Arthritis update - Canada

[Guest guest]

Hi a and and anyone else interested the following mentions some of the

people I am going to be working with and gives you some info as to what we are

doing here in Canada.I will be on the ethics review board(hoping the board will

take us seriously.

Hugs

June

Dear CAPA members & Associate CAPA members,

To follow is a brief update of recent and upcoming arthritis advocacy

activities:

* Romanow Commission - The " Dialogue on Prescription Drugs " debate (Thursday

September 5th 2002)

Denis will be participating in this debate this Thursday evening and will be

continuing to deliver the same basic messages he delivered on behalf of The

Arthritis Society during his face-to-face presentation with the Commission:

* The need for a more efficient, and thorough regulatory review process on

medications

* The need for international harmonization to reduce doubling/tripling of review

efforts from Europe to the U.S. to Canada

* The need for the Federal government to take ultimate responsibility of the

regulatory process

* The need for patients' to be at the table (post market surveillance, consumer

representation on ethics review boards the need for " transparency " within the

system, ie, what's being reviewed and where things stand with products

For further information including a media advisory please click on the following

link: " Dialogue on Prescription Drugs " , a debate co-hosted by Romanow

Commission. http://www.newswire.ca/releases/August2002/29/c6896.html>

* CRA Meeting with Geneviève Tremblay, Special Assistant, to Anne McClellan

(Sept. 6th )

* Members of the CRA executive will meet with Anne McLellan's (Federal Health

Minister) special assistant Geneviève Tremblay to present an integrated approach

model to rheumatology care.

* The CRA has invited a CAPA member to attend this meeting in Ottawa.

Wilhem will be representing CAPA

* Canadian Arthritis Network Annual Meeting, Calgary Alberta (Sept. 26th- 29th )

* To review agenda, please click on

http://www.arthritisnetwork.ca/Conferences/2002/conf2002.asp

* Please click on the following link to read a news release launching Arthritis

Month and The Arthritis Society's " Arthritis in the Workplace " campaign. To find

out more on the program, log on to www.arthritis.ca/workplace or

www.arthrite.ca/milieudetravail

* Bone & Joint Decade Declaration

* The Federal Minister of Health, Anne McLellan endorsed the declaration of

2000-2010 as Bone & Joint Decade, and hopes that, by working in partnership

nationally and internationally, more progress can be made toward the reduction

of bone and joint disorders in Canada and the rest of the world.

* The Arthritis Society is working with the Minister's Office with regards to a

formal announcement

* Arthritis News Magazine Highlights (Fall 2002)

* See page 6 for article: Canada takes the OA initiative featuring

Lorenzetti from Alberta, (CAPA member and Canadian Arthritis Network - Consumer

Advisory Council Member) highlighting the spring OA consensus conference

* See page 9 for article: Informed and Ready featuring Anne Dooley from

Saskatchewan (CAPA Steering Committee Member) which highlights the Cochrane

Collaboration and arthritis research information on-line

* See page 17 Preparing for Pregnancy featuring Dr. Dianne Mosher of Nova Scotia

and a Collier of Newfoundland (CAPA mem