesterday evening put him on an antibiotic (he's been on

> motrin for the whole week) and it kicked in last night and he got a full

> night's sleep and I had a little longer sleep. He went to the first day

of

> school(I think he willed himself to go as he was excited about going back

to

> school)but by the time he was out, he was running a 102 degree temp again.

> His doctor is having him miss two days of school and go back on Friday if

> his temp doesn't shoot up again. Today, he was a 100% better and finally

> after 4 days, ate some food. He has been subsiding on fluids.

> >

> > Today I went to my doctor. The more I see her, the more I like her.

She

> went over my test results with me. My LDL(bad cholesterol) is 54 and the

> good one(HDL) is 42 and she is very pleased with that. My B-12 level is

> 192(low normal ranges from 211 to 911 high normal)and she says I have

> pernicious anemia and will need lifetime maintaince of B-12 shots. My

blood

> sugar is 97 and again she feels that is good. However, my sed rate is

> 51(normal 1-20) and she wants to watch that and is going to do a complete

> physical (more than just the routine) next month. She said her feeling is

> that I may also have Poly..............(I'm sorry, forgot the name as soon

> as I left) which is another auto immune disease along with the FMS. Do

you

> have any idea what she said to me with clue of Poly....? I'm sure that I

> would recognize the name if I heard it again. Another good news is that

> I've lost 13 lbs since my visit the end of July. She also told me that I

> have IBS and over-active bladder. The latter I knew because at one time I

> took Datrol for it for years but was taken off 2 years ago when I had the

> blood clot in my lung and I was not put back onto it. Since I gave up the

> Elavil in July, I have been troubled by incontinence. Never happened at

> work, thank goodness, though the urge was there but has happened at least

a

> half dozen times since July. During the night, when I wake up and rush to

> the bath room or getting out of the car., etc. She gave me a prescription

> for Datrol slow release and she feels it will be better that the plain

> Datrol. She listens to everything I have to say or ask and acts like I am

> her only patient. I have not had a doctor like her for over 20 years and

> thought doctors like her died out a long time ago.

> >

> > I have read all the posts and even made some notes to respond to but I

am

> just too tired to put them all down tonight. I'm so glad Debs is home

from

> the hospital and hope the Cabana boys are entertaining her outside her

> window. I haven't missed any work but I pay for it in the evenings when I

> just vegetate and hope and pray to get sleepy even though I am exhausted

> beyond words.

> >

> > Will close for now and will post tomorrow or Friday. Thanks for any

> information you might find for me. You gals are just awesome. Love to

> everyone in my family and others have said it before and I'll say it

again -

> you are more like family than my own family when it comes to

understanding.

> Jan in CA +/:=)

> >

> > Jan Tully, PO Box 19362, San Diego CA 92159

> >

> > ---------------------------------

> >

September 14, 2002

Hi Carol, I'm back from Las Vegas..what a city! I walked more than I

should; but took it easy..used my cane for the long walks and stopped to sit

when needed...saw the strip from a cab, sat and lost what I took to lose in

the casino....and oh yeah...went to the workshops at the conference...had a

great week, not too much pain...took extra emds while there and made it fine

on the flight...so a good week...uuncle arthur stayed in Mich....the weather

was great too...not too hot and dry....I slept better because the stiffness

was better...saw my doc today and he upped by sleeping pill...but it's 4

a.m. and guess who is up...got 4 hours instead of 2 hours of sleep...so it's

better..guess I would chalk this up as a good week...hoepfully the sleep

will continue to improve...hope you had agood week, I'l catch up on the news

in the next few days...are you doing ok? marge