Re: If you have the cheese, I have the whine .......

[Guest guest]

<PRE>kathe, i know the pain and frustration you are feeling. i have had surgery

on

both hands and feet. hang in there. get something for the pain kathy in il

[Guest guest]

Hi Kathe...I do think the Welbuttron is helping. Today I add a dose at

dinner. Supposed to see the full effct in 3 weeks now. I'm also on

Paxil, but my Dr. says Paxil & Wellbutron work well with each other.

Thank you for asking.

Much Love....

Tess

[Guest guest]

Glad you came to let us know about your terrible flare, Kathe. You're always so

supportive of others and don't ask for much in

return.

I've really enjoyed reading your contributions to the animal stories and

also your thoughts about the struggles your family has faced so bravely,

particularly regarding your son. I've meant to comment on things you've

said many times, but my inbox is not cooperating.

Well, back to your current problem ...

I'm not sure that what you describe in relation to the numbness and

tingling sounds like Raynaud's to me (and I'm not saying you don't have

Raynaud's, I think it might be a separate issue though). In my case, the

numbness and tingling and color changes come about when I have an

attack, but then, after it's over, the numbness and tingling go away and

the color returns to normal.

Did you see the letter to the journal Rheumatology that reported of

peripheral neuropathy associated with Arava (leflunomide) that a

posted a few days ago? You said what's going on with your feet is new,

but were the numbness and tingling in your hands present before you

began taking Arava?

Peripheral neuropathy has an association with RA, too, so, it doesn't

have to be the Arava, it could just be the RA. I'm wondering though.

Here are two links on peripheral neuropathy:

On peripheral neuropathy from NeurologyChannel.com:

http://www.neurologychannel.com/neuropathy/ (make sure you see the links

at the bottom)

More on peripheral neuropathy from the National Institute of

Neurological Disorders and Stroke:

http://www.ninds.nih.gov/health_and_medical/disorders/peripheralneuropathy_doc.h\

tm

I'm sorry that you are experiencing so much widespread pain, too. I

would give your rheumatologist a call. Hope you can feel better soon,

Kathe!

[ ] If you have the cheese, I have the whine .......

> Hi All:

>

> In the middle of a nasty flare here, and just wanted

> to whine a bit. I woke up last night around 3 a.m.

> with such pain all over my body - from out of nowhere

> -especially in my ankles. This is new, the ankle

> thing, but it has been going on now for a few days.

> The RA started with hands and fingers, went to wrists,

> then elbows and shoulders, sometimes hips, and seems

> to have skipped my knees (and I have had knee problems

> for years) and has hit the ankles now. Upper body

> pain I can cope with okay, but when you can't walk

> without hobbling it's bad. I also get pain on the

> tops of my feet with numbness and tingling in my feet.

> I have had numbness and tingling in my hands on and

> off for a while but like I said the feet thing is new.

> Not too thrilled about it either! I guess my

> Raynaud's is also beginning to affect my feet - great.

> RA, the gift that keeps on giving. Anyway, right now

> everything hurts - it's been a while since I had this

> much pain and I just needed to vent. I hate this

> disease and what it does to us - I hate being tired

> all the time - I hate taking all those pills - I want

> to be able to do the things I used to do without

> pain...... Waaa....waaa. Okay, enough with the pity

> party and on with life!

>

> Hope you all are having a good day. Carol, glad that

> the Prednisone is beginning to help and hope that you

> can continue with the Remicade. Tess, how is the

> Welbutrin working for you - you seem more " up " lately.

> Debs, please, please find another doctor. Kathi - so

> sad about your . I have known of fainting goats

> but never realized they could die from it - how sad.

> Heidi and Stacey - great going on the smoke busters

> front! To everyone else - you are all in my thoughts

> and I thank everyone for just being there for me. It

> means a lot.

>

> Kathe in CA

[Guest guest]

Hi Kathe,

Sorry that you are not feeling well. I hope it gets better soon. I miss

riding horses. I used to go with a friend to a riding stable up in the

mountains. We used to go almost every other weekend. I am afraid that if I

would try it now, my back would completely collapse and my hips would just

crumble. I used to enjoy it so much. Galloping through the forests, up

hills and through streams. Just the smell of the fresh air and the feeling

of being so free was exhilarating. I hope that you are feeling well enough

soon so that you can get back on the horses and experience that wondrous

feeling again.

Love and Hugs

Stacey in PA