Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 <PRE>yes i was looking at that stuff in the store today. too pricey for me right now. i'll keep using the stuff i have until it is almost gone. if that isn't good enough for the general population, too bad!!! lol !!! can you believe they called to have me come in for physical therapy?!?! i told them i have been denied over 7690.00. she wants me to come in tomorrow at 10 and bring the paperwork i rec'd. seemed pretty surprised by it. told her i called the foot dr, same office space but haven't heard back about what we are going to do about this. i said i guess you just set me up for an appt anyway huh? i need to get my records from them before i can continue with my appeal letter. here we go again!! kathy in il (how many appeals can i have against the same company?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 <PRE>i went to my rheumi and she agrees that it is time to get off prednisone for my health. the only problem is what to put in it's place? so i am supposed to go down to 7.5 for few days, then to 5 for a week. then 2.5 for a week and then off. she has given me neurontin for pain to take at night because it makes you dizzy.(gee how will i know?) other than that all she could really suggest was maybe a pain clinic, but she said it'd be almost $3000 to walk in the door. plus once you start you should finish and since we don't know what is up with my insurance. so it sounds like i'll just be living with it. she mentioned fibromyalgia again. my ankles are full of fluid. she said i keep telling them over and over, you need to be on disability. i knew i had my last chance drugs over a year ago, guess i have just been hoping something else will come up. or it will stop. next appt at the end of october. (she is busy!!) i am sitting here with tears running down my face and there is nothing i can do about it. she mentioned maybe i could try experimental treatments at northwestern, but we know how well i react to meds. plus again there is my insurance. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 <PRE>ok to top it off i just got off the phone with my atty. she has been talking to my company and they are not going to approve my short term disability claim. they are still waiting on a couple more letters, but she doesn't feel they will really be that much new info to make them change their minds now my atty is free. she has a friend she has faxed my info to him and he thinks i have may a case in court, but the dates are over a year. she said if they took my case to court. they would not be able to work on other peoples cases. so they weigh very heavily on whether they can win or not. she said i can take it somewhere else, but will have to pay. i hate all these decisions. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 Kathy, you are quite the little trooper hanging in there with all the appeals & lawyers & bills, etc. I admire your tenacity..you go, girl!!!!!! Love & Hugs.... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 <PRE>no on wrongful termination it is fee for service. cash up front. i think she saiid 2000. win or lose. my body is just so sensitive to meds i am afraid to try anything else. if i could pick one to go back to and try again it'd be enbrel or remicade. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 I'm sorry to hear of all these problems coming up at once for you Kathy. I wish there was something that I could do to help you. I'm sending you a cyber shoulder to lean on for now. Hang tough. Don't let them bring you down. Love and Hugs Stacey in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 <PRE>thanks, now my mom just reminded me that i will lose another 695/mo in january after my son graduates high school. i've totally lost it now and just sobbed for about 20 minutes and have a great headache. i think i'll call it a day. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 ((((((((((((Kathy)))))))))))...I'm sorry you're under all this stress. I'll keep you in my heart & in my prayers. Much Love..... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 ((((((((((((((((((((Kathy)))))))))))))))))))))) What a terrible day you're having, you sweetheart. Is your rheumy treating you for pain at all, or does she want you to go to a pain clinic for that? Hopefully you won't have any problem getting off the prednisone, and it is better for your health in the long run. As far as the experimental meds, I don't think you'd have to pay for them. Usually any trials supply the meds free of charge, as well as all the lab work. Sometimes they even pay you to participate. If they take your case to court, you'll have to pay in advance? That would be tough. Or do they take it out of your disability, as a percentage? I'm sorry you're having such a tough day. Much love, Carol Re: [ ] Kathy in IL <PRE>ok to top it off i just got off the phone with my atty. she has been talking to my company and they are not going to approve my short term disability claim. they are still waiting on a couple more letters, but she doesn't feel they will really be that much new info to make them change their minds now my atty is free. she has a friend she has faxed my info to him and he thinks i have may a case in court, but the dates are over a year. she said if they took my case to court. they would not be able to work on other peoples cases. so they weigh very heavily on whether they can win or not. she said i can take it somewhere else, but will have to pay. i hate all these decisions. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2002 Report Share Posted September 14, 2002 <PRE>Kathy, Thanks for your kind words. Thankfully she did not suffer but I know that she was so scared when she collapsed like that. Thankfully I do have my big white dog to keep me company. She is a real piece of work though<G> FOr as big as she is she can be quite the clown. Right now she is having her regular beauty sleep. For some reason it seems to work on her, but now me!!! I guess that the puppy Gods are with her. Take care and have a good weekend. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2002 Report Share Posted September 14, 2002 <PRE>no more like pimples that don't come to a head. sometimes they itch i think because of all the sweating. i have been doing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2002 Report Share Posted September 14, 2002 Kathy, Has your doctor seen the rash behind your ears? Could it be psoriasis? a > <PRE>did they give you anything for your face? sometimes i don't worry about > it > because i know what it is. then sometimes i'll get a glimpse of myself in the > mirror and it's like holy cow!!! also alot of rashy stuff by my ears. i can > cover it with my hair, but i've been sweating so much i've had my hair pulled > back in a pony tail most of the time. i've actually seen people kinda cock > there head and bend over to see what is on my face. gee no wonder i get self > consious about it. i was thinking of trying that multi colored face powder > i've seen on tv, anyone try it? or know of a good long lasting color? kathy > in il > > Quote Link to comment Share on other sites More sharing options...
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