New here! and Devon**please look at this video clip.

[Guest guest]

Hi all,

here and my beautiful 2 yrs. old DD is Devon. She has hypotonia and dev.

delays.

She is also chronically constipated. For about 5 mos. or so, she would have

these

unexplained muscle spasms. We have seen 3 neuros, 2 geneticists and teams of

specialists

in between. At first, we thought they were seizures and an overnight VEEG ruled

that out.

Someone mentioned reflux perhaps and we did an endoscopy and a ph probe. Nope,

not

reflux. Then, several dr.s mentioned chronic constipation. We are on Miralax and

she is

going more but these episodes still happen. They happen when she is lying down

and up to

2 x a night and sometimes once during the day when we lay her down to change her

diaper.

Please take a look at this video and let me know if your los has experience

this?

TIA!

and Devon

http://s144.photobucket.com/albums/r186/newmothermary/?

action=view & current=MVI_2531.flv