Re: Pooping in their sleep???-Sharry

[Guest guest]

Sharry,

When Hannah Grace was an infant we did do the knee in belly thing and

the warm towel. I wonder if it would benefit her now. Though I know

that gas is not her problem. I know this much....next time I get

enough money to bring her to a doctor it will be a different one!! I

want someone who will listen to me and not just diagnose all babes

with a stretched colon automatically. I want to get down to the bottom

of this. I truly feel she has a motility problem. Like her muscles

just won't push enough. My husband calls it a lazy colon. I call it a

nightmare. Yet Hannah is sooooo happy (cept when she gets backed up

you can see her get cranky).

Susie ~

>

> Do your little ones involentarely poop in their sleep? My dd will

> start making a sucking sounds, and then her legs draw up, and

you can

> tell she is trying to poop. She is 2 1/2 and she has done this for

> probably a year and a half.

>

> Thanks!

> Susie ~

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[Guest guest]

Thanks for your Reply Sharry!!

And goodness!! I hope I didn't sound as if I was scolding or acccusing

you of assuming things about Hannah. I think maybe my frustration with

this illness has overflowed into my post. I do appologise!!

No. I have not tried erithromyacin. Is this over the counter? Would I

use it to see if her problem goes away while on it? How would it help

diagnose? I am interested in anything I can do myself as funds are not

there and we have no insurance, and the government has denied us any

assistance cuz I choose to stay at home with my child and not get a

job in place of my dh who is disabled. I have started a Work at Home

Buisness making cloth toys and embellishing prefold diapers , but it

is just starting up, and I don't expect a killing from it. So cheep is

all I can do.

Thanks for your time!!

Susie ~

>

> Dear Susie,

>

> I am so sorry you are going through all this.

>

> I just wanted to be clear though - I KNOW gas isn't the main problem

for Hannah (or my guy.) I would never assume you as Mom just don't

get it that's " it's only gas! "

>

> But for Aidan the gas gets trapped by the constipation and becomes a

real aggravator to the problem.

>

> The real problem is the tone (high or low or mixed like Aidan) and

coordination. EVerything else is secondary. Aidan can't let us

poop out because his sphincters are too tight. But then the meds to

treat it slow down his whole GI tract and now he has problems like

Hannah getting it all to move through appropriately. So I do

understand so much.

>

> But sometimes we can bandaid things here and there and at least make

life more liveable while we search desperately for solutions. So I

know helping her pass gas would by no means solve Hannah's problems -

I just thought it might make sleep more peaceful and restful for her,

so she could wake up ready to do the deed! :-)

>

> I hope you find answers....it is so frustrating. I know this is

not a popular solution - but I thought I'd ask if you tried it just

for diagnostics sake at least - have you tried erithromyacin? Some

docs use it now in place of the GI motility meds that were banned or

are rarely used now. (Most people don't realze a huge risk to taking

Reglan is developing dystonia - my son's muscle spasm disorder).

>

> They also have new motility meds. I was pretty scared off of the

zelnorm after the diarrhea warnings. But I just saw someone saying

great things about the newest one - and wondered if at some point we

should try it. (Amiza) or something. Sometimes I think meds are

good because they can help diagnose problems - then we can search for

natural alternatives to the meds that don't produce the same side

effects. I don't feel that way about miralax - but I could see

trying some other meds to see if they help and we can stabilize things

then later try to keep stability by switching to natural solutions.

E-myacin would probably be too hard on Aidan to try with his

complex high and low tone in his GI tract. Don't know yet if that

would eliminate Amiza too - not sure anyone would know the answer to

that yet because it's so new! But I like you am still searching for

that perfect natural solution, while recognizing that I am dealing

with a tone problem that is not easy to " snap our fingers " and fix.

>

> *hugs*,

>

> sharry

>

>

>

>

[Guest guest]

" One of the issues I guess is whether you are dealing with slow

motility or poor coordination with motility. do you have any thoughts

there? "

Not really as I didn't know there was also poor coordination with

motility. Sigh. Just one more consideration of what this problem may be.

" All this motility stuff stinks. "

So many times I just want to bury my head in the sand and deny that

this is even happening. I just always wonder how can this be??? Then I

see some of your children who are much worse off.......

Susie ~