Re: Kathe. Jannie & Joanne

[Guest guest]

Thanks so much for your replys. I know I need to give my doc more information

but for the last 2 years my GP and others have made me feel that so much of this

is in my head. My Orthopedic doc...after my surgery let me know that he thought

something else may be going on. I did not test positive for the R/A factor but

did test positive for the ANA and HLA-B 27. My history according to her pointed

to R/A. I have been in severe fatigue for about 2 years and so many minor

things an no one thought anything more...I thought all this pain was just due to

turing 50. I did think that all that was happening was happening fast. All past

docs just told me I was depressed and gave me a script for

anti-depressants...none helped...but again I was depressed but mostly because I

was losing me. No anti-depressant will work if you still are hurting all the

time. The shoulder was my biggie...when given the cortisone shot..I went for

bad pain to please shoot me. It was not the injections it was the cortisone

The next day after the shot I hurt worse than ever. The few days after was just

a blur of tears. When placed on oral predisone I experience much of the same

thing...on about the 10 day...I hurt so bad I could hardly sit...my legs felt

like they were blown up and would explode. My hands and feet did not feel like

they were mine. I was in more pain with this than with out it. I stoped the

predinose and it took about another 10 days to get back to what was my before

normal. I am now almost back to my predisone day...but I do fear taking it

after than reaction. All docs say this is not the norm. We produce

cortisone...so I do not know what my problem is.

I will tell the doc more of what is going on. I am not sure how much more I can

deal with. Since Feb I have been saying I will do it when I feel better this

time is not coming. My house is a disaster. My life is horrible. I need a

hand...and no extra money to devote to that help. I will keep keeping on...but

I am not sure how much longer I need to find peace. I still do not understand

how so much is happening so fast. My shoe size had increased since June. I can

not zip a dress because I can not reach in back...doing my hair is horrible.

This disease is for the very rich. If we could get massages...have hot

tubs...and maid...and not have to work we could endure this pain. The

depression is mostly due to what is happening to me. I keep thinking the next

med is going to work. I do not want this doc to think this is all in my head.

I am at wits end...thank your for understanding were few do.

Myra Nix...Atlanta GA..50

[Guest guest]

Myra: Your pain and confusion really comes through in

this email...I am sorry you are having such a bad

time, and really angry that another person has gone

through what most of us all have faced , I think most

of us have felt at one time or another our docs just

thought we were pre menopausal or going through

menopause nuts....you know your body better than

anyone and why they have to try to convince us of this

I will never understand, my prayers are being said

that you find a resolution to all this...do you have

family that can help? zip a dress, or comb your hair?

There are devices out there that can help...a zipper

puller with a long handle ...I have a terrible time

with buttons and found a device that works really

great .....it is a hookey thing that you put the the

hole and grab the button and works really great. They

really arent terribly expensive ....anyway I hope you

get some answers, and find a doc that really does

help....and hope you let us know how it turned

out...hugs from OK .......Kathi

--- Myra <tarnishedsilverheart@...> wrote:

>

> Thanks so much for your replys. I know I need to

> give my doc more information but for the last 2

> years my GP and others have made me feel that so

> much of this is in my head. My Orthopedic

> doc...after my surgery let me know that he thought

> something else may be going on. I did not test

> positive for the R/A factor but did test positive

> for the ANA and HLA-B 27. My history according to

> her pointed to R/A. I have been in severe fatigue

> for about 2 years and so many minor things an no one

> thought anything more...I thought all this pain was

> just due to turing 50. I did think that all that was

> happening was happening fast. All past docs just

> told me I was depressed and gave me a script for

> anti-depressants...none helped...but again I was

> depressed but mostly because I was losing me. No

> anti-depressant will work if you still are hurting

> all the time. The shoulder was my biggie...when

> given the cortisone shot..I went for bad pain to

> please shoot me. It was not the injections it was

> the cortisone The next day after the shot I hurt

> worse than ever. The few days after was just a blur

> of tears. When placed on oral predisone I

> experience much of the same thing...on about the 10

> day...I hurt so bad I could hardly sit...my legs

> felt like they were blown up and would explode. My

> hands and feet did not feel like they were mine. I

> was in more pain with this than with out it. I

> stoped the predinose and it took about another 10

> days to get back to what was my before normal. I am

> now almost back to my predisone day...but I do fear

> taking it after than reaction. All docs say this is

> not the norm. We produce cortisone...so I do not

> know what my problem is.

> I will tell the doc more of what is going on. I am

> not sure how much more I can deal with. Since Feb I

> have been saying I will do it when I feel better

> this time is not coming. My house is a disaster.

> My life is horrible. I need a hand...and no extra

> money to devote to that help. I will keep keeping

> on...but I am not sure how much longer I need to

> find peace. I still do not understand how so much

> is happening so fast. My shoe size had increased

> since June. I can not zip a dress because I can not

> reach in back...doing my hair is horrible. This

> disease is for the very rich. If we could get

> massages...have hot tubs...and maid...and not have

> to work we could endure this pain. The depression

> is mostly due to what is happening to me. I keep

> thinking the next med is going to work. I do not

> want this doc to think this is all in my head. I am

> at wits end...thank your for understanding were few

> do.

> Myra Nix...Atlanta GA..50

>

>

>

>

[Guest guest]

In a message dated 10/6/02 12:06:19 AM Central Daylight Time,

iamladybird@... writes:

> zip a dress, or comb your hair?

>

since my carpal tunnel surgeries and bone replacement in my wrist. i don't

trust myself with buttons. i can do them, but sometimes it takes me awhile. i

can't remember when was the last time i wore real jeans. i wear very plain

clothes. just pull over my head, zip or snaps. sometimes it gets frustrating,

but oh well. my hardest thing was to give away my fun boots after my tarsal

tunnel surgeries. now i'm back to walking shoes only. it is very rare for me

to dry my hair anymore. has to be a pretty special occasion, or cold!!! my

arms get really tired and sore., since ll my sweaty problems. which actually

stopped after the hot weather, and all my itchy rash from meds i usually keep

my hair back in a pony tail. not very much fun at all. but hey, i know it

could be much worse. kathy in il