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Re: Digest Number 2708

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Louise,

I just read about your test and how well everything came out for

you. All these prayers go from our mouths to Gods ears. I am soooooo happy

that everything worked out well. My hubby Joe had a cardiac cath about 12

years ago and the only thing he felt was the pressure that they applied when

it was over. My sister in laws aunt had one done last month and I guess they

don't use sandbags to apply pressure like they did years ago and just stich

the area closed so she was home in a few hours and out shopping the next day.

I hope that all goes well for y. Take care. Barb

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  • 3 months later...

possibly raynauds, another common auto-immune disease.

anita

>

> From: karen smith <valantine.smith@...>

> Date: Thu 09/Jan/2003 10:09 GMT

>

> Subject: Re: [ ] Digest Number 2708

>

> Again just for curiosity sake - why are the hands and feet red. I have

> this as well (PBC) and I know it goes with liver disease but why????

>

>

>

>

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Anita .... Raynauds is a completly different condtion than red hands and

feet (erythema). eynauds presents with white or pale fingers because of

lack of blood circulation, the red hands (and feet) are due to dialated

blood vessels ( more blood presnt)

Raynauds may be autoimmune but it isn't associated with liver disease.

Palmar erythema on the other hand (sorry about that :) ) is an

indication of liver disease , quite often alcoholic cirrhosis but may be

present with rheumatoid arthritis and certain thyroid conditions as well

as a by product of pregnancy.

It is caused by an excess of estrogen

( in liver disease estrogen is not properly detoxified) ands is related

to spider veins.

Now youse guys have all you need to know.

Red palms and feet most likely are warmer because of the dialated

vessels.

jeez... now I've told you too much.

love jerry

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thanks jerry, my doc. told me raynauds was conected to my aih. i am totally

confused now.

love

anita

>

> From: gefox@...

> Date: Fri 10/Jan/2003 02:42 GMT

>

> Subject: Re: Re: [ ] Digest Number 2708

>

> Anita .... Raynauds is a completly different condtion than red hands and

> feet (erythema). eynauds presents with white or pale fingers because of

> lack of blood circulation, the red hands (and feet) are due to dialated

> blood vessels ( more blood presnt)

> Raynauds may be autoimmune but it isn't associated with liver disease.

> Palmar erythema on the other hand (sorry about that :) ) is an

> indication of liver disease , quite often alcoholic cirrhosis but may be

> present with rheumatoid arthritis and certain thyroid conditions as well

> as a by product of pregnancy.

> It is caused by an excess of estrogen

> ( in liver disease estrogen is not properly detoxified) ands is related

> to spider veins.

> Now youse guys have all you need to know.

> Red palms and feet most likely are warmer because of the dialated

> vessels.

> jeez... now I've told you too much.

>

> love jerry

>

>

>

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  • 3 years later...

*Hello Pippa*,

Sophie here, I live in Wimbledon area London UK and only look at my

achalasia e-mails every so often,but just saw yours and wanted to let you

know that I'm on Nifedipine, and find that it gives me HUGE relief from my

symptoms...in fact I have tried to come off it on a couple of occasions and

had terrible trouble without it. I'm not sure why you have been told it is

not registered in the UK as I have been on it for sometime, and have never

heard this. It does lower your blood pressure and mine is low (approx

90/45) but this rarely affects me - just sometimes I feel a bit dizzy when I

get out of a hot bath or have to stand still for a prolonged period of

time...but this MUCH outweighs the trouble I have without taking it. I hope

that you start to feel better soon (I haven't had an op yet, but am seeing

my doc at St 's to just talk about things).

Would be really good to arrange to meet up one day

With every good wish

Sophie XXX

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Thank you Sophie You are only down the road from me I live in

Northamptonshire.

I will look forward to meeting you it would be great to meet up with

others with Achalasia.

The more I have read this weekend the more I thinkmaybe I should

have taken the perscription to Nifedipine.

It was the assessment nurse who told me that the drug had not been

licenced in this country for Achalasia but licenced in America and

many use it.

Pippa Northamptonshire

In achalasia , " sophia thomas " <sophiaemthomas@...>

wrote:

>

> *Hello Pippa*,

> Sophie here, I live in Wimbledon area London UK and only look at

my

> achalasia e-mails every so often,but just saw yours and wanted to

let you

> know that I'm on Nifedipine, and find that it gives me HUGE relief

from my

> symptoms...in fact I have tried to come off it on a couple of

occasions and

> had terrible trouble without it. I'm not sure why you have been

told it is

> not registered in the UK as I have been on it for sometime, and

have never

> heard this. It does lower your blood pressure and mine is low

(approx

> 90/45) but this rarely affects me - just sometimes I feel a bit

dizzy when I

> get out of a hot bath or have to stand still for a prolonged

period of

> time...but this MUCH outweighs the trouble I have without taking

it. I hope

> that you start to feel better soon (I haven't had an op yet, but

am seeing

> my doc at St 's to just talk about things).

> Would be really good to arrange to meet up one day

> With every good wish

> Sophie XXX

>

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In fact, it is not licensed or officially approved for achalasia

in the U.S. either. My son's gastroenterologist called it an

" off-label use. " But doctors often prescribe drugs for uses that

are not found on the label.

in Lancaster, PA

>

> The more I have read this weekend the more I thinkmaybe I

> should

> have taken the perscription to Nifedipine.

>

> It was the assessment nurse who told me that the drug had not

> been

> licenced in this country for Achalasia but licenced in America

> and

> many use it.

>

> Pippa Northamptonshire

>

>

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Is this the same as Procardia? I take this as well as nitroglycin.

hf

From: achalasia [mailto:achalasia ] On Behalf Of Sent: Sunday, September 17, 2006 5:15 PMachalasia Subject: Re: Re: Digest Number 2708

In fact, it is not licensed or officially approved for achalasia in the U.S. either. My son's gastroenterologist called it an "off-label use." But doctors often prescribe drugs for uses that are not found on the label. in Lancaster, PA>> The more I have read this weekend the more I thinkmaybe I > should> have taken the perscription to Nifedipine.>> It was the assessment nurse who told me that the drug had not > been> licenced in this country for Achalasia but licenced in America > and> many use it.>> Pippa Northamptonshire>>

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Yes channel blockers..same class

> Is this the same as Procardia? I take this as well as nitroglycin.

>

> hf

>

> _____

>

> From: achalasia [mailto:achalasia ]

On Behalf

> Of

> Sent: Sunday, September 17, 2006 5:15 PM

> achalasia

> Subject: Re: Re: Digest Number 2708

>

>

>

> In fact, it is not licensed or officially approved for achalasia

> in the U.S. either. My son's gastroenterologist called it an

> " off-label use. " But doctors often prescribe drugs for uses that

> are not found on the label.

>

> in Lancaster, PA

>

> >

> > The more I have read this weekend the more I thinkmaybe I

> > should

> > have taken the perscription to Nifedipine.

> >

> > It was the assessment nurse who told me that the drug had not

> > been

> > licenced in this country for Achalasia but licenced in America

> > and

> > many use it.

> >

> > Pippa Northamptonshire

> >

> >

>

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