Kathi in OK

[Guest guest]

I'm really sorry to hear about your hospitalization, Kathi. I was

wondering where you were.

I think you should have charged each nosey doctor for any and all

uninvited observation or questioning - maybe it's not too late! At least

I hope they learned something from you and that you gave them a hard

time while you had the chance.

Hope that you will feel much better soon,

[ ] RE: Hi all

> Hi RA Family:

> Wanted to let everyone know I didnt fall off the face of the

> earth...although some of you may be saying darn....have spent a couple

> of days being re-hydrated and tested in the hospital...came home to

> over 700 emails ...oh boy...anyways the thread on low temps...very

> interesting..mine stays at about 96...so when I had 102 my spouse was

> having a fit and flew ..(literally) into the ER....as I couldnt move

> my neck and west nile is running rampant in this area right now and I

> also hadnt held any food down in about 4 days ...that was the first

> thing they had to test for....in a Tess word phlooey....than they said

> OK you have to stay and have a lumbar puncture we want to take a look

> for spinal menengitis....I am saying at this point I WANT OUT OF

> HERE....I had a lumbar puncture last year and it was not something I

> cared to repeat...anyway after poking and prodding they decided I just

> had a whopper of a viral infection..and had to stay to be

> rehydrated...in the meantime every shift had to come look at the

> dingbat with scleroderma because they had to see someone with it as it

> just wasnt something that could be missed....fun..fun... not my idea

> of a good time....anyway have missed you all

> Louise: I am so glad your tests are OK

> : Thanks for saving me the time of looking up the aspartme email

> as I also recieved this ....you and a are invaluable

> AL:I hope your tests all come out OK...and the barium isnt that

> bad...just bring some gum for afterwards to get that taste out of you

> mouth....fingers are crossed everything comes out A OK

> Stacey: Good luck on the smoking...my dad has end stages COPD...he was

> in the hospital for a lung infection went to the bathroom to sneak a

> cig fell and broke his hip....I keep wondering if that ciggerette was

> worth it....if you have doubts about quitting visit someone with end

> stages of COPD .....I cant imagine anyone going that way....both my

> brothers quit after watching what my dad has gone

> through...unfortanatly he still continues to smoke....

> Tess: As always thanks for thinking of me and checking on me....you

> are much loved

> Iris: I hope you are feeling better and the new meds are working

> Carol:The card was to cute....

> Kathe in CA:I am still waiting with you....cant wait for the enbrel

> party..

> Kathy in IL: I would tell you what my mom always says to me ...which

> is keep your chin up....but sometimes I think it causes it to keep

> getting knocked...so instead I will just hope and wish things get

> better for you...and I must ask ..are you Irish....because it sounds

> like there must be a in your blood line

> Carol: I thought you were on the mend and then I read you are sick

> again.....please get better

> June: Hope your foot is starting to get better...

> To everyone else hope your tommorow is a good day

> And in closing this novelette I sure miss Lucy.....

> hugs to all.....Kathi in OK

[Guest guest]

Hi Kathi,

I'm glad to hear you've heard the same thing. I'm really having a hard time

with it tonight. I used to get the pleurisy occasionally and it would

clear up after a couple of days, and I wouldn't have it again for a couple

of months. Now I'm getting it every two weeks if not more often, and the

pain is much more severe. I wish this would clear up already.

How are you feeling, Kathi? Are the new pain meds keeping you comfortable?

I hope so. You've had a rough time lately but you're right there to give

all of us encouragement and love.

Sending much love your way,

Carol

Re: [ ] DEBS

>

> <PRE>sorry to hear of all the trouble you are having

> debs. i know how

> frustrating

> it can be. especially when we are dealing with very

> powerful meds. they

> really do not understand all of the risks and this

> is why they practice

> medicine. my infections became a subject at one of

> the state health dept

> meeting. of coarse they didn't use my name (thank

> god) but every time i get

> an infection i still wonder about remicade. i was

> shocked to hear they gave

> carol an infusion with pleurisy. i hope she has

> good results. i wonder what

> will happen to me after i am off prednisone, and i'm

> still not sure i want

> to

> take an anti seizure medicine yet. but i am happy to

> be declining my meds.

> i'm about to the point of saying whatever happens,

> is in gods hands. you are

> very strong to be going through all this and it

> makes me feel like i've got

> a

> piece of cake. gotta watch those triglycerides now.

> put that cake back!!!

> hope you can take control again soon. take care of

> yourself and be careful

> out there. kathy in il

>

>

>

>

[Guest guest]

Carol..I know it is the pits...every breath is like

someone stabbing you....then you try to compensate and

take little sucks of air...and feel like you arent

getting enough air....it is not my idea of a good time

I am sorry this has been going on for so long...have

my body parts XXXXX that it will end soon.......gentle

non rib hugs....Kathi in OK

--- Carol <carol@...> wrote:

> Hi Kathi,

>

> I'm glad to hear you've heard the same thing. I'm

> really having a hard time

> with it tonight. I used to get the pleurisy

> occasionally and it would

> clear up after a couple of days, and I wouldn't have

> it again for a couple

> of months. Now I'm getting it every two weeks if

> not more often, and the

> pain is much more severe. I wish this would clear

> up already.

>

> How are you feeling, Kathi? Are the new pain meds

> keeping you comfortable?

> I hope so. You've had a rough time lately but

> you're right there to give

> all of us encouragement and love.

>

> Sending much love your way,

>

> Carol

>

>

> Re: [ ] DEBS

> >

> > <PRE>sorry to hear of all the trouble you are

> having

> > debs. i know how

> > frustrating

> > it can be. especially when we are dealing with

> very

> > powerful meds. they

> > really do not understand all of the risks and this

> > is why they practice

> > medicine. my infections became a subject at one of

> > the state health dept

> > meeting. of coarse they didn't use my name (thank

> > god) but every time i get

> > an infection i still wonder about remicade. i was

> > shocked to hear they gave

> > carol an infusion with pleurisy. i hope she has

> > good results. i wonder what

> > will happen to me after i am off prednisone, and

> i'm

> > still not sure i want

> > to

> > take an anti seizure medicine yet. but i am happy

> to

> > be declining my meds.

> > i'm about to the point of saying whatever happens,

> > is in gods hands. you are

> > very strong to be going through all this and it

> > makes me feel like i've got

> > a

> > piece of cake. gotta watch those triglycerides

> now.

> > put that cake back!!!

> > hope you can take control again soon. take care of

> > yourself and be careful

> > out there. kathy in il

> >

> >

> >

> >