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Tess

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In a message dated 9/29/2002 12:34:58 AM US Mountain Standard Time,

writes:

> Hi Tess

Thanks for the info.I will gather a list of all who provide info and then

feed it back to the group for their information. It is interesting to see

just how much these meds do not work for all of us who take them because we

need them so much.

Love Joanne

> Date: Sat, 28 Sep 2002 14:03:21 -0700 (PDT)

> From: tess_northwest@...

> S\

Prednisone tapers and injections at joints. NASD's which all

>

> made me very ill (gastro)

> 1998 Plaquenil - no effect

> 1999 Arava - no effect on RA, but did lose weight spontaneously

> 2000 Oral Methotrexate - could not stay on it long because of terrible

> tummy problems, so switched to injectable. Started on Enbrel 2 x week.

> Very minimal & erratic help.

> 2002 Injectible MTX, and started on Remicade. Immediate positive

> results from Remicade, but Remicade cycle has gone from every 8 weeks to

> every 6 weeks, as effectiveness has worn off sooner. Have used

> prednisone taper twice for flares.

>

> I believe the MTX has helped the psoriasis quite a bit, but it is not

> gone.

>

> Love...

>

> Tess

>

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Tess

Your poem touched my heart and made me cry. So many times I order what is my

purpose any longer for being on this earth. Theses diseases take away so much

of our life and in our prime many times. It is hard to look at what we do

have but there is a reason for this Tess, I sincerely believe that our

suffering is done on earth.....for a better place..A doctor once said that RA

only happens to nice people..... I will chose to take that a good way. Thank

you for the wonderful poem...that is a keeper

love Joanne

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My dear Tess,

Thank you very much. Your support and love means a lot to me and my

family, as it always has. I do believe that love conquers all and can

get us through.

I hope this message finds you well.

All my love,

Al

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