Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 I got the word from Kineret/Safety Net Foundation that I qualify to get Kineret for free. Now I don't understand why I should be excited since none of the other *miracle* drugs have worked but I have got a feeling this one just may It seems like my current cocktail of drugs is giving out and Kineret is coming at a good time. Still waiting to hear from Kineret to see when I get it shipped but it shouldn't be too long from now! YIPPEE! Shandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 Great news and good luck, Shandi! [ ] I am So Excited > I got the word from Kineret/Safety Net Foundation that I qualify to get > Kineret for free. Now I don't understand why I should be excited since none > of the other *miracle* drugs have worked but I have got a feeling this one > just may It seems like my current cocktail of drugs is giving out and > Kineret is coming at a good time. > > Still waiting to hear from Kineret to see when I get it shipped but it > shouldn't be too long from now! > > YIPPEE! > > Shandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2002 Report Share Posted September 26, 2002 <PRE>cool shandi, that is great to hear. i hope it works for you!!! kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2002 Report Share Posted September 26, 2002 Shandi, This is so great. This drug works completely different from the others, so try to stay optimistic. I hope it comes soon and works well. a > I got the word from Kineret/Safety Net Foundation that I qualify to get > Kineret for free. Now I don't understand why I should be excited since none > of the other *miracle* drugs have worked but I have got a feeling this one > just may It seems like my current cocktail of drugs is giving out and > Kineret is coming at a good time. > > Still waiting to hear from Kineret to see when I get it shipped but it > shouldn't be too long from now! > > YIPPEE! > > Shandi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 Super! Craine wrote: >I am so excited, I just had to share. My son, who is 2.5, talked at pre- >school today! This is big news because until now, he had not said >anything to them at all. This is a huge milestone for my son, IMO. > >Very Happy Friday, > >, 2.5 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 That's what we are hoping for. It's only a one-day a week pre-school and he's only been going since February. The teachers had said that he was not saying anything. Now, he is. So, that is a relief. It's a baby step, but it's a baby step forward. Something to celebrate =). -------------- Original message -------------- From: " Ellis-, Jaimie (DESC) " <Jaimie.Ellis-@...> I am so excited for you as well, my son, spoke at daycare around the same age. It seemed being around the other children actually drew him out. I know when kids actually told him hey talk right or I don't understand, he was frustrated at first but he was more willing to get his point across to his peer than to use. More success to come I am sure! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Keep him intergrated with children around his age even if its only at the playground or around family and friends, believe it or not, these kids know how to reach each other, and they are all at different levels, once they realise there is someone who hear and understands them or want to they make some major stride. My son amazes me every day, even though we only started this a little before he turned 2, and was making noise and using some words all the time, he really blossomed. We correct him a lot these day but in truth sometimes we have to remember to practice things with him because he has come so far and when picking him up in daycare you hear the kids Yell " it's your Mommie and he runs up to me smiling saying Hi mommie Lets go, and he runs grabs his stuff and is the first out the door. The teacher often drop their jaws now because they are shocked by him, in fact they are always saying there is nothing wrong with him, he is just stubborn. I know the truth but I am happy to see that my son is moving past all of this, so will your with your help. My prayers are with you. As a person who is married to a apraxic man, I know what wonderful things are ahead and possible for our children. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 You made me cry. Thanks for the pick me up. I really think the saying that we use only 10% is so true. Whatever the percentage, people who are so called " typical " are not using its full potential so it stands to reason if something out of the ordinary is going on in the brain of a PDD Nos, autistic, or otherwise impaired person with speech or other issues then integration, music, exposure and really just getting these kids out there in any way you can is a way to reorganize the thought process to " pass " for the norm and still be who they are and add their specil gifts to the world. I am not schooled in this. It's just my idea from my undiagnosed son who has speech issues and other stuff and what I have seen him do by simply exposing him to a variety of things. I did this based on recommendations from his therapists and from my own conclusions after reading a book called Endangered Minds. Whatever we label them, whatever the condition, children are miracles, gifts from God in my book, and cherishing them helps them reach their dreams and find that ours have come true. God Bless! Liz Ellis-, Jaimie (DESC) wrote: >Keep him intergrated with children around his age even if its only at >the playground or around family and friends, believe it or not, these >kids know how to reach each other, and they are all at different levels, >once they realise there is someone who hear and understands them or want >to they make some major stride. My son amazes me every day, even though >we only started this a little before he turned 2, and was making noise >and using some words all the time, he really blossomed. We correct him >a lot these day but in truth sometimes we have to remember to practice >things with him because he has come so far and when picking him up in >daycare you hear the kids Yell " it's your Mommie and he runs up >to me smiling saying Hi mommie Lets go, and he runs grabs his stuff and >is the first out the door. The teacher often drop their jaws now >because they are shocked by him, in fact they are always saying there is >nothing wrong with him, he is just stubborn. I know the truth but I am >happy to see that my son is moving past all of this, so will your with >your help. My prayers are with you. As a person who is married to a >apraxic man, I know what wonderful things are ahead and possible for our >children. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 No problem Liz, I am glad to give the pick me up message, my son is mirroring my husband to the letter, so I know thing will work out fine. It has brought our family closer, The secret of apraxia that my husband kept secret all those year is now wide open and now I understand why it take him a bit at time to gather his thoughts I thought Many a time he was ignoring me not know he was putting his thoughts into words ahead of time. Discovering the issue is key we are all well on our way to better lives for knowing what situations exists in our children and believe me, my girlfriend who have so called normal children have as much if not more issue in raising the so called normal child.My son looks at them at time and wonder after looking at me, what the heck is wrong with those kids Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 I know exactly what you mean. The thing is, with all of the different ways the brain can be molded with nutrition and environment, I am convinced there is no such thing as normal. Since I have a celiac and general malabsorption concern and from what I understand testing for either of these conditions is not always precise, for lack of a better word, I took it upon myself to get full family histories. I am still collecting info. which may or may not help (for celiac it seems to as lots of bowel conditions, hair loss and three will cancers that start in the bowel). In doing so I am seeing new things, for instance, cousins (my husband too) who seem to ignore and take extra time to respond just as you describe. An interesting piece to the ever-growing puzzle. I have my days (many lately) where I get scared and take it all on but in the end I do believe we get what we can handle which is why we can look at so-called " normal " and it seems crazy. It is. Ellis-, Jaimie (DESC) wrote: >No problem Liz, >I am glad to give the pick me up message, my son is mirroring my husband >to the letter, so I know thing will work out fine. It has brought our >family closer, >The secret of apraxia that my husband kept secret all those year is now >wide open and now I understand why it take him a bit at time to gather >his thoughts I thought >Many a time he was ignoring me not know he was putting his thoughts into >words ahead of time. Discovering the issue is key we are all well on >our way to better lives for knowing what situations exists in our >children and believe me, my girlfriend who have so called normal >children have as much if not more issue in raising the so called normal >child.My son looks at them at time and wonder after looking at me, what >the heck is wrong with those kids > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 > > >No problem Liz, > >I am glad to give the pick me up message, my son is mirroring my husband > >to the letter, so I know thing will work out fine. It has brought our > >family closer, > >The secret of apraxia that my husband kept secret all those year is now > >wide open and now I understand why it take him a bit at time to gather > >his thoughts I thought > >Many a time he was ignoring me not know he was putting his thoughts into > >words ahead of time. Discovering the issue is key we are all well on > >our way to better lives for knowing what situations exists in our > >children and believe me, my girlfriend who have so called normal > >children have as much if not more issue in raising the so called normal > >child.My son looks at them at time and wonder after looking at me, what > >the heck is wrong with those kids > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 > > >No problem Liz, > >I am glad to give the pick me up message, my son is mirroring my husband > >to the letter, so I know thing will work out fine. It has brought our > >family closer, > >The secret of apraxia that my husband kept secret all those year is now > >wide open and now I understand why it take him a bit at time to gather > >his thoughts I thought > >Many a time he was ignoring me not know he was putting his thoughts into > >words ahead of time. Discovering the issue is key we are all well on > >our way to better lives for knowing what situations exists in our > >children and believe me, my girlfriend who have so called normal > >children have as much if not more issue in raising the so called normal > >child.My son looks at them at time and wonder after looking at me, what > >the heck is wrong with those kids > > > > > > Quote Link to comment Share on other sites More sharing options...
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