Temperature

[Guest guest]

Hi, Lovette:

Ironically, when I went on HPT my lyme symptoms ( could have been new

antiobiotic combo I had started) got better. I actually feel better than I

have in years. I thought maybe the HPT helped me ?????

Mona

p.s. I have always had a low temp.....consistantly with Lyme flareups

[Guest guest]

Hi Mona I think I have sked you this before but i have forgotten. what is HPT

and what is it used for. Please write when you get a chance. -Val

[Guest guest]

Dear Friends: Have any of you been experiencing weird fluctuations in

temperature? My normal temp is about 97.3, but I have been fluctuating

between 95.1 and 98.4. I had a hysterectomy 3 years ago, and was on and

off estrogen patches, but I stopped my estrogen in September because it

was making the Lyme symptoms feel worse. Do you think this is lyme or

estrogen related?

Lovette

[Guest guest]

LYME!!!!! Just another weird symptom to keep the bacteria from getting

killed!!!!!

" F. Mott " wrote:

> From: " F. Mott " <smott@...>

>

> Dear Friends: Have any of you been experiencing weird fluctuations in

> temperature? My normal temp is about 97.3, but I have been fluctuating

> between 95.1 and 98.4. I had a hysterectomy 3 years ago, and was on and

> off estrogen patches, but I stopped my estrogen in September because it

> was making the Lyme symptoms feel worse. Do you think this is lyme or

> estrogen related?

>

> Lovette

>

> ------------------------------------------------------------------------

>

[Guest guest]

Hi Lovette,

When I was on estrogen replacement my temperature was much lower than

after I discontinued it. My temp still runs low, but not anything like

on the estrogen. Unlike you however, I felt much better on the

estrogen. I could not tolerate the progesterone, though, and was afraid

to continue with unopposed estrogen for too long a time.

I a m very sure that my temp was much lower on estrogen,because I was

monitoring my temperature regularly during and after estrogen

replacement in order t o find out if I was hypothyroid.

Ellen

[Guest guest]

WISHXXX@... wrote:

>

> From: WISHXXX@...

>

> Hi, Lovette:

>

> Ironically, when I went on HPT my lyme symptoms ( could have been new

> antiobiotic combo I had started) got better. I actually feel better than I

> have in years. I thought maybe the HPT helped me ?????

> Mona

> p.s. I have always had a low temp.....consistantly with Lyme flareups

>

> --Mona: What's HPT?

Lovette

[Guest guest]

Sorry, Lovette )

HTP is hormone replacement therapy.

[Guest guest]

Lovette, I think a screwed up body temp goes with lyme. Mine runs very low

most of the time which is not supposed to be the case if you have babesia. I

too had a hyst about 2 1/2 yrs ago, but have never taken est. Take care

Best wishes on a new year of progress

Amy

[Guest guest]

Carol,

Have you had your thyroid checked? Before I was diagnosed with Graves

disease, I was cold all the time, even on the warmest of days and I was so

painfully thin, my ankle bones used to bang together and bleed. I have the

same feeling of a rise in temperature as you do and am always opening the

windows and everyone can't believe I can feel so hot. I radiate heat too.

Anyone standing near me can feel the heat from me. I sure don't have your

weight loss problem tho. In fact, I can't lose weight. When I feel feverish

and hot I put it down to infection, as I usually have swollen glands too. I

think being on long term AP will eventually eliminate these symptoms. At least

that's my hope for us. My gp wanted me to try Celebrex and I declined. I

think I'll just stick to the AP and anti inflams and see what happens.

I hope you feel better soon Carol. If you could gain some weight perhaps you

wouldn't feel so cold. When I began the thyroid medication and gained weight I

felt so much better. I lost that dizzy, spacey feeling I used to live with for

years, not knowing what it was.

Good luck Carol.

Hugs

Bev

Group, I have dermatomyositis. My muscles are wasted and I am down to 100lbs.

I have been taking my temperature 2 or 3 times a day and it is generally between

99F and 101F. I feel cold most of the day - usually the tops of my hands and

feet and across my shoulders. At night I get quite warm. Only occasionally do I

sweat. From what I have read on body temperature regulation it depends on skin

blood flow; infection, viral or baterial, inflammation, administration of some

drugs, dehydration. I drink at least 6 glasses of water a day;eat as much as I

can to try and put weight on. Am I doomed for now due to the fact I have skin

inflammation due to my disease which is probably bacterial in nature. I am

presently taking 100 mg Minocycline-lederele generic- twice a day. I am also on

biaxin and cipro for an underlying microbacteria branderi infection which has

been erradicated as far as the infectious doctor knows andI will probably be

taken off of the cipro and biaxin when I see him on Feb 15th. I am

[Guest guest]

It sounds to me like you may want to investigate thyroid operation. Dr

Brownstein wrote a book on natural hormones and said that the body temp is a

good indicator, and maybe it wouldn't show up in just blood testing.

I take an enzyme supplement--one from health store (nothing special--has 3

enzymes in it) and that has helped me gain weight finally and put muscle back

on. Not a lot, but a more healthy look now and I am able to do so much more

with the strength.

HTH.

Hugs,

<<

Group, I have dermatomyositis. My muscles are wasted and I am down to

100lbs. I have been taking my temperature 2 or 3 times a day and it is

generally between 99F and 101F. I feel cold most of the day - usually the

tops of my hands and feet and across my shoulders. At night I get quite warm.

Only occasionally do I sweat. From what I have read on body temperature

regulation it depends on skin blood flow; infection, viral or baterial,

inflammation, administration of some drugs, dehydration. I drink at least 6

glasses of water a day;eat as much as I can to try and put weight on. Am I

doomed for now due to the fact I have skin inflammation due to my disease

which is probably bacterial in nature. I am presently taking 100 mg

Minocycline-lederele generic- twice a day. I am also on biaxin and cipro for

an underlying microbacteria branderi infection which has been erradicated as

far as the infectious doctor knows andI will probably be taken off of the

cipro and biaxin when I see him on Feb 15th. I am quite sure that as long as

I am giving off all this heat, all my caloric energy is going to produce this

heat and therefore will not gain any weight. Hope I am not rambling. But I am

so tired of feeling so tired all the time. Hope someone can offer some

suggestions. The doctors I ask just seem to shrug their shoulders or shake

their heads and say " It's just your disease. " I'd be willing to take their

word for it if they at least said it with some conviction. Help!

Carol/Piney/Canada DM Oct94 AP June98

supplements -many herbs - milk thistle, cranberry extract, ginger root,

licorice root also, salmon oil, evening primrose oil digestive

enzymes and acidophulus - 9 a day and an immune booster - Thymic Complex by

Dr. Burgstiner

>>

[Guest guest]

<PRE>thats how i am too, sick when only in the 99 range. and it gets that way

almost everyday. they just don't seem to understand, or as my atty puts it.

no test to prove this is what happens to us. someone said why don't you just

realize you are a little warm and get on with it!!! don't i wish. kathy in il

[Guest guest]

Hi ,

I always run a low temp - usually 97.7 though lately it has been around 96.7.

I've been this way for as long as I can remember. Like you, when my temp runs

around 99 - I am really sick. No one has had answers for me either. I've been

told it is poor circulation.

in Minnesota

[ ] Temperature

Just curious... Hope someone has answers!

...how many of us on this list run a LOW temp.?

Mine for as long as I remember has always stayed between 96.7 - 97

degrees. No kidding.

[Guest guest]

I also run a low temperature - usually around 97.6. I just wish the doctors

would realize that this is the norm for me. When it goes up to the standard

" normal " of 98.6, they should know that it is high. Even though I feel pretty

crummy at those times, they act as though nothing is wrong and NEVER recognize

that my temperature is elevated. What kind of wisdom is it that says you aren't

running a temperature unless it measures 100 or more? I guess I'll never

understand...

Vikki

[ ] Temperature

Just curious... Hope someone has answers!

...how many of us on this list run a LOW temp.?

Mine for as long as I remember has always stayed between 96.7 - 97

degrees. No kidding.

[Guest guest]

Dear Susie: My temperature normally goes back and forth between the same ranges

and like you if I have a 99* temp or higher, I am really ill. Strange that with

all of us out here, someone doesn't do a study to find out why. Most doctors

and nurses just put you off if you tell them that it's always low and that you

really feel bad. My mother, her whole life, had the same and she had arthritis

and now I suspect that she also had FM. My daughter has many of the pre-cursor

things that I started out with many years ago that eventually led to the FM and

has the low temp besides. Our blood pressures range in the low range also -

100/60 to 110/75 and when I reach 120 to 130 over 80 or so, I can really feel

the effects of it. It will be interesting to hear from everyone on this

subject. Jan in CA +/:=)

susan headley wrote:Just curious... Hope someone has answers!

....how many of us on this list run a LOW temp.?

Mine for as long as I remember has always stayed between 96.7 - 97

degrees. No kidding.

I have been this way since childhood my mom said. Her mom's stayed low

also. And she had arthritis, but did well with her arthritis (mild). My

mom has arthritis. But hers is mild also. My sister has LUPUS..

My mom runs a " low temp. " always, but hers in the mid 97's.

One of my three daughters is like mine, and my sisters is like mine. Our

temps run almost identical.

My daughter (age 29) is having trouble conceiving, and my sister never

did conceive. They never could find the reasons why my sister could not

have baby.

All the THYROID tests I had were " within normal " ranges.

So is this THYROID test missing something???

If I get a temp of 99+ I am extremely sick/throwing up usually.

Just curious if anyone else is like this.

By the way... my PLATELETS are always HIGH. So what causes this?

Susie

[Guest guest]

Hi Jan,

I'm exactly the same way. I have a temp of 99.4 right now, and that's

really high for me. My temp has only gone above 100 degrees once in the

past 5 years. My blood pressure is always around 105/70, sometimes lower.

For it to be borderline high yesterday was like it skyrocketing, since mine'

s always so low.

Love and hugs,

Carol

Re: [ ] Temperature

Dear Susie: My temperature normally goes back and forth between the same

ranges and like you if I have a 99* temp or higher, I am really ill.

Strange that with all of us out here, someone doesn't do a study to find out

why. Most doctors and nurses just put you off if you tell them that it's

always low and that you really feel bad. My mother, her whole life, had the

same and she had arthritis and now I suspect that she also had FM. My

daughter has many of the pre-cursor things that I started out with many

years ago that eventually led to the FM and has the low temp besides. Our

blood pressures range in the low range also - 100/60 to 110/75 and when I

reach 120 to 130 over 80 or so, I can really feel the effects of it. It

will be interesting to hear from everyone on this subject. Jan in CA

+/:=)

susan headley wrote:Just curious... Hope someone has answers!

....how many of us on this list run a LOW temp.?

Mine for as long as I remember has always stayed between 96.7 - 97

degrees. No kidding.

I have been this way since childhood my mom said. Her mom's stayed low

also. And she had arthritis, but did well with her arthritis (mild). My

mom has arthritis. But hers is mild also. My sister has LUPUS..

My mom runs a " low temp. " always, but hers in the mid 97's.

One of my three daughters is like mine, and my sisters is like mine. Our

temps run almost identical.

My daughter (age 29) is having trouble conceiving, and my sister never

did conceive. They never could find the reasons why my sister could not

have baby.

All the THYROID tests I had were " within normal " ranges.

So is this THYROID test missing something???

If I get a temp of 99+ I am extremely sick/throwing up usually.

Just curious if anyone else is like this.

By the way... my PLATELETS are always HIGH. So what causes this?

Susie

[Guest guest]

I found something on Temperature.

http://www.wilsonssyndrome.com/WhyUndiagnosableWithThyroid.htm

Susie

Carol wrote:

> Hi Jan,

>

> I'm exactly the same way. I have a temp of 99.4 right now, and that's

>

> really high for me. My temp has only gone above 100 degrees once in

> the

> past 5 years. My blood pressure is always around 105/70, sometimes

> lower.

> For it to be borderline high yesterday was like it skyrocketing, since

> mine'

> s always so low.

>

> Love and hugs,

>

> Carol

>

>

> Re: [ ] Temperature

>

>

> Dear Susie: My temperature normally goes back and forth between the

> same

> ranges and like you if I have a 99* temp or higher, I am really ill.

> Strange that with all of us out here, someone doesn't do a study to

> find out

> why. Most doctors and nurses just put you off if you tell them that

> it's

> always low and that you really feel bad. My mother, her whole life,

> had the

> same and she had arthritis and now I suspect that she also had FM. My

>

> daughter has many of the pre-cursor things that I started out with

> many

> years ago that eventually led to the FM and has the low temp besides.

> Our

> blood pressures range in the low range also - 100/60 to 110/75 and

> when I

> reach 120 to 130 over 80 or so, I can really feel the effects of it.

> It

> will be interesting to hear from everyone on this subject. Jan in CA

>

> +/:=)

> susan headley wrote:Just curious... Hope someone has answers!

> ...how many of us on this list run a LOW temp.?

> Mine for as long as I remember has always stayed between 96.7 - 97

> degrees. No kidding.

> I have been this way since childhood my mom said. Her mom's stayed low

>

> also. And she had arthritis, but did well with her arthritis (mild).

> My

> mom has arthritis. But hers is mild also. My sister has LUPUS..

> My mom runs a " low temp. " always, but hers in the mid 97's.

> One of my three daughters is like mine, and my sisters is like mine.

> Our

> temps run almost identical.

> My daughter (age 29) is having trouble conceiving, and my sister never

>

> did conceive. They never could find the reasons why my sister could

> not

> have baby.

> All the THYROID tests I had were " within normal " ranges.

> So is this THYROID test missing something???

> If I get a temp of 99+ I am extremely sick/throwing up usually.

> Just curious if anyone else is like this.

> By the way... my PLATELETS are always HIGH. So what causes this?

> Susie

>

>

>

[Guest guest]

<PRE>yes one of my dr's told me to buy a new thermometer. he is also a former

dr.

he was a jerk!!!! kathy in il

[Guest guest]

Let me add my name to the list--my normal temp is between 96.7 and

97.3, and I also have low bp, usually 98 or 99 over 60 or less. My

daughter is the same. Over the weekend when my temp was 99, then

went up over 100, I knew I was sick with something. Went to the walk

in clinic yesterday, and they actually LISTSENED when I said that my

normal temp. was very low, and this guy agreed (well, it was 100 by

then, and the nurse said that wasn't very high, but the doctor

overruled her.) The reproductive endocrinoligist my daughter and I

go to thinks the low bp, low temp, and RA are related to our PCOS,

but he has only just started a study on that. He is the first doctor

that told my daughter she did NOT need surgery to remove ovarian

cysts, and within 3 months of going to him, she was pregnant--with

triplets! He also reduced the strength of the hormone replacement I

was taking, and has given me a referral to a rheumy in Indianapolis.

Have you monitored your temp during a flare? I was thinking of

making a diary of flares & temperature.

Have a pleasant day,

Judi in IN

[Guest guest]

<< someone said why don't you just

realize you are a little warm and get on with it!!!>>

People can be so insensitive!

Much love,

Carol

Re: [ ] Temperature

<PRE>thats how i am too, sick when only in the 99 range. and it gets that

way

almost everyday. they just don't seem to understand, or as my atty puts it.

no test to prove this is what happens to us. someone said why don't you

just

realize you are a little warm and get on with it!!! don't i wish. kathy in

il

[Guest guest]

Hi Susie,

Although I don't know why, my normal temp is around 96.7-96.9.

Al

> Just curious... Hope someone has answers!

> ...how many of us on this list run a LOW temp.?

> Mine for as long as I remember has always stayed between 96.7 - 97

> degrees. No kidding.

> I have been this way since childhood my mom said. Her mom's stayed

low

> also. And she had arthritis, but did well with her arthritis

(mild). My

> mom has arthritis. But hers is mild also. My sister has LUPUS..

> My mom runs a " low temp. " always, but hers in the mid 97's.

> One of my three daughters is like mine, and my sisters is like

mine. Our

> temps run almost identical.

> My daughter (age 29) is having trouble conceiving, and my sister

never

> did conceive. They never could find the reasons why my sister could

not

> have baby.

> All the THYROID tests I had were " within normal " ranges.

> So is this THYROID test missing something???

> If I get a temp of 99+ I am extremely sick/throwing up usually.

> Just curious if anyone else is like this.

> By the way... my PLATELETS are always HIGH. So what causes this?

> Susie

[Guest guest]

> << someone said why don't you just

> realize you are a little warm and get on with it!!!>>

>

> People can be so insensitive!

>

Yah, people like my former doctor. I told him I had been running a

temperature occasionally, and he asked when. I told him mainly at

night it was the highest, and he wrote on my chart, " Night Sweats. "

That's why he's my FORMER doctor!

Peace,

Judi

[Guest guest]

My " normal " temperature is 97.4 and when it hits 99 I am burning up. Whenever

I get sick I tell the dr what my temp would be in their terms.....and then if

I go in there and it is only 99.4 or something..I remind them to look in my

chart at all my so called normal low temps and compare.Judy in AZ

[Guest guest]

Susie,

I always run a subnormal temperature also. 97 point whatever is my usual.

If I get to 100 during an illness, I'm darned sick. My thyroid tests always

come back normal too.

Suzanne

[ ] Temperature

> Just curious... Hope someone has answers!

> ...how many of us on this list run a LOW temp.?

> Mine for as long as I remember has always stayed between 96.7 - 97

> degrees. No kidding.

> I have been this way since childhood my mom said. Her mom's stayed low

> also. And she had arthritis, but did well with her arthritis (mild). My

> mom has arthritis. But hers is mild also. My sister has LUPUS..

> My mom runs a " low temp. " always, but hers in the mid 97's.

> One of my three daughters is like mine, and my sisters is like mine. Our

> temps run almost identical.

> My daughter (age 29) is having trouble conceiving, and my sister never

> did conceive. They never could find the reasons why my sister could not

> have baby.

> All the THYROID tests I had were " within normal " ranges.

> So is this THYROID test missing something???

> If I get a temp of 99+ I am extremely sick/throwing up usually.

> Just curious if anyone else is like this.

> By the way... my PLATELETS are always HIGH. So what causes this?

> Susie

>

>

>

>

[Guest guest]

In a message dated 1/4/2003 6:23:29 PM Pacific Standard Time,

ziger@... writes:

> My temp at the Dr office is always under 97.8 ALWAYS and I get, " Well,

> you're not running a fever! " Grrrrrrr

>

Yeah, har, har! I think such an attitude is flippant, ill informed, and

plain bad medicine! They just write you off because you don't fit their

notion of what is correct! I was SO surprised when my current doctor (of the

holistic persuasion) sat up and took notice when I showed him my temp chart!

It was the first time in 30 years any doc showed interest in the fact that I

was freezing all the time! It was based on my low body temps (along with all

the obvious, debilitating symptoms of hypothyroidism) that he put me on the

WTS treatment.

[Guest guest]

In a message dated 1/6/2003 6:30:25 AM Pacific Standard Time,

dbtrader2000@... writes:

> Is this underarm temp or lingual?

> The max i get from underarm is 96.6

>

Dear Barb,

When I first consulted my present, holistic doc, I gave him my chart of body

temps that I'd done under the arm. I'd read about doing it that way on the

Broda website. Based on those temps, he put me on the WTS treatment

program.

Since then I switched to taking the oral temps b/c I'm on the 's

treatment. Taking your temp daily at all is annoying! Trying to lie

absolutely still in bed in the morning and not being able to get up and go to

the bathroom first is the frustrating part of the BB method. Having to take

three oral temps during the day and then average them for the WTS method

takes time and setting an alarm or some other reminder so that's annoying,

too. But at least I can move around when I do the oral temp taking. Since

the daily temperature reading is an important diagnositic of how well I'm

doing, I manage to get three temps in on most days plus a heart rate count.

Here's a link on how to take temps w/ the underarm method:

<A

HREF= " http://www.alternate-health.com/thyroid.html " >http://www.alternate-health.\

com/thyroid.html</A>

Here's one on the WTS, oral method:

<A

HREF= " http://www.wilsonsthyroidsyndrome.com/HowAreTempsMeasured.htm " >http://www.\

wilsonsthyroidsyndrome.com/HowAreTempsMeasured.htm</A>

All the best,

in LA