Marge

[Guest guest]

(((((((((Marge)))))))))

I'm so happy you are managing to get a bit more sleep. I hope it gets

better and better, it's terrible to be tired all the time. Your strategies

seem to be working. I also try to avoid naps (only really on Sundays that I

can actually take them) but if I do there's no ways I'll sleep that night

and then I'm exhausted on Monday. My husband is busy having a nap right now

but I'm catching up with my RA family instead of joining him. It's the only

time I've had this week and I'm glad that I'll be able to have a good night

rest tonight anyway.

Well it seems all us smokers are coming out of the closet LOL! I'm setting

a quit date for stopping smoking next week, I'll let you know tomorrow what

day (talk about putting something off! LOL!) Let me know if you're going to

try and join us, maybe you could go for the acupuncture again? I don't

think I can do that here but am going to try and just stop…

I hope you have a great week in Las Vegas! I've always wanted to see it -

one day I will, and will stop off to see my RA family on the way!

(((((zzz zzzzz zzzzz zzzz Sandman hugs to you)))))

Heidi

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[Guest guest]

Hi Marge,

I'm so glad you had such a nice time in Las Vegas, and I'm really glad Uncle

Arthur stayed in Mich. It's great that the dr. upped your sleeping meds,

and I hope you are up to 6 to 8 hours a night soon.

Much love,

Carol

Re: [ ] a and

Hi Carol, I'm back from Las Vegas..what a city! I walked more than I

should; but took it easy..used my cane for the long walks and stopped to sit

when needed...saw the strip from a cab, sat and lost what I took to lose in

the casino....and oh yeah...went to the workshops at the conference...had a

great week, not too much pain...took extra emds while there and made it fine

on the flight...so a good week...uuncle arthur stayed in Mich....the weather

was great too...not too hot and dry....I slept better because the stiffness

was better...saw my doc today and he upped by sleeping pill...but it's 4

a.m. and guess who is up...got 4 hours instead of 2 hours of sleep...so it's

better..guess I would chalk this up as a good week...hoepfully the sleep

will continue to improve...hope you had agood week, I'l catch up on the news

in the next few days...are you doing ok? marge

[ ] a and

>

>

> >

> > I haven't posted for a while because things have been rough for the past

> week or so. My grandson has been battling a virus since last Monday. He

> has wakened almost every night in the wee hours of the morning with severe

> throat pain and eventually an earache. This last weekend, we both spent

> most of it in bed. Mine was mostly exhaustion from 3-4 hours of

interruped

> sleep every night, trying to catch what he has and a bad flare of extreme

> pain. His doctor yesterday evening put him on an antibiotic (he's been on

> motrin for the whole week) and it kicked in last night and he got a full

> night's sleep and I had a little longer sleep. He went to the first day

of

> school(I think he willed himself to go as he was excited about going back

to

> school)but by the time he was out, he was running a 102 degree temp again.

> His doctor is having him miss two days of school and go back on Friday if

> his temp doesn't shoot up again. Today, he was a 100% better and finally

> after 4 days, ate some food. He has been subsiding on fluids.

> >

> > Today I went to my doctor. The more I see her, the more I like her.

She

> went over my test results with me. My LDL(bad cholesterol) is 54 and the

> good one(HDL) is 42 and she is very pleased with that. My B-12 level is

> 192(low normal ranges from 211 to 911 high normal)and she says I have

> pernicious anemia and will need lifetime maintaince of B-12 shots. My

blood

> sugar is 97 and again she feels that is good. However, my sed rate is

> 51(normal 1-20) and she wants to watch that and is going to do a complete

> physical (more than just the routine) next month. She said her feeling is

> that I may also have Poly..............(I'm sorry, forgot the name as soon

> as I left) which is another auto immune disease along with the FMS. Do

you

> have any idea what she said to me with clue of Poly....? I'm sure that I

> would recognize the name if I heard it again. Another good news is that

> I've lost 13 lbs since my visit the end of July. She also told me that I

> have IBS and over-active bladder. The latter I knew because at one time I

> took Datrol for it for years but was taken off 2 years ago when I had the

> blood clot in my lung and I was not put back onto it. Since I gave up the

> Elavil in July, I have been troubled by incontinence. Never happened at

> work, thank goodness, though the urge was there but has happened at least

a

> half dozen times since July. During the night, when I wake up and rush to

> the bath room or getting out of the car., etc. She gave me a prescription

> for Datrol slow release and she feels it will be better that the plain

> Datrol. She listens to everything I have to say or ask and acts like I am

> her only patient. I have not had a doctor like her for over 20 years and

> thought doctors like her died out a long time ago.

> >

> > I have read all the posts and even made some notes to respond to but I

am

> just too tired to put them all down tonight. I'm so glad Debs is home

from

> the hospital and hope the Cabana boys are entertaining her outside her

> window. I haven't missed any work but I pay for it in the evenings when I

> just vegetate and hope and pray to get sleepy even though I am exhausted

> beyond words.

> >

> > Will close for now and will post tomorrow or Friday. Thanks for any

> information you might find for me. You gals are just awesome. Love to

> everyone in my family and others have said it before and I'll say it

again -

> you are more like family than my own family when it comes to

understanding.

> Jan in CA +/:=)

> >

> >

> >

> > Jan Tully, PO Box 19362, San Diego CA 92159

> >

> >

> >

> > ---------------------------------

> >

[Guest guest]

Hi Heidi..congrats on the 0 smokes..way to go...I may join your band wagon

one of these days...just not got the right mind set to quit right

now...thans for the zzzzz's i'll save them for tonight...I have been

through the sleep clinic twice...very little help...they just tell me I'm

right...I don't sleep well and they are sorry I am so " verrrrry

sleepy " .tried several different sleeping pills, gimicks and apparatus' but

to no avail. I have never been a good sleeper; but unfortunately the RA

fatigue makes it worse....I count myself lucky (and so do those around me)

if I get 4 continuous hours of sleep. I have learned to be very quiet at

night so as not to wake the household...it's just that since the RA the lack

of sleep is harder to take...i'll try anything once...so I'll try your large

shipment of zzzz's tonight. keep up the non-smoking...good for you! marge

[ ] Marge

> Marge,

> I'm so sorry you are still not sleeping, everything is more difficult when

> you haven't slept. Maybe you should try one of those sleep clinics?

> ((((((((sending ZZZ ZZZZ ZZZZ ZZZZ ZZZ bigger sandman hugs)))))))))))

> seems the last batch didn't work

> Heidi

>

>

>

>

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