Re: Back at the doctor - chest problems

[Guest guest]

<PRE>carol i am so sorry to hear this. i had alot of infections with remicade

too.

that is why i stopped taking it. i am still waiting to hear what my next

steps are. i've got my rheumi on thursday and my intern tues/17th. i got a

letter from my medical insurance saying they were not going to pay for my

physical therapy on my feet anymore. now today i got 160 woth of denied bills

and probably at least that still to come. now i am still having problems with

my feet so i really don't know what to do. also since i have been trying to

survive on ssd alone for 6 months. i don't have the co-pays to go to the dr

all of the time. guess i'll have to discipline myself to do it at home. my

medicare won't kick in until next june. plus who knows what is happening with

my kidneys now. kathy in il

[Guest guest]

((((((((((((((((((((CAROL!!)))))))))))))))))))

Here's a big hug for you. I am so sorry that you are feeling bad. I

wish there was something I could do for you. Please try and hang in

there and know it will get better. It just takes some time.

My love, thoughts and prayers are with you.

Al

> Hi All,

>

> I just got back from my MD's office because I had another episode

where I

> was up all night with chest pain last night. I got in to see him

and I just

> cried. My heart was racing from the stress, and even my blood

pressure was

> a little high (it's normally 110/65). I had a really hard time

last night.

> On top of that, Stan's out of town and I was really scared. It

hurts so

> much to breathe.

>

> First, he said he wants me to take another course of Zithromax to

see if

> that makes a difference. He gave me a few more of the Percocet

10's (I've

> been taking an awful lot of pain meds this month - scares me). He

wanted me

> to take Xanax for the stress for a little while, but I told him I am

> unwilling to. He gave me Inderal instead, and I have to say

between that

> and the Percocet I'm feeling more comfortable now, although it

still hurts

> to take a normal breath. We're changing my thyroid med back to the

Armour

> (I had been trying Synthroid), and we're discontinuing the

Trazodone. If I

> don't sleep, so be it for now. It's just not worth it. Something

is

> elevating my pulse, and I've noticed it after I take the

Trazodone. Also,

> this panic mode isn't really like me. He said I need to watch how

I do with

> the Remicade, that if I'm having a lot of problems with infection,

it might

> not be worth it. He said he had another patient that went into a

clinical

> trial for Hepatitis, and now he's the next person on the list for a

liver

> transplant. The medication destroyed his liver. That kind of

scared me,

> although Remicade is FDA approved.

>

> I'm just so sick of all this. I was doing really well last week. I

got so

> much done, it was amazing. I still had pain, but it was more

tolerable and

> I was able to work through it. I was getting ready to buy paint so

I could

> paint the master bedroom! Now, another setback. And I still need

to go to

> class tonight.

>

> Thank you, my dear friends, for letting me vent. I just don't

think I could

> burden Stan with any more of this. He was so enthusiastic about

how well

> I've been doing, that I don't want to burst his bubble. I need to

get well.

> I have way too much to do this month!

>

> I hope you're each having a better day than I am.

>

> Much love,

>

> Carol

[Guest guest]

(((((((((((((((Carol))))))))))))))

What more can I say? You're in my prayers,

Judi

[Guest guest]

(((((((((((((Carol))))))))))))))))

I hope your med changes make a difference. I feel so bad for you for going

through all of this. I¹m glad you¹re comfortable now and hope you stay that

way. You¹re in my prayers.

Hugs,

a

> Hi All,

>

> I just got back from my MD's office because I had another episode where I

> was up all night with chest pain last night. I got in to see him and I just

> cried. My heart was racing from the stress, and even my blood pressure was

> a little high (it's normally 110/65). I had a really hard time last night.

> On top of that, Stan's out of town and I was really scared. It hurts so

> much to breathe.

>

> First, he said he wants me to take another course of Zithromax to see if

> that makes a difference. He gave me a few more of the Percocet 10's (I've

> been taking an awful lot of pain meds this month - scares me). He wanted me

> to take Xanax for the stress for a little while, but I told him I am

> unwilling to. He gave me Inderal instead, and I have to say between that

> and the Percocet I'm feeling more comfortable now, although it still hurts

> to take a normal breath. We're changing my thyroid med back to the Armour

> (I had been trying Synthroid), and we're discontinuing the Trazodone. If I

> don't sleep, so be it for now. It's just not worth it. Something is

> elevating my pulse, and I've noticed it after I take the Trazodone. Also,

> this panic mode isn't really like me. He said I need to watch how I do with

> the Remicade, that if I'm having a lot of problems with infection, it might

> not be worth it. He said he had another patient that went into a clinical

> trial for Hepatitis, and now he's the next person on the list for a liver

> transplant. The medication destroyed his liver. That kind of scared me,

> although Remicade is FDA approved.

>

> I'm just so sick of all this. I was doing really well last week. I got so

> much done, it was amazing. I still had pain, but it was more tolerable and

> I was able to work through it. I was getting ready to buy paint so I could

> paint the master bedroom! Now, another setback. And I still need to go to

> class tonight.

>

> Thank you, my dear friends, for letting me vent. I just don't think I could

> burden Stan with any more of this. He was so enthusiastic about how well

> I've been doing, that I don't want to burst his bubble. I need to get well.

> I have way too much to do this month!

>

> I hope you're each having a better day than I am.

>

> Much love,

>

> Carol

>

>

>

>

>

[Guest guest]

Carol:

How depressing - you were doing so much better. Does

your doctor think the pleurisy is coming back? Having

had asthma all my life, I truly understand the feeling

of panic when you can't take a breath. It is very

scary. I hope that the medication begins working for

you very soon. I know how excited you were to begin

the Remicade and how much good it has done for you,

but your doctor is right about being cautious about it

with your continuing infection problems. Hopefully

you will be able to resume it again. Hang in there,

kiddo, and hugs to you -

Kathe in CA

__________________________________________________

- We Remember

9-11: A tribute to the more than 3,000 lives lost

http://dir.remember./tribute

[Guest guest]

Thank you so much for your supportive words, Kathe. Yes, he thinks it's

still the pleurisy and bronchitis, and I'm on another round of Zithromax. I

'm feeling a little better already today, and I hope this will take care of

it once and for all. I'm still on the Remicade, and I have my next infusion

on Monday so long as I feel healthy enough. I'm hoping I'll be fine by

then. Like my Mom said, my body's still getting used to the Remicade, and I

need to give it a chance. I am going to be cautious, though.

Much love,

Carol

Re: [ ] Back at the doctor - chest problems

Carol:

How depressing - you were doing so much better. Does

your doctor think the pleurisy is coming back? Having

had asthma all my life, I truly understand the feeling

of panic when you can't take a breath. It is very

scary. I hope that the medication begins working for

you very soon. I know how excited you were to begin

the Remicade and how much good it has done for you,

but your doctor is right about being cautious about it

with your continuing infection problems. Hopefully

you will be able to resume it again. Hang in there,

kiddo, and hugs to you -

Kathe in CA

__________________________________________________

- We Remember

9-11: A tribute to the more than 3,000 lives lost

http://dir.remember./tribute