Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Hi Sheila, I too am recently diagnosed, about a year ago, and from upstate NY. After much disappointment with my internal medicince doc I came across the name of Levine in NYC. She is working on developing the correct treatment regime for me but she did put me on Amantadine, anti viral, because my EBV and Herpes6 titre were out of the box. That appears to have helped some. At least now when I get up in the morning I don't feel like I'm trying to drag a heavy bag of nuts and bolts out of bed. She also tested some aspects of my immune system and my system was low, so I'm having weekly gamma globulin shots. Next week will be the 6th shot and then she's going to run the full set of bloodwork again. I'm also taking Provigil which gives me enough energy to get to 5 each work day. Dr. Levine does not participate in my health plan but it was well worth the money spent on a consultation. Now we're having phone consultations which are less expensive. Good Luck, > > Hi All, > I am new here, as I was recently diagnosed with chronic relapsing EBV > and resulting CFS. Quote Link to comment Share on other sites More sharing options...
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