New to Group

[Guest guest]

Hillary, to me it seems you haven't found the right doctor indeed.

I'm not in NY so I can't be of any help as far as endos are concerned

but the fact that you can't be treated because you're not sick enough

doesn't really make sense. If you have been diagnosed it means

something in your blood tests showed some unbalance. When I had my

first lab tests, over one year ago, my tsh, t3 and t4 were alright but

I had lots of antibodies. And although my doctor said it was a mild

case of Hashimoto, he immediately put me on Levotiroxine. So you

absolutely have to shop around until you find somebody that takes your

complaints seriously, weight gain included and above all. I have always

been very thin so my gain is barely noticeable but it bothers me

nevertheless. I have met doctors who told me " You shouldn't complain,

I'm sure you look much better now " . I don't care if I look better or

not, I want to feel my body the way it was before!

It's amazing how women are still looked at as if they are some

brainless bimbos who whine and complain for nothing.

Sorry for the outburst...

Heit

Mercoledì, 23 lug 2003, alle 16:20 Europe/Rome, hillary71@... ha

scritto:

> Just joined the other day and thought I'd jump in and say

> hello. Was diagnosed over a year ago with Hashimoto's and

> apparently nothing can be done b/c I'm not sick enough. How

> sick does one have to be? I have all the symptoms for hypo

> for over three years now. I won't list them--you know them

> all. It's very, very frustrating.

>

> Is anyone else on this list in NYC and if so, who is your

> endo? I've been shopping around and have not found anyone to

> my liking. I swear I'm not a difficult person, I just don't

> think a doctor should ask me if I'm cheating on my diet and

> that's why I'm gaining weight. Or another doctor told me that

> I shouldn't compare myself to Hollywood--weight gain is

> normal for all people. So frustrating.

>

> Thanks,

> Hillary in NYC

>

>

<image.tiff>

>

>

>

[Guest guest]

Hi Everyone!

I am new to the group and would just like to take the time to

introduce myself. My name is Bambi(yes really!) and I am 29 years old.

In late 2003/early 2004, I started having severe pain and numbness all

over my body. I was rapidly degenerating and could barely walk most

days. I was sent to a Rheumatist who treated me for arthritis and

tested me for nerve damage as well as multiple diseases. During that

that time I started seeing an internist, and in late 2006 he diagnosed

me with Fibromyalgia and CFS/CPS,Depression,and most recently TMJ. I

have a great medicinal regimine. I have about half the pain, fatigue

and numbness that I had 3 years ago.

Enough gabbing about me..I am excited to be part of this group.

Health and Happiness to all!

B

[Guest guest]

Hi!

I am new to this group, and after reading your postings, my heart goes

out to all of you who are suffering. I joined this group because I've

been experiencing joint pain (in my toes, ankles, knees, wrists, and

fingers) and fatigue since the end of May. My dr diagnosed me with

Parvovirus (both my IgG and IgM levels were elevated, which he was

confused about). The joint pain and fatigue lasts for a few weeks, then

goes away for about a week, and then comes back. I am also losing more

hair than usual. I have an appointment to see a Rheumatologist the end

of this month. Has anyone else had these symptoms from the Parvovirus?

Christa

[Guest guest]

what is your great medicinal regimen that has helped you so much?? diane

Hi Everyone!

I am new to the group and would just like to take the time to

introduce myself. My name is Bambi(yes really!) and I am 29 years old.

In late 2003/early 2004, I started having severe pain and numbness all

over my body. I was rapidly degenerating and could barely walk most

days. I was sent to a Rheumatist who treated me for arthritis and

tested me for nerve damage as well as multiple diseases. During that

that time I started seeing an internist, and in late

[Guest guest]

>

> Hi Everyone!

>

>

> I am new to the group and would just like to take the time to

> introduce myself. My name is Bambi(yes really!) and I am 29 years

old.

> In late 2003/early 2004, I started having severe pain and numbness

all

> over my body. I was rapidly degenerating and could barely walk most

> days. I was sent to a Rheumatist who treated me for arthritis and

> tested me for nerve damage as well as multiple diseases. During that

> that time I started seeing an internist, and in late 2006 he

diagnosed

> me with Fibromyalgia and CFS/CPS,Depression,and most recently TMJ. I

> have a great medicinal regimine. I have about half the pain, fatigue

> and numbness that I had 3 years ago.

>

> Enough gabbing about me..I am excited to be part of this group.

>

> Health and Happiness to all!

>

> B

>

Welcome to the Group Bambi!

Hope you like it here.

Don't be shy to ask lots of questions, and vent, if you need it.

take care, ness.

[Guest guest]

Hi Bittles

Welcome to our group. Talk about informative people!. You will find

them here.

This group has been a blessing to me; I have FMS, CFIDS,TMJ,IBS; and i

pray thats all!.

There are people with far worse symptoms then me; and I remind myself

of that everyday.

I am a psychotherapist to nursing home residents; conesequently, that

is a good reality check for me.

Would you mind sharing your medicinal regime with our group. What has

worked what has not worked is always helpful to hear.

I also recently clicked on a link and found this website. Thought , I

would share it with all of you.

http://www.stopfibro.com/index.html

Sounds like a clinic that has been successful treating FMS; although,

there is a form to fill out for financial support/assistance, I wonder

how people afford the hotels/living arrangements for a lengthy time

while being treated.?

Also, I have been researching the supplement:guaifenesin.

Has anyone tried this for fibromyalgia?, supposedly it helps symptoms.

Thanks,

Debby (dcmaka)

[Guest guest]

The Xanthones in the original Mangosteen has helped a LOT with sleep and

reducing inflammation thus reducing need for pain meds!!

[Guest guest]

St. Amand (california) recommends guafenesin protocal. (google for info has

written books also).   diane L

[Guest guest]

Thanks for the warm welcome everyone!

Hi Diane,

Here is the gist of what I take medicinally:

60mg of Cymbalta - (hasn't been approved for FM yet but has been

approved for Diabetic Nerve Pain. fantastic results as far as

emotionally.

100mg of Trazodone- another antidepressant/sedative I take for sleep

..50mg of Triazolam- this is the medication prescribed for sedation

dentistry..I take it for sleep

For the pain, I take between 1-5 tablets of Tylenol #3 daily, usually

just 2 pills in the evening.

But one of the things that has helped me the most for reducing the

pain and inflammation is that I drink between 1.5-3 liters of

electrolyte enhanced distilled water. It has calcium magnesium and

most importantly potassium. I cannot live with out it. I am miserable.

I am able to significantly reduce the effects of TMJ. It also reduces

hotflashes and overheating.

If I can't get the right water, I will eat a banana or two to increase

my potassium levels. Also helps leg cramps after exercise.

Thanks!

Bambi

>

> what is your great medicinal regimen that has helped you so much?? diane

>